Navigation Links
Thought Leaders in Europe and US Address Challenges to Making Rare Diseases a Global Public Health Priority
Date:2/28/2011

PARIS, Feb. 28, 2011 /PRNewswire/ -- CSL Behring announces a special edition of its Key Issues Dialogue series released in conjunction with Rare Disease Day 2011, an international event to raise awareness of rare diseases and their impact on people's lives. The Dialogue spanned two continents and provided a platform for sharing and exploring important information and ideas for patients, caregivers and healthcare providers.

(Logo: http://photos.prnewswire.com/prnh/20100914/PH63692LOGO)

Participants

  • Yann Le Cam, chief executive officer, European Organisation for Rare Diseases (EURORDIS)
  • Peter Saltonstall, president and chief executive officer, National Organization for Rare Diseases (NORD), US
  • Dr. Lennart Hammarstrom, M.D., Ph.D., professor of clinical immunology, Karolinska Institute, Stockholm
  • Dr. Stephen Groft, Pharm.D., director, Office of Rare Diseases Research, National Institutes of Health (NIH), US
  • Peter Turner, president, CSL Behring and chief operating officer, CSL Group
  • Dennis Jackman, senior vice president, public affairs, CSL Behring

    • Creating a more favorable environment One of the main challenges the participants addressed is how to create a more favorable environment for research and treatment of rare diseases. "The first priority is to make rare diseases a long-term priority both for research and public health in America and Europe," Yann Le Cam said. "Then we can create a more favorable environment and work on the specifics of drug development, creating centers of care, providing information and registries, and al
    '/>"/>

    SOURCE CSL Behring
    Copyright©2010 PR Newswire.
    All rights reserved

    0

    GOOD

    Page: 1 2 3 4 5

    Related biology technology :

    1. intendiX - Communication by Thoughts: First Patient-Ready System on the Market
    2. Emergency Nurses Association Announces Corporate Sponsors for Leadership Conference
    3. PharmAthene Strengthens Scientific Leadership and Program Management for Future Growth
    4. Safe and Secure TV Channel Expanding Programming and Revenue Agreements for 2011 with Pentagons Military News Channel and other Security Industry Leaders
    5. Science advisor to the US EPA to speak to industry, academic leaders on sustainability innovations
    6. InterMune Announces Senior Leadership Appointments to Prepare for Launch of Esbriet™ (Pirfenidone) in Europe
    7. A New BioPharma Intelligence Resource Set to Give Industry Leaders the Edge
    8. Biopharma Leaders to Reveal Successful Strategies for China, India at the PharmAsia Summit in San Francisco
    9. iPierian Expands Leadership Team With Experienced Business Development and Intellectual Property Executives
    10. BioStorage Technologies Brings Together Industry Leaders for Global Sample Management Benchmarking Symposium
    11. Medix Uses Globalpark to Glean Insights From Over 20,000 Opinion Leaders
    Post Your Comments:
    *Name:
    *Comment:
    *Email:
    (Date:5/21/2013)... Clear Lake, MN (PRWEB) May 21, 2013 ... all-in-one trade show display solution for sales and marketing teams ... GLM Displays describes the kit as “everything you’ll need ... The Fusion Fabric Display Kit comes with a number of ... an all-around trade booth 20 feet by 20 feet in ...
    (Date:5/20/2013)... , Collaboration with the ... in treatment of mastitis , ... to begin in the second half 2013 ... Phosphagenics Limited (ASX: POH, OTCQX: PPGNY) will collaborate ... Service (ARS) to develop and trial products targeting the ...
    (Date:5/20/2013)... Oven Industries Inc. announces a new laboratory ... controller has many outstanding user-friendly benefits. Contained all in ... wall as a self-contained temperature control system, which has ... device unique, as well as highly convenient for users. ... be used universally, which allows the user to use ...
    (Date:5/20/2013)... , May 20, 2013 Today, at ... San Francisco , James McGough ... Psychiatry at the Semel Institute for Neuroscience and Human ... of Medicine at the University of California Los Angeles ... Child and Adolescent Psychopharmacology and ADHD at UCLA, presented ...
    Breaking Biology Technology:GLM Displays Announces All-in-One Formulate Fusion Fabric Display Kit 2Phosphagenics Signs Research Agreement with the Agricultural Research Service 2New Laboratory Temperature Controller by Oven Industries 2Positive Results Reported for Phase I Clinical Trial at UCLA for the Treatment of ADHD in Children Using External Trigeminal Nerve Stimulation (eTNS) 2Positive Results Reported for Phase I Clinical Trial at UCLA for the Treatment of ADHD in Children Using External Trigeminal Nerve Stimulation (eTNS) 3Positive Results Reported for Phase I Clinical Trial at UCLA for the Treatment of ADHD in Children Using External Trigeminal Nerve Stimulation (eTNS) 4Positive Results Reported for Phase I Clinical Trial at UCLA for the Treatment of ADHD in Children Using External Trigeminal Nerve Stimulation (eTNS) 5
    ... EDMONTON , May 11 ... biotechnology company focused on developing medical device,products for ... that it has,received regulatory concurrence from the United ... lead product, Occlusin(R) 500 Artificial,Embolization Device (OCL 500) ...
    ... Cumberland Pharmaceuticals Inc. ( CPIX) and Phebra Pty ... granted regulatory approval for marketing and sale in Australia . Acetadote, ... the Therapeutic Goods Administration (TGA), the government agency responsible for regulating drugs ... , , ...
    ... N.J. , May 11 Scientists from Zymes LLC, ... the National Research Council of Canada presented ... California on April 28th .  The paper entitled, " ... induced rat model of Parkinson,s disease: The role of neurotrophic factors," ...
    Cached Biology Technology:IMBiotechnologies Receives FDA Clearance to Market Occlusin(R) 500 Biodegradable Microspheres in the U.S. 2IMBiotechnologies Receives FDA Clearance to Market Occlusin(R) 500 Biodegradable Microspheres in the U.S. 3Acetadote(R) Approved in Australia for Treatment of Acetaminophen Poisoning 2Acetadote(R) Approved in Australia for Treatment of Acetaminophen Poisoning 3Acetadote(R) Approved in Australia for Treatment of Acetaminophen Poisoning 4Acetadote(R) Approved in Australia for Treatment of Acetaminophen Poisoning 5Zymes LLC, University of Windsor and National Research Council of Canada Collaborative Research Presented at the 2010 Experimental Biology Meeting in Anaheim, California 2
    (Date:5/20/2013)... antibiotic colistin are also commonly resistant to antimicrobial ... a study in mBio , the online ... Cross-resistance to colistin and host antimicrobials LL-37 and ... attack, could mean that patients with life-threatening multi-drug ... immune response. Colistin is a last-line drug for ...
    (Date:5/20/2013)... effect of physical education (PE) on child weight, but ... the amount of time that elementary schoolchildren spent in ... study represents some of the first evidence of a ... forthcoming in the Journal of Health Economics . ... be viewed at: http://www.sciencedirect.com/science/article/pii/S0167629613000556 , The research ...
    (Date:5/20/2013)... COLUMBUS, Ohio New research suggests that a compound ... "superpower" to escape death. , By altering a ... re-educates cancer cells into normal cells that die as ... by inhibiting a process that would cause them to ... strict programming. This study in cells, led by Ohio ...
    Breaking Biology News(10 mins):Resistance to last-line antibiotic makes bacteria resistant to immune system 2Resistance to last-line antibiotic makes bacteria resistant to immune system 3Gym class reduces probability of obesity, study finds for first time 2The compound in the Mediterranean diet that makes cancer cells 'mortal' 2The compound in the Mediterranean diet that makes cancer cells 'mortal' 3
    ... 26 SVOX, the leading provider of,embedded speech ... Processing Group of Siemens AG, according to SVOX ... IP of Siemens AG developed,over 25 years, including ... 60 patent families. The majority of the Professional,Speech ...
    ... Researchers have reported the first clinical evidence that ... an important milestone for this promising treatment which has ... issue of the journal Human Gene Therapy ... with severe rheumatoid arthritis conducted in Germany and led ...
    ... scientists celebrate 2009 as the bicentennial of Charles Darwin,s ... will gather at the University of Utah Feb. 25-27 ... violence, from war to domestic abuse and homicide. ... we use this knowledge to promote a more peaceful ...
    Cached Biology News:SVOX Acquires Speech Processing Unit of Siemens AG, Expands Into Speech Recognition and Speech Dialog 2Gene therapy demonstrates benefit in patients with rheumatoid arthritis 2Gene therapy demonstrates benefit in patients with rheumatoid arthritis 3The Evolution of Human Aggression: Feb. 25-27 conference 2The Evolution of Human Aggression: Feb. 25-27 conference 3The Evolution of Human Aggression: Feb. 25-27 conference 4
    50 assays. Provides an easy system for rapid separation of cytosol and particulate fractions that are compatiable with downstream studies....
    Eliminate electrical interference from any analog signal, without filtering. Ideal for electrophysiology applications like EKG, EMG, and EEGs. Removes 50/60hz noise and harmonics caused by grounding ...
    ... 400 Spun Columns, 10. *SizeSep 400 Spun ... 400 base pairs in length. - ... and pre-equilibrated in distilled water containing 0.15% Kathon ... ~ 400 base pairs. *Extremely useful ...
    ... GFX Purification Kit, 25 purifications. ... cDNA probesProvides efficient removal of unincorporated ... reactions with superior yields of labeled ... purification of cDNA labeled by either ...
    Biology Products: