Navigation Links
30 Years of Orphan Drug Act, Combined with Science and Advocacy, Reflect Dramatic Progress in a Rare Lung Disease, Pulmonary Hypertension Association Says
Date:5/8/2013

Silver Spring, MD (PRWEB) May 08, 2013

Pulmonary hypertension (PH), a rare and life-threatening lung disease, has gone from rapidly fatal to treatable with nine drugs developed in just the past 20 years, a phenomenal record for a rare condition. Growth in the understanding and treatment of PH reflects the dramatic progress possible since the passage of the Orphan Drug Act 30 years ago, according to the Pulmonary Hypertension Association (PHA), http://www.PHAssociation.org

Progress in PH compares strongly to that of the other 7,000 rare diseases in this country. Only three other conditions have as many treatments as PH or more. Most, in fact, have one or none at all. Whereas physicians treating PH once delivered terminal diagnoses, they now expect their patients to live with their condition. Many patients survive for years – even 10 to 20 years or more – with proper PH treatment.

The development of treatments has also solved one old problem while creating a new one – we are now better able to treat this disease than we are to diagnose it. PHA is running a new campaign, Sometimes it's PH, to promote early diagnosis mainly through educating and information medical professionals. (http://www.SometimesItsPH.org).

Scientific Backstory

The story behind this progress is a fascinating one which has not been told in the mass media. Its roots stretch back to 1970s when a handful of physician-researchers fascinated by the pulmonary vascular system each worked independently in different cities. In the 80s, this group first worked together on building the original PH registry in the U.S. through the National Heart, Lung and Blood Institute. From there, much collaboration and discovery emerged, gaining momentum, and creating a fast-growing segment of medicin
'/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2

Related medicine news :

