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Treatment for Rett Syndrome Moves a Step Closer as Rett Syndrome Research Trust Commits Record $4.2 million in 2012
Date:2/14/2013

sion levels. These funds were awarded via the MECP2 Duplication Syndrome Fund at RSRT through the efforts of the duplication/triplication families.

  •     $65K to Sasha Djukic
Support for continuing work at the Tri-State Rett Syndrome Center in the Bronx, NY with the majority of the funds raised through the annual Reverse Rett NYC event.

  •     $175K to the labs of John Bissonnette at OHSU and Andrew Pieper at UTSW for drug repurposing explorations.

Monica Coenraads, RSRT’s Executive Director, said: “Our approach to funding research is somewhat different from that of more traditional research organizations. We don’t request proposals and wait, hoping for someone to submit an interesting project. Instead, we spur the research agenda by engaging closely with the scientific community each step of the way, so that together we can identify the most promising areas and invest in them quickly. As parents of daughters with Rett Syndrome, we don’t have a moment to lose.”

About the Rett Syndrome Research Trust
The Rett Syndrome Research Trust is the premier organization exclusively devoted to global research on Rett Syndrome and related MECP2 disorders. Our goal is to heal children and adults who will otherwise suffer the effects of these disorders for the rest of their lives. To learn more about the Trust, please visit http://www.ReverseRett.org

Our partners in supporting this work are parents' organizations worldwide including RSRT UK, Rett Syndrome Research & Treatment Foundation (Israel), Stichting Rett Syndrome (Holland), Rett Syndrom Deutschland e.V., Skye Wellesley Foundation (UK) and American organizations, The Kate Foundation for Rett Syndrome Research, Girl Power 2 Cure, Eva Fini Fund at RSRT, Rocky Mountain Rett Association and th
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