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The SDS/MSA Support Group Officially Changes Name to The Multiple System Atrophy Coalition
Date:4/22/2013

vities, awareness and advocacy activities, and a dedicated Multiple System Atrophy Research Fund. We believe our new name, The Multiple System Atrophy Coalition, reflects our mission and our desire to be an inclusive organization to the entire MSA community.”

The MSA Coalition has an aggressive plan in place for 2013. In addition to changing its name, the Coalition is currently involved in or actively working to implement the following activities during this calendar year:

  •     Redesign and launch its website while updating content to reflect the four key areas of Coalition activities – Support, Education, Advocacy and MSA Research Funding
  •     Expand fundraising activities through partnerships with organizations like First Giving
  •     Develop and launch a new Multiple System Atrophy Research Grant program, including fully recruiting a world-class scientific advisory board (SAB) to review research proposals with awards granted by the end of this year
  •     Participate in MSA and rare disease advocacy events such as MSA Awareness Month (March), World MSA Day (October 3), Rare Disease Day (February 28) etc.
  •     Attend scientific sessions to meet and advocate with medical experts treating and/or researching MSA, such as the American Autonomic Society, Movement Disorder Society, and American Academy of Neurology
  •     Support and collaborate in the development of medical education programs fo
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