1. NIH awards $20 million over 5 years to train next generation of global health researchers
2. Breast Cancer Treatment Side Effects May Last for Years
3. Life expectancy and healthy life years in the European Union, 2008-2010
4. Measles Outbreaks in 2011 Were Worst in 15 Years: CDC
5. 16 years old is peak risk for teens misusing prescription drugs
6. NAMS journal Menopause reflects on the WHI 10 years later
7. After 25 years, World No Tobacco Day is making an impact
8. Elreg Distributors Ltd. Celebrates 32 Years in Business
9. Weight-Loss Surgery Cuts Heart Risk 7 Years Later: Study
10. For Combat Vets, Brain Injury Symptoms Can Last Years
11. New Electronic Cigarette Free Trial Kit Adds More Years to Smokers Life by Making it Easy to Quit Smoking
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/23/2014)... 23, 2014 Celebrating a decade of ... today announced the awarding of $1,070,000 in grants to ... in recognition of the Foundation’s 1,000th grant. , “The ... our tradition of supporting community-based organizations that are working ... life in the Garden State,” said Robert A. Marino, ...
(Date:7/23/2014)... a growing body of research suggesting a safe ... treating postmenopausal breast cancer, with fewer detrimental side ... anti-hormone therapies. The study will be published in ... Reproductive Biology and Endocrinology . , Breast cancer ... in the United States. Approximately 70% of breast ...
(Date:7/23/2014)... 23, 2014 Global Cardio Care, Inc., ... External Counterpulsation (EECP), is celebrating the 100th birthday ... at the health center. , Weber has been ... receiving ongoing EECP therapy since 1999, he no longer ... CEO of Global Cardio Care, introduced the Sara ...
(Date:7/23/2014)... The voice on the recording was low and ... news he was infected with the human immunodeficiency virus (HIV) that ... next thing you know I was on the floor flat on ... was hopeful when the recording ended less than 10 minutes later. ... . because it is just God setting you up for ...
(Date:7/23/2014)... WEDNESDAY, July 23, 2014 (HealthDay News) -- For patients ... antiretroviral therapy may help control both viruses, a small ... findings to improve treatment strategies for people with the ... suppression with antiretroviral medications plays an important role in ... infection," said study leader Dr. Kenneth Sherman, a professor ...
Breaking Medicine News(10 mins):Health News:The Horizon Foundation for New Jersey Awards More than $1 million in Grants to 20 Non-profit Organizations 2Health News:The Horizon Foundation for New Jersey Awards More than $1 million in Grants to 20 Non-profit Organizations 3Health News:The Horizon Foundation for New Jersey Awards More than $1 million in Grants to 20 Non-profit Organizations 4Health News:The Horizon Foundation for New Jersey Awards More than $1 million in Grants to 20 Non-profit Organizations 5Health News:Hormones after breast cancer: Not fuel for the fire after all? 2Health News:Hormones after breast cancer: Not fuel for the fire after all? 3Health News:Hormones after breast cancer: Not fuel for the fire after all? 4Health News:Hormones after breast cancer: Not fuel for the fire after all? 5Health News:Global Cardio Care Celebrates EECP Patient’s 100th Birthday 2Health News:HIV clinic-based audio project emphasizes the power of patient voices 2Health News:HIV clinic-based audio project emphasizes the power of patient voices 3Health News:HIV Meds May Also Help Control Hepatitis C, Study Finds 2
... , , , , ANAHEIM, Calif., June ... entertainment, public health and justice professionals, and Drug Court graduates gathered ... and call for a Drug Court to be put within reach ... Court Professionals (NADCP) 15th Annual Training Conference. , , ...
... common cancers in China. Although the association between the ... the relation between smoking, alcohol drinking, family history of ... still remains uncertain. So it is important to investigate ... sporadic colorectal cancer. A research team led by ...
... Health Insurer Hires 200th Employee , , Momentum Builds ... Health Care Insurance Crisis , , AVENTURA, Fla., June ... health insurance benefit programs for the consumer market, today announced ... "Cinergy Health is a company with a clear mission -- ...
... ... & Public Relations® (BSAPR) a full-service, integrated strategic marketing services firm, today announced ... ... 2009 -- Blanchard Schaefer Advertising & Public Relations ® (BSAPR) a full-service, ...
... Thursday 11 June 2009: Undertaking a supervised exercise ... and physical function, reduce the need for daily ... depression and anxiety in people with rheumatoid arthritis ... at EULAR 2009, the Annual Congress of the ...
... STARTLING TRUTHS , , PALM COAST, Fla., June 11 ... photos are uploaded daily through digital networks such as Facebook and ... like acne have on the life of teens? Based on first ... social traits than if they had clear skin, according to results ...
Cached Medicine News:Health News:U.S. Drug Czar Addresses 2,500 Drug Court Professionals, Voices Strong Support for Expanding Drug Courts Throughout the Nation 2Health News:U.S. Drug Czar Addresses 2,500 Drug Court Professionals, Voices Strong Support for Expanding Drug Courts Throughout the Nation 3Health News:Cinergy Health Expands Staff in Face of Dramatic Growth 2Health News:Blanchard Schaefer Advertising & Public Relations Wins Healthcare Advertising Awards 2Health News:Blanchard Schaefer Advertising & Public Relations Wins Healthcare Advertising Awards 3Health News:Exercise improves functional and psycological ability and reduces steroid need in rheumatoid arthritis 2Health News:Photos: New Image Survey Reveals 'Perception Is Reality' When It Comes to Teenagers With Acne 2Health News:Photos: New Image Survey Reveals 'Perception Is Reality' When It Comes to Teenagers With Acne 3Health News:Photos: New Image Survey Reveals 'Perception Is Reality' When It Comes to Teenagers With Acne 4Health News:Photos: New Image Survey Reveals 'Perception Is Reality' When It Comes to Teenagers With Acne 5
(Date:7/23/2014)... Pharmavite LLC announced that Timothy "Tim" Toll ... immediately. Toll recently served as Pharmavite,s executive vice president ... private label and sales administration in the ... Toll will expand his responsibilities to include international sales, ... appointment to chief customer officer is part of a ...
(Date:7/23/2014)... 2014 On Tuesday, July 1, 2014, ... in the 116 th Judicial District Court ... RegenLab USA, LLC ("Defendant") for ... through false and misleading actions, fraud, fraud-in-the-inducement, ... through libel, disparagement, defamation, misrepresentation, and violating ...
(Date:7/23/2014)... -- RT Oncology Services Corporation today announced that Craig ... directors. Mr. Mundie is currently senior advisor to the ... projects within the company and on technology strategy and ... officer. Mike Martin , president ... a visionary technology executive. His appointment is part of ...
Breaking Medicine Technology:Craig Mundie Joins RainTree Oncology Board of Directors 2Craig Mundie Joins RainTree Oncology Board of Directors 3
... --,Pharmacyclics, Inc. announced today multiple presentations and ... an oral presentation of Phase 3 SMART ... Radiation,Therapy) trial data. The presentations and publications ... American Society of Clinical Oncology,Annual Meeting (ASCO) ...
... Two New Studies Highlight Potential Benefit of ... /PRNewswire/ -- Stimulant drug abuse,remains an ongoing ... to treat Attention Deficit Hyperactivity Disorder,(ADHD). Data ... Meeting of,the American Psychiatric Association highlighted findings ...
Cached Medicine Technology:Pharmacyclics Announces Presentations and Published Abstracts on,Xcytrin at The 2007 American Society of Clinical Oncology Annual,Meeting 2New Data Suggests Less Abuse-Related Effects For OROS,Methylphenidate 2New Data Suggests Less Abuse-Related Effects For OROS,Methylphenidate 3New Data Suggests Less Abuse-Related Effects For OROS,Methylphenidate 4New Data Suggests Less Abuse-Related Effects For OROS,Methylphenidate 5
West 2 periosteal elevators....
Alexander periosteal elevators....
Sedillot periosteal elevators....
Modified Freer periosteal elevator, #163, slight curve, 21 cm....
Medicine Products: