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Thought Leaders in Europe and US Address Challenges to Making Rare Diseases a Global Public Health Priority
Date:2/28/2011

PARIS, Feb. 28, 2011 /PRNewswire/ -- CSL Behring announces a special edition of its Key Issues Dialogue series released in conjunction with Rare Disease Day 2011, an international event to raise awareness of rare diseases and their impact on people's lives. The Dialogue spanned two continents and provided a platform for sharing and exploring important information and ideas for patients, caregivers and healthcare providers.

(Logo: http://photos.prnewswire.com/prnh/20100914/PH63692LOGO)

Participants

  • Yann Le Cam, chief executive officer, European Organisation for Rare Diseases (EURORDIS)
  • Peter Saltonstall, president and chief executive officer, National Organization for Rare Diseases (NORD), US
  • Dr. Lennart Hammarstrom, M.D., Ph.D., professor of clinical immunology, Karolinska Institute, Stockholm
  • Dr. Stephen Groft, Pharm.D., director, Office of Rare Diseases Research, National Institutes of Health (NIH), US
  • Peter Turner, president, CSL Behring and chief operating officer, CSL Group
  • Dennis Jackman, senior vice president, public affairs, CSL Behring

  • Creating a more favorable environment One of the main challenges the participants addressed is how to create a more favorable environment for research and treatment of rare diseases. "The first priority is to make rare diseases a long-term priority both for research and public health in America and Europe," Yann Le Cam said. "Then we can create a more favorable environment and work on the specifics of drug development, creating centers of care, providing information and registries, and al
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