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Autism Speaks launches research partnerships with Albania and Ireland
Date:4/1/2009

Mandarin Chinese, Arabic, Hindi, Bengali, Marathi, Konkani, Korean and Zulu. Combined, these languages are spoken by an estimated 1.75 billion people worldwide. The Chinese Mandarin versions of the gold-standard diagnostic instruments, the ADOS and ADI-R, were recently approved and are currently available for research and training purposes.

Autism Speaks also funded a proposal from a sub-group of the International Autism Epidemiology Network (IAEN) focusing on registry-based epidemiology. This project aims to uniquely study autism prevalence and potential environmental and genetic risk factors using a large, combined database, or "registry of registries," with information from six international sites. The International Collaboration for Autism Registry Epidemiology (iCARE) includes population based health registry data from Australia, Denmark, Finland, Israel, Norway, and Sweden, with Columbia University and the CDC assisting in data coordination and analysis. The IAEN, co-developed by Autism Speaks and the Centers for Disease Control and Prevention (CDC), now engages nearly 80 research professionals from 30 countries around the world.

The Autism Speaks Baby Siblings Research Consortium (BSRC) involves the work of 23 scientists from 19 institutions across the globe. This work investigates the infant siblings of children with ASD. Different studies focus on how autism is expressed in early behavioral and biomedical symptoms, which in turn will hopefully lead to both early diagnosis and treatment. Key BSRC efforts in the past year include:

  • The start of studies investigating genetic and environmental risk factors in high risk groups.
  • Autism Speaks launched its first primary BSRC project to study over 1000 sibs and their family members.
  • Autism Speaks provided $5 million in funding to link two continuing studies of high risk siblings as early as pregnancy. One was supported to look at environmental risk factors, and the o
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Contact: Jane Rubinstein
jrubinstein@rubenstein.com
516-993-0708
Autism Speaks
Source:Eurekalert

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