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Albany High School Students Unite To Raise Awareness and Funds For World Rare Disease Day 2009
Date:2/18/2009

or Jouberts Syndrome, MD; University of Scranton, PA; Brigham Young University, UT; CureDuchenne, CA. The hope is that this year will become the catalyst for schools, businesses and individuals across the country to join the cause to build a broad national effort for World Rare Disease Day 2010.

About The Project - The Children's Rare Disease Network
The Project - The Children's Rare Disease Network is a non-profit organization that assists in the fight against children's rare disease. The mission and the promise of The Project is to build a collaborative communication environment providing connections between patients, physicians and the scientific community. The Project will aggregate current information and efforts related to rare disease into a seamless portal, enabling all of those affected by rare disease, to easily receive the support and resources they need. The network will also work to create greater public awareness related to children's rare disease and its impact on society. For more information regarding The Project's efforts, to make a donation, or contact one of the team please visit www.theprojectcharity.org.

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Read the full story at http://www.prweb.com/releases/2009/02/prweb2097974.htm.


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