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Atlanta Resident Spencer Wyckoff to Appear on NBC’s “American Ninja Warrior” to Raise Awareness about FSH Muscular Dystrophy

The next episode of NBC’s hit show, “American Ninja Warrior” is set to feature a unique competitor, Spencer Wyckoff, who was driven to compete to raise awareness for the rare and incurable disease, FSH muscular dystrophy. The episode, which will focus on the local Atlanta trials, features interviews and footage with Spencer and his sister Carden Wyckoff, who suffers from FSHD, about her struggles with the disease and his drive to raise awareness and funds in the search for a cure.

Tune in on Wednesday, June 8 at 8:00 PM ET/ 7:00 CT to watch the episode on NBC.

Watch a preview of the episode:

Facioscapulohumeral muscular dystrophy, or FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease that causes progressive weakness, usually starting with the face, shoulder, arms, lower legs and core, but can affect almost any skeletal muscle. FSHD affects approximately 870,000 people yet, currently, there is no treatment or cure.

To arrange an interview with Spencer and Carden Wyckoff to learn more about their journey, FSHD and what ordinary Americans can do in the search for a cure, please contact: Theresa Masnik at; 617-779-1871.

What:    Atlanta Resident Competes on American Ninja Warrior for FSHD Muscular Dystrophy

When:         Wednesday, June 8, 2016
8:00 PM ET

Where:     NBC’s American Ninja Warrior
Watch a preview of the episode:

Why:     Spencer Wyckoff, brother of FSH Society Ambassador Carden Wyckoff is competing to raise awareness of FSH muscular dystrophy. Spencer says his sister’s experience with FSHD has made her who she is; organized, motivated, a force of change and a huge advocate in the wheelchair community. He credits Carden with strengthening his family’s bond when she was diagnosed with FSHD at the age of 9 years old.

# # #

Theresa Masnik: SHIFT Communications, 617-461-0522;

About the FSH Society: The FSH Society is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For eight consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than two percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at For more information about FSHD, please contact the Society at 781-301-6649.

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Source: PRWeb
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