To help address these issues, The National Heart, Lung and Blood Institute (NHLBI, part of the National Institutes of Health (NIH)) and the U.S. Department of Health and Human Services, recently issued the first-ever clinical guidelines for the diagnosis and treatment of VWD, providing health professionals with evidenced-based recommendations on screening, diagnosis, disease management, and directions for future research.
"Von Willebrand disease can be diagnosed from the patient's history and the results of blood tests," said Peter Kouides, M.D, medical and research director of the Mary M. Gooley Hemophilia Treatment Center in Rochester NY. "While there is no cure for VWD, treatment is available and can help prevent complications. But the disorder must be properly diagnosed."
According to currently available statistics from the CDC, von Willebrand disease affects 1 to 2 percent of Americans. VWD frequently manifests in women as a seemingly gynecological problem, such as heavy or prolonged menstruation. This leads the patient and her doctor to believe the problem is gynecologic. It is, in fact, hematologic, or blood related.
Project Red Flag is NHF's national public awareness campaign created to educate women and their doctors about diagnosing and treating bleeding disorders, and it is supported by an educational grant from CSL Behring.
"Von Willebrand disease is a serious health issue for women," said Val
Bias, chief executive officer of the National Hemophilia Foundation. "We
encourage all women to increase their knowledge of bleeding disorders and
to see their doctor immediately if they suspect they have symptoms."
Know the Five Signs of a Bleeding Disorder
-- Easy bruising of the limbs
-- Frequent or prolonged nosebleeds
-- Heavy menstrual periods
-- Prolonged bleeding after injury, childbirth or surgery
-- Prolonged bleeding during dental work
If you have
|SOURCE National Hemophilia Foundation|
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