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'Roadmap to a Cure': The ALS Association Hosts Annual National ALS Advocacy Day and Public Policy Conference in Washington, D.C.
Date:5/5/2009

s partners in the effort to find a treatment and a cure."

Efforts made at last year's conference led to a number of significant victories, including:

  • The enactment of the ALS Registry Act, which establishes the first ever national ALS patient registry at the Centers for Disease Control and Prevention;

  • Continued funding for the ALS Research Program at the Department of Defense, a program designed specifically to advance translational research leading to a treatment; and

  • Historic new regulations that establish ALS as a service connected disease at the Department of Veterans Affairs, providing military veterans with the disease access to full benefits, including monthly disability compensation and health care.

The nearly 1,000 people - including approximately 100 people with ALS - from throughout the country who are expected to attend this year's conference will seek to ensure that Congress continues funding for these vital programs and that military veterans receive the care they need, deserve and have earned.

"Studies continue to show that ALS strikes military veterans at approximately twice the rate as those who have never served in the military," Gibson said. "It's important that members of Congress and the public know that by fighting for people with ALS, they also are fighting for our heroes serving in the military."

In addition to Advocacy Day on the Hill, which takes place on May 12, attendees have the opportunity to participate in a number of other important conference activities, including:


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