AGRE brings its unique collection of clinical, medical and genetic data from 2500 families including parents, siblings and children with ASD to this collaboration, and more than 11,000 DNA bio specimens. Approved NDAR users can apply for access to data from AGRE, as well as the 25,000 research participants represented in NDAR and more than 7,500 participants who reported their own information to IAN.
"The collaboration between AGRE and NDAR exemplifies the efforts of government and stakeholders working together for a common cause," said Thomas R. Insel, M.D, director of the National Institutes of Mental Health (NIMH). "NDAR continues to be a leader in the effort to standardize and share ASD data with the research community, and serves as a model to other research communities."
NDAR's mission is to facilitate data sharing and scientific collaboration on a broad scale, providing a shared common platform for autism researchers to accelerate scientific discovery. In creating a federation of data repositories, investigators are able to access data, tools, and computational techniques in NDAR and other major public and private autism databases simultaneously. By integrating results from multiple sources, NDAR provides a rich data set for multiple uses, such as data mining, aggregation, and views into the data supporting research publications.
Over the past two years, Autism Speaks has constructed the data management infrastructure which enables both the AGRE and ATP data to be integrated into NDAR. That work was supported by NIMH grants totaling approxima
|Contact: Jane E. Rubinstein|