Navigation Links
Better ethics education needed in community-based research
Date:5/3/2012

MAYWOOD, Ill. -- A growing number of health research programs are collaborating with community groups to conduct research. The groups help recruit study participants, obtain informed consent, collect data and provide input on study design and procedures.

But existing programs that educate researchers, community groups and institutional review boards about research ethics "fail to meet the needs of all groups that have a role in community-engaged research," according to an article in the Journal of Empirical Research on Human Research Ethics.

First author of the study is Emily E. Anderson, PhD, MPH, an assistant professor in the Neiswanger Institute for Bioethics & Health Policy of Loyola University Chicago Stritch School of Medicine.

Community-engaged research has been defined as research that provides communities with a voice and role in the research process, beyond simply providing access to research participants.

Community-engaged research raises numerous unique ethical issues that have not been fully explored from the perspectives of all parties, Anderson and colleagues write. Academic and community partners sometimes have different goals, expectations, access to resources, work styles, types of expertise or interpretations of research results. Community-engaged research also may pose risks to all members of a group -- even those who do not participate directly in the research -- when findings potentially could label or stigmatize the entire group. Community partners also may experience distress when conducting research in communities where they work or live, due to feelings of responsibility beyond their research roles.

To address these and other ethical issues, the authors recommend numerous best practices for members of institutional review boards and those involved in community-engaged research partnerships. The authors also proposed a detailed research agenda for studying ethical issues in community-engaged research from the perspective of several stakeholders.

This effort was supported by the national Center for Research Resources and the National Center for Advancing Translational Sciences, National Institutes of Health, through grants to several institutions.

Anderson, who is corresponding author of the article, has worked with several community-engaged research projects in Chicago. Her research interests include empirical research in bioethics, institutional review board policy and processes, health disparities and ethical issues in public health research and practice. She also has served on several institutional review boards.


'/>"/>

Contact: Jim Ritter
jritter@lumc.edu
708-216-2445
Loyola University Health System
Source:Eurekalert

Related medicine news :

1. Cone beam CT proves better for visualizing some causes of hearing loss at half the radiation dose
2. Researchers gain better understanding of mechanism behind tau spreading in the brain
3. Better Ways Needed to Track Drug Safety: Report
4. MR enterography is as good or better than standard imaging exams for pediatric Crohns patients
5. Better health in adulthood starts with early prevention in childhood
6. Which ads are winners? Your brain knows better than you do
7. Hispanics Seem to Have Better Odds of Lung Cancer Survival
8. New Psoriasis Drugs Not Much Better Than Standard Therapy, Study Finds
9. Kidney Cancer Patients Fare Better With Tumor Removal Only
10. Kidney cancer patients do better when whole kidney is not removed, U-M study shows
11. Out-of-hand tree nut consumption associated with better diet quality in children and adults
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/28/2017)... ... 2017 , ... Quorum Health announced that Robert A. Vento has been appointed ... Maher was promoted to COO of QHR. , A national search was ... and CEO in December 2016. , “I’m pleased to announce these ...
(Date:6/28/2017)... ... June 28, 2017 , ... Drs. Steven Crandall, Karen Johnson ... in Pittsburgh, PA, and Upper St. Clair, PA, without a referral. The doctors address ... the health of the temporomandibular joint and facial muscles that support it. , ...
(Date:6/28/2017)... ... 28, 2017 , ... Anyone with a remote control has seen the never-ending twists on the ... flipper will get rich in no time. But what about the buyers of the ... the buyer of a flipped house. An email recently sent to Gary Case said, ...
(Date:6/28/2017)... PA (PRWEB) , ... June 28, 2017 , ... ... host a one-day corporate governance program for mid-market executives as a kick-off to ... be held Sunday, Sept. 24, 2017 on the University of Pennsylvania campus, followed ...
(Date:6/28/2017)... ... June 28, 2017 , ... Canadian ... announce that a two year study conducted by the University of Saskatchewan in ... successful in remediating potash brine-impacted groundwater. As a part of the study, batch ...
Breaking Medicine News(10 mins):
(Date:6/9/2017)... , June 9, 2017 More than ... further effort to help spread lessons learned from clinical ... International Diabetes Federation (IDF) and Eli Lilly and Company ... the second phase of the Bringing Research in Diabetes ... their commitment to helping people with diabetes effectively manage ...
(Date:6/7/2017)... 2017 Endo International plc (NASDAQ: ... Hon. Joseph R. Goodwin , U.S. District Court ... Virginia , entered a case management order in ... Products Liability Litigation (the "MDL") that includes a provision ... expert disclosures on specific causation within one hundred twenty ...
(Date:6/5/2017)... Neb. , June 5, 2017 ... in the United States . ... helps a fallen person up to an almost-standing ... easily assembled and operated by one assistant and does ... It is simple enough that a child can operate ...
Breaking Medicine Technology: