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The SDS/MSA Support Group Officially Changes Name to The Multiple System Atrophy Coalition
Date:4/22/2013

r physicians currently caring for MSA patients
  •     Hold our largest planned MSA patient/caregiver conference this coming September in Milwaukee, WI in conjunction with a medical education program for physicians
  • “We have many important activities underway for this year,” stated Judy Biedenharn, Co-President of The MSA Coalition. “Our most important is the launch of our Multiple System Atrophy Research Grant Program, which will be launched soon. We have made great strides in recent years to get to this point, however, to continue funding our programs in the future The MSA Coalition needs to continue to increase the donations it receives. Right now we put 75% of every dollar received directly into our MSA Research Fund. The other 25% goes to funding our support, advocacy and education initiatives with only a small fraction going to administrative expenses. To continue funding research and to increase the money going into research we need more donations. Please contact our Coalition if you want to help with fundraising or to volunteer your time. The Multiple System Atrophy Coalition is here to support our community, fight for awareness, advocate for important issues, and to help researchers to someday find a cure.”

    About Multiple System Atrophy

    Multiple system atrophy (previously known as Shy-Drager Syndrome) is a rare and fatal disorder with less than 15,000 Americans diagnosed and 35,000 undiagnosed at any given time. According to the National Institutes of Health, "
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