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30 Years of Orphan Drug Act, Combined with Science and Advocacy, Reflect Dramatic Progress in a Rare Lung Disease, Pulmonary Hypertension Association Says
Date:5/8/2013

e treating this disease.

The physician-researchers in the vanguard of making PH treatable -- members of PHA’s Scientific Leadership Council -- remain in the field. They will be meeting with other cardiologists and pulmonologists May 19-21 at the American Thoracic Society conference in Philadelphia. The 30 years of the Orphan Drug Act will also be celebrated by the National Organization for Rare Disorders at an event in Washington, D.C., May 14.

PHA can provide information on the history of the Orphan Drug Act, advocacy for rare disease policy and research, interviews with leading physicians and scientists in this field and access to patients who have survived long-term with PH.

Read the full story at http://www.prweb.com/releases/2013/5/prweb10704405.htm.


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