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ANA and ISONG Co-Publish Genetics and Ethics in Health Care: New Questions in the Age of Genomic Health

SILVER SPRING, Md., Feb. 5 /PRNewswire-USNewswire/ --, the publishing program of American Nurses Association, in collaboration with the International Society of Nurses in Genetics has just released a book exploring the current ethical challenges associated with advances in genetics technology and genomic health care from a wide cross-section of cultural, racial, religious, and technical perspectives. While these advances are at the cutting edge of understanding the causal factors of health and illness, they also demand that we acknowledge and respect the deeply complex and diverse moral and ethical concerns that can impact the decisions of individual patients and the lives of their families and communities.

The editor, Rita Black Monsen, DSN, MPH, RN, FAAN, has helped bring genetics and genomics into nursing practice and education worldwide. Now she has assembled some three dozen experts and exemplars from numerous disciplines and traditions. Unique to this volume are voices seldom encountered in the literature, voices from communities of diverse religious, racial, and ethnic communities that seldom appear in our science-based discussions of genomic health care. Taken together, these in-depth contributions are grouped as:

Part 1. Genetics, Genomics, and Ethics: Basic Considerations discusses significant documents and organizations governing nursing ethics and genetic/genomic nursing practice, including essential U.S. policy developments. Also discussed are ethical and genetic/genomic principles in the context of nursing and healthcare practice, including informed consent, genetic inheritance, and the adequacy of education preparation.

Part 2. Religious and Cultural Perspectives of Communities and Societies discusses perspectives from sizable representative communities whose religious and cultural allegiances are integral to their experience of family life and making health decisions, including issues of genomic technologies. Included are perspectives from Hindu, Jewish, Christian, and Islamic as well as African American, Hispanic, and Native American communities.

Part 3. Applications of Genetics and Genomics in Health Care discusses selected applications of genetic and genomic technologies with current widely available mutational testing that affect children and those with known risks of cancer, Huntington Disease, cystic fibrosis, with clear implications for other similar causes of morbidity and mortality.

Part 4. Case Studies in Genetics and Ethics: The case studies in Part 4 illustrate how families face specific circumstances that involve genetics, genetic testing, and the care of family members who are affected with a genetic condition: sickle cell and Alzheimer's disease, a prenatal case, and hereditary cancers.

Genetics and Ethics in Nursing was written primarily for practicing nurses and nursing students. However, given the range of its discussion, it can also serve as an indispensable field guide for other health professionals as well as students and scholars in bioethics and the life sciences.

In 2006, ANA collaborated with ISONG in releasing a newly revised Genetics/Genomics Nursing: Scope and Standards of Practice. ISONG is a global nursing specialty organization dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.

Review copies for educators and press copies for media contacts are available upon request by emailing Educators should include name of school, contact information, course/program title and student enrollment in course using the book. Press should include name of publication, organization, and reviewer name and address information including phone and email address.


Author/Editor: Rita Black Monsen DSN, MPH, RN, FAAN

Published: 12/08

Page #: 380 pp.

ISBN-13 978-1-55810-263-7

Price: List $38.95 / ANA Member $30.95

The ANA is the only full-service professional organization representing the interests of the nation's 2.9 million registered nurses through its 53 constituent member nurses associations, its 23 organizational affiliates serving 330,000 members of national nursing specialty organizations, and its workforce advocacy affiliate, the Center for American Nurses. The ANA advances the nursing profession by fostering high standards of nursing practice, promoting the rights of nurses in the workplace, projecting a positive and realistic view of nursing, and by lobbying the Congress and regulatory agencies on health care issues affecting nurses and the public.

SOURCE American Nurses Association
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