Navigation Links
American Brain Tumor Association-Funded Study Explores Survivorship Challenges
Date:5/3/2013

Chicago, IL (PRWEB) May 03, 2013

A new study appearing in the May 2013 issue of Oncology Nursing Forum examines the challenges faced by brain tumor patients in the years following treatment for highly malignant tumors. The study, entitled “A New Reality: Long-Term Survivorship with a Malignant Brain Tumor,” is funded in part by the American Brain Tumor Association.

“Initially for brain tumor patients and their families, survival is a goal, not a state of being. However, as advances in brain tumor treatment and care have led to an increase in long-term survival rates, there is increasing interest among patients, caregiver and health care providers alike in a better understanding of the realities of brain tumor survivorship,” said Mary Lovely, RN, PhD., senior advisor for national programs and services for the ABTA and primary investigator on the study.

The resulting study, which was based on interviews with 35 brain tumor patients and their caregivers from across the United States, found that the type, location and treatment of a brain tumor can contribute to profound changes and challenges in the survivor’s life, including decreased cognition and motor skills, loss of employment, and shifts in interpersonal relationships.

Safety issues were identified as one particularly challenging area affecting both the patient and the caregiver. Respondents cited seizures as a major concern as they are unpredictable, uncontrollable and potentially injurious, noting that “caregivers described the need to be on the constant lookout for unsafe situations for the survivor.” The study further observed that survivors “found themselves relinquishing pleasurable activities because of symptoms,” citing one patient who found his inability to continue with his gardening hobby to be “worse than tumor diagnosis or treatment.”

In order to adjust to these changes, survivors adjust their expectations and build a new reality of their life. Survivors shared their efforts to re-define normal, both by developing coping mechanisms for dealing with the changes in their lives, including a renewed emphasis on faith and spirituality, and by identifying new avenues for remaining engaged and active in their communities, including support groups and church activities.

The ABTA recognizes the need to better understand the impact of this disease on survivors and their families and continues to explore research opportunities on survivorship and long-term effects of treating brain tumors.

“Funding research into the biologic and psycho-social characteristics of long-term survivors is imperative, and is an area we are collaboratively pursuing,” says ABTA Chief Mission Officer Deneen Hesser, MSHSA, RN, OCN. “Providing personalized information and support throughout the patient-to-survivor transition and thereafter is the essence of the American Brain Tumor Association’s mission.”

Information on the ABTA’s support services for patients and families is available at http://www.abta.org or 800-886-ABTA (2282).

About the American Brain Tumor Association
Founded in 1973, the American Brain Tumor Association was the first and is now the only national nonprofit brain tumor organization providing both support services to brain tumor patients and their families, and funding brain tumor research. For more information, visit http://www.abta.org or call 800-886-ABTA (2282).

Read the full story at http://www.prweb.com/releases/2013/5/prweb10697421.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related medicine news :

1. Clinical news alert from the American Academy of Orthopaedic Surgeons
2. American College of Cardiology cites new USF Simulation Center for Training Excellence
3. Presidential keynote address and new research highlights from the American Society of Pediatric Otolaryngology meeting
4. Young Americans Need to Cut Calorie Intake: Study
5. Hutchinson Center president elected to American Academy of Art and Sciences
6. Can weight loss help African-American breast cancer survivors?
7. Americans Support Medicare Reform, But Not on Their Dime: Poll
8. One-third of adult Americans with arthritis battle anxiety or depression
9. Equal access to care helps close survival gap for young African-American cancer patients
10. Systemic sclerosis complications more severe in African Americans than Caucasians
11. 53 million Americans might have diabetes by 2025, according to a new study in Population Health Management
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/8/2016)... San Francisco, California (PRWEB) , ... December 08, 2016 , ... ... health coaches, has raised an $18M Series B led by Canvas Ventures . ... use the capital to scale its mobile platform to serve more consumers who are ...
(Date:12/8/2016)... , ... December 08, 2016 , ... ... financial planning services from offices headquartered in Hamilton County, is embarking on a ... , LuvFurMutts specializes in finding new homes for orphaned or neglected senior dogs ...
(Date:12/8/2016)... ... December 08, 2016 , ... Peter Zipp Insurance, ... and around the greater Phoenix metropolitan region, is announcing a charity event to ... of the Homeless Youth Connection is to promote community awareness of the ongoing ...
(Date:12/8/2016)... ... December 08, 2016 , ... The Compretta Insurance Agency, ... residential clients in and around the Hancock County area, is announcing the launch of ... Food Pantry. , The Hancock County Food Pantry has worked for more than 30 ...
(Date:12/8/2016)... ... December 08, 2016 , ... ... to families and business owners in and around central Kansas, is joining the ... at-risk youth in the region. , Headquartered in Wichita, Youth Horizons works to ...
Breaking Medicine News(10 mins):
(Date:12/7/2016)... Dec. 7, 2016 A new investigational drug originally ... clinical trials in search of the world,s first treatment to ... of research findings today in the journal Science ... be a watershed moment for millions of people living with ... of Van Andel Research Institute,s Center for ...
(Date:12/7/2016)... -- REPORT OBJECTIVES The report "SPF ... on a market segment, based on geography. Market ... the report. The primary objectives of this report ... through detailed segmentation, 2) market size and forecasts, ... market situation, trends, 3) detailed analysis of current ...
(Date:12/7/2016)... , Dec. 7, 2016  Northwest Biotherapeutics (Nasdaq: ... "Company"), a biotechnology company developing DCVax® personalized immune ... the Nasdaq Staff has not accepted the Company,s ... Rules previously reported, and the Company has notified ... Company,s common stock from listing on Nasdaq.  Upon ...
Breaking Medicine Technology: