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Academies of science call for amendments to impracticable Genetic Diagnostics Act
Date:11/10/2010

is a definite medical benefit in doing so.

Example 3: Data storage

The Act stipulates that as a general rule, doctors must store the results of genetic tests for ten years, after which time the information must be destroyed. This rule applies unless patients request that their information be destroyed sooner or stored for longer, and data must be retained if its destruction would infringe on patient interests worthy of protection. In everyday clinical practice, these regulations are impracticable and inappropriate. It is not always possible to establish within a decade what impact the in contrast to other tests irreversible genetic findings may have at a later date. Furthermore, the realities of clinical practice make it impossible for doctors to reassess each case before the ten-year limit expires and to reach a decision on whether to keep the data or destroy it. Thus, the Act should remove limitations on how long results can be stored.


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Contact: Dr. Kathrin Happe
politikberatung@leopoldina.org
49-345-472-39862
Leopoldina
Source:Eurekalert

Page: 1 2 3

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