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'Miracles For MSA' Proclaims March as Multiple System Atrophy Awareness Month
Date:3/11/2010

Patient support groups and advocates work to generate awareness and fundraising for Multiple System Atrophy (MSA) a rare, incurable brain disease.

Facebook, Worldwide (PRWEB) March 11, 2010 -- There is no Michael J. Fox. Nor a Muhammad Ali or a Lou Gehrig. But more than 1,000 fans—known on Facebook as Miracles For MSA—have proclaimed March as Multiple System Atrophy Awareness Month.

Passionate patients, caregivers, researchers, friends, and family members want everyone to know about this rare, incurable brain disease that combines many symptoms of Parkinson's Disease and ALS, with cerebellar ataxia and autonomic failure. Multiple System Atrophy also known as MSA, affects multiple systems of the body. It's a disease that's hard to diagnose. And it wreaks havoc on not only the patient but all of those who love the patient as well.

"Miracles For MSA," a Facebook page connecting those affected by MSA worldwide, stemmed from a similarly named charity event last March in Nashville, Tenn. It brought together Pittsburgh Steeler's Cornerback Fernando Bryant, a promising genomic research initiative, a Michigan life science startup, and Vanderbilt University Medical Center, to raise money for life-saving MSA research. The idea for MSA Awareness month was sparked by Bryant's former basketball coach, Bob Summers, on the Miracles for MSA Facebook page. Summers' wife suffers from MSA.

"MSA is so rare that many cases are wrongly diagnosed as Parkinson's or other diseases with similar symptoms," said Pam Bower, an active member of the Facebook page, who's mother-in-law was afflicted with MSA. "My hope with the MSA Awareness month is that the worldwide MSA community will feel more united and will be inspired to do more to raise the profile of this disease and to raise funds."

Other organizations have joined the effort to proclaim March a
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Source: PRWeb
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