Navigation Links
The FSH Society Issues Research Grant for Developing New Facioscapulohumeral Dystrophy Muscular Measurement Tool
Date:8/6/2013

rders. By applying this measurement technique to FSHD, clinicians could potentially identify muscle changes in patients before the muscles atrophy and weaken. EIM would also offer a way to document changes in muscles characteristically affected by FