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BioMarin Supports Observance of Rare Disease Day February 28
Date:2/26/2009

Worldwide Coalition Seeks to Increase Public Awareness and Research to Improve Medical Care for Patients Lacking Adequate Treatment Options

February 28 To Be Observed Around the World With a Variety of Programs and Activities

NOVATO, Calif., Feb. 26 /PRNewswire-FirstCall/ -- BioMarin Pharmaceutical Inc. (Nasdaq: BMRN) announced today that it will participate in a coalition of organizations led by the National Organization for Rare Disorders (NORD) to support the observance of Rare Disease Day on February 28. A variety of patient organizations, professional societies, government agencies, medical researchers and biopharmaceutical companies will also participate in the campaign, which is designed to raise awareness about the public health issues associated with rare diseases, which affect nearly 30 million Americans and millions of others internationally.

"People with rare diseases remain a medically underserved population around the world," said Jean-Jacques Bienaime, Chief Executive Officer of BioMarin. "We support and applaud all of the efforts NORD has made within the last 25 years to spearhead 'orphan' disease legislation and to bring more attention to the unique needs of these patients. Like NORD, we are committed to serving this population, and we will continue to support the organization and its efforts to raise public awareness, increase scientific research and provide these patients with the medical treatments they deserve."

"People with rare diseases face unique challenges compared to those with more common diseases," said NORD President, Peter Saltonstall. "They often have great difficulty obtaining accurate diagnoses and finding medical experts who recognize and understand the complexities of their rare disorders. It is our ongoing mission to work with our partners i
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SOURCE BioMarin Pharmaceutical Inc.
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