Navigation Links
30 Years of Orphan Drug Act, Combined with Science and Advocacy, Reflect Dramatic Progress in a Rare Lung Disease, Pulmonary Hypertension Association Says
Date:5/8/2013

Silver Spring, MD (PRWEB) May 08, 2013

Pulmonary hypertension (PH), a rare and life-threatening lung disease, has gone from rapidly fatal to treatable with nine drugs developed in just the past 20 years, a phenomenal record for a rare condition. Growth in the understanding and treatment of PH reflects the dramatic progress possible since the passage of the Orphan Drug Act 30 years ago, according to the Pulmonary Hypertension Association (PHA), http://www.PHAssociation.org

Progress in PH compares strongly to that of the other 7,000 rare diseases in this country. Only three other conditions have as many treatments as PH or more. Most, in fact, have one or none at all. Whereas physicians treating PH once delivered terminal diagnoses, they now expect their patients to live with their condition. Many patients survive for years – even 10 to 20 years or more – with proper PH treatment.

The development of treatments has also solved one old problem while creating a new one – we are now better able to treat this disease than we are to diagnose it. PHA is running a new campaign, Sometimes it's PH, to promote early diagnosis mainly through educating and information medical professionals. (http://www.SometimesItsPH.org).

Scientific Backstory

The story behind this progress is a fascinating one which has not been told in the mass media. Its roots stretch back to 1970s when a handful of physician-researchers fascinated by the pulmonary vascular system each worked independently in different cities. In the 80s, this group first worked together on building the original PH registry in the U.S. through the National Heart, Lung and Blood Institute. From there, much collaboration and discovery emerged, gaining momentum, and creating a fast-growing segment of medicin
'/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2

Related medicine news :

1. NIH awards $20 million over 5 years to train next generation of global health researchers
2. Breast Cancer Treatment Side Effects May Last for Years
3. Life expectancy and healthy life years in the European Union, 2008-2010
4. Measles Outbreaks in 2011 Were Worst in 15 Years: CDC
5. 16 years old is peak risk for teens misusing prescription drugs
6. NAMS journal Menopause reflects on the WHI 10 years later
7. After 25 years, World No Tobacco Day is making an impact
8. Elreg Distributors Ltd. Celebrates 32 Years in Business
9. Weight-Loss Surgery Cuts Heart Risk 7 Years Later: Study
10. For Combat Vets, Brain Injury Symptoms Can Last Years
11. New Electronic Cigarette Free Trial Kit Adds More Years to Smokers Life by Making it Easy to Quit Smoking
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:8/23/2014)... (PRWEB) August 23, 2014 GranuFlo ... 2012 GranuFlo and NaturaLyte dialysis concentrate recall continue ... in U.S. District Court, District of Massachusetts, Bernstein ... report issued by the U.S. Judicial Panel on ... 2,028 claims are pending in the proceeding. In ...
(Date:8/23/2014)... 2014 According to the new ... Application and Geography - Regional Trends & Forecast ... Market with an analysis and forecast of value ... of electronic adhesives by applications and geography are ... market data tables and 26 figures spread through ...
(Date:8/23/2014)... PA (PRWEB) August 23, 2014 "When ... sometimes comes into contact with the dirty water inside ... the seat itself," said one of two inventors from ... to germs, we developed this protective device." , They ... unsanitary toilet surfaces, including the water, bowl and seat. ...
(Date:8/23/2014)... 2014 Hundreds of Wright hip ... of individuals who were allegedly harmed by devices ... to move forward in the U.S. District Court, ... According to an Order dated August 19th, the ... would allow the litigation’s first case to go ...
(Date:8/23/2014)... York, NY (PRWEB) August 23, 2014 ... (NYT) reported on a data breach suffered by ... that saw the compromise of 4.5 million records containing ... social security numbers. According to Mandiant, who was engaged ... emanated from an advanced group of cyber attackers ...
Breaking Medicine News(10 mins):Health News:GranuFlo Lawsuits Mount in Federal Litigation, as Filings Surpass 2,000, Bernstein Liebhard LLP Reports 2Health News:GranuFlo Lawsuits Mount in Federal Litigation, as Filings Surpass 2,000, Bernstein Liebhard LLP Reports 3Health News:GranuFlo Lawsuits Mount in Federal Litigation, as Filings Surpass 2,000, Bernstein Liebhard LLP Reports 4Health News:Electronic Adhesives Market Poised to Reach $5.5 Billion by 2019 - New Report by MarketsandMarkets 2Health News:Electronic Adhesives Market Poised to Reach $5.5 Billion by 2019 - New Report by MarketsandMarkets 3Health News:Wright Conserve Hip Lawsuits Move Forward, as Federal Court Issues Order Pertaining to Bellwether Trials, Bernstein Liebhard LLP Reports 2Health News:Wright Conserve Hip Lawsuits Move Forward, as Federal Court Issues Order Pertaining to Bellwether Trials, Bernstein Liebhard LLP Reports 3Health News:Wright Conserve Hip Lawsuits Move Forward, as Federal Court Issues Order Pertaining to Bellwether Trials, Bernstein Liebhard LLP Reports 4Health News:This Time Prominent Hospital Group Falls Prey to Hackers Believed to be Based in China 2Health News:This Time Prominent Hospital Group Falls Prey to Hackers Believed to be Based in China 3Health News:This Time Prominent Hospital Group Falls Prey to Hackers Believed to be Based in China 4
... cells to spread from a primary site, to form ... process in which cell motility and invasion play a ... develops is identification of the molecules, and characterisation of ... mechanisms have been poorly understood. Now, a team of ...
... with diabetes have the weight-loss surgery? , , SUNDAY, Dec. ... bypass surgery extends the lives of obese patients is ... go under the knife and who shouldn,t. , ... patients who traditionally haven,t been candidates for the weight-loss ...
... breast cancer prevention study using exemestane (Aromasin) finds an ... II study details reported today, by Jennifer Eng-Wong, MD, ... Center at the San Antonio Breast Cancer Symposium, examines ... at an increased risk of developing breast cancer based ...
... transcript of President Bush,s weekly radio address to the nation: , ... week, our country received good news in the fight against illegal drugs. ... to decline -- and that we are making good progress in our ... , , Substance abuse is a serious ...
... leading healthcare provider of interim and executive placement and consulting solutions, ... board and CEO services. Formerly vice president, senior executive search, Noland ... for hospitals, home care companies, health systems and national healthcare organizations. ... ...
... retail locations joining national partners in effort to raise $5 ... Dec. 12 National partners from the 17th annual ... Memphis today to celebrate raising more than $2.4 million to ... , , Companies represented at ...
Cached Medicine News:Health News:Gastric Bypass Success Sparks Debate 2Health News:Gastric Bypass Success Sparks Debate 3Health News:Radio Address by President Bush to the Nation 2Health News:Radio Address by President Bush to the Nation 3Health News:Noland Named Vice President, Board & CEO Services for B. E. Smith 2Health News:More Than $2.4 Million Raised by National Halloween Promotion Partners to Help St. Jude Fight Childhood Cancer 2
(Date:8/21/2014)... 21, 2014 The spinal column is one of ... Signals carried to and from the brain through the column ... system. Injury or ailment here can be life altering, and ... of control over their body. Though back injury and disease ... there are more options available to make things better than ...
(Date:8/21/2014)... , Aug. 21, 2014  Decision Resources ...  physicians in Brazil and ... clinical guidelines and commonly prescribe long-acting beta-agonist (LABA)- ... they do so within current severe cost/coverage constraints. ... that are expected to launch in these countries—which ...
(Date:8/21/2014)... , Aug. 21, 2014  Seventy-one percent of Americans believe ... is a serious public health and safety issue in ... a survey released today by Repass & Partners, a ... "Americans understand the severity of the prescription medication abuse ... with this very serious health situation facing our country," ...
Breaking Medicine Technology:Don't Live in Pain: Four Life Improving Benefits of Back Surgery 2Novel Fixed-Dose Combinations for COPD in Brazil and Mexico Will Compete With Well-Established Therapies in an Environment Dominated by Aggressive Cost-Control Mechanisms 2Novel Fixed-Dose Combinations for COPD in Brazil and Mexico Will Compete With Well-Established Therapies in an Environment Dominated by Aggressive Cost-Control Mechanisms 3Consumers Desperate For Measures To Curb Prescription Drug Abuse 2Consumers Desperate For Measures To Curb Prescription Drug Abuse 3
... Reportlinker.com announces that a new market research ... Insulin Patch Pumps ... inhaled insulin market in 2008 has resulted in ... now appears that the patch pump – a ...
... Reportlinker.com announces that a new market ... The Outlook for Pharmaceuticals ... http://www.reportlinker.com/p0203102/The-Outlook-for-Pharmaceuticals-in-Central-Asia.html#utm_source=prnewswire&utm_medium=pr&utm_campaign=NoCategory These reports provide ... most populous countries in the world and ...
Cached Medicine Technology:Insulin Patch Pumps 2The Outlook for Pharmaceuticals in Central Asia 2The Outlook for Pharmaceuticals in Central Asia 3The Outlook for Pharmaceuticals in Central Asia 4
Platelet agitator....
I-125 competitive RIA kit for the detection of Progesterone....
... quantitative determination of progesterone ... Progesterone EIA is ... of competitive binding between ... specimen and progesterone-HRP conjugate ...
ELISA for the detection of Insulin....
Medicine Products: