Albany High School Students Unite To Raise Awareness and Funds For World Rare Diseas...(e cognitive impairment and physical disa...),Health

Date:2/18/2009

e cognitive impairment and physical disabilities. Because specific diseases may afflict few individuals, they often don't garner the attention of researchers and pharmaceutical companies. But rare diseases do share many commonalities -- from similar symptoms to quality of life issues surrounding raising a child with a rare disease to financial hardship faced by families.

Red Buckets Spare Change Campaign
The week leading up to World Rare Disease Day 2009, Julian Levine and fellow students at Albany High School will carry red buckets donated by Pastime Hardware in El Cerrito, Calif., to collect spare change from classmates. The spare change collected will be donated to The Project - The Children's Rare Disease Network to help with special programs being developed for the families of children with Rare Disease.

"When I learned that Rare Disease affect 10 times more people than breast cancer I was shocked," said Julian Levine, a freshman at Albany High School and organizer of the Red Bucket spare change collection event. "I didn't understand why Rare Disease hasn't received much attention and I felt I could do something to help. My goal is to create greater public awareness related to children suffering from rare disease, its prevalence, and the hope that they can help make a difference. The change collected will be donated to The Project - The Children's Rare Disease Network to help with special programs being developed for the families of children with Rare Disease.

In addition to the efforts at Albany High School, a number of other organizations and kids across the country have committed to help raise funds or create awareness surrounding World Rare Disease Day 2009 efforts including; Lamar Advertising in PA; Presbyterian Center for Children, WI; Learning Express, Reno, NV; St. John's Episcopal School, CA; St. Mary All Angels, CA; Don Juan Avila School, CA; Smoothie King, CA; Kathleen McTeague Dartez Challenge f
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