Navigation Links
Better ethics education needed in community-based research
Date:5/3/2012

MAYWOOD, Ill. -- A growing number of health research programs are collaborating with community groups to conduct research. The groups help recruit study participants, obtain informed consent, collect data and provide input on study design and procedures.

But existing programs that educate researchers, community groups and institutional review boards about research ethics "fail to meet the needs of all groups that have a role in community-engaged research," according to an article in the Journal of Empirical Research on Human Research Ethics.

First author of the study is Emily E. Anderson, PhD, MPH, an assistant professor in the Neiswanger Institute for Bioethics & Health Policy of Loyola University Chicago Stritch School of Medicine.

Community-engaged research has been defined as research that provides communities with a voice and role in the research process, beyond simply providing access to research participants.

Community-engaged research raises numerous unique ethical issues that have not been fully explored from the perspectives of all parties, Anderson and colleagues write. Academic and community partners sometimes have different goals, expectations, access to resources, work styles, types of expertise or interpretations of research results. Community-engaged research also may pose risks to all members of a group -- even those who do not participate directly in the research -- when findings potentially could label or stigmatize the entire group. Community partners also may experience distress when conducting research in communities where they work or live, due to feelings of responsibility beyond their research roles.

To address these and other ethical issues, the authors recommend numerous best practices for members of institutional review boards and those involved in community-engaged research partnerships. The authors also proposed a detailed research agenda for studying ethical issues in community-engaged research from the perspective of several stakeholders.

This effort was supported by the national Center for Research Resources and the National Center for Advancing Translational Sciences, National Institutes of Health, through grants to several institutions.

Anderson, who is corresponding author of the article, has worked with several community-engaged research projects in Chicago. Her research interests include empirical research in bioethics, institutional review board policy and processes, health disparities and ethical issues in public health research and practice. She also has served on several institutional review boards.


'/>"/>

Contact: Jim Ritter
jritter@lumc.edu
708-216-2445
Loyola University Health System
Source:Eurekalert

Related medicine news :

1. Cone beam CT proves better for visualizing some causes of hearing loss at half the radiation dose
2. Researchers gain better understanding of mechanism behind tau spreading in the brain
3. Better Ways Needed to Track Drug Safety: Report
4. MR enterography is as good or better than standard imaging exams for pediatric Crohns patients
5. Better health in adulthood starts with early prevention in childhood
6. Which ads are winners? Your brain knows better than you do
7. Hispanics Seem to Have Better Odds of Lung Cancer Survival
8. New Psoriasis Drugs Not Much Better Than Standard Therapy, Study Finds
9. Kidney Cancer Patients Fare Better With Tumor Removal Only
10. Kidney cancer patients do better when whole kidney is not removed, U-M study shows
11. Out-of-hand tree nut consumption associated with better diet quality in children and adults
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:9/1/2020)... Calif. (PRWEB) , ... September 01, 2020 , ... As ... “safe side”, the Cohn Health Institute has taken this time to expand ... celebration of its 30th Anniversary, the Cohn Health Institute will be relaunching its brand ...
(Date:8/31/2020)... ... August 31, 2020 , ... Cardiothoracic surgeons at Allegheny General ... Carnegie Mellon University (CMU) to develop a new heart monitoring device designed to ... surgery. , The AGH/CMU team was recently awarded a “Trailblazer” grant from the ...
(Date:8/31/2020)... ... August 31, 2020 , ... Just found out your dear friend has cancer? , It’s ... friend or family member shares their diagnosis. Once the shock wears off, the questions and ... thing? What are the best ways to help? Words are failing me. I’m scared. I ...
(Date:8/31/2020)... (PRWEB) , ... August 31, 2020 , ... Want to ... 1, Cerebral Palsy Alliance Research Foundation (CPARF) is thrilled to launch its fourth annual ... research. A fully virtual challenge, STEPtember meets everyone wherever they are at this moment ...
(Date:8/31/2020)... ... August 31, 2020 , ... Colorado State University Global (CSU ... affordable online education – is proud to announce its new master’s degree in ... its kind in the nation, the 60-credit hour program is designed to provide ...
Breaking Medicine News(10 mins):
(Date:8/26/2020)... ... August 26, 2020 , ... ScripHessco ... Sports Injuries. The infographic breaks down ways that chiropractors can help heal sports ... According to ScripHessco “Athletes have an unusual amount of pressure and stress on ...
(Date:8/26/2020)... RESTON, Va. (PRWEB) , ... ... ... Alliance (CEA) Holdings company today announced that it has entered into definitive ... healthcare professionals CME/CE, primarily focused on pharmacists and pharmacy technicians. , ...
(Date:8/26/2020)... YORK (PRWEB) , ... August 26, 2020 , ... ... nation’s largest non-profit organization devoted to funding innovative lymphoma research and serving the ... its 25th Anniversary with a special virtual LRF Gala and Charity Auction ...
Breaking Medicine Technology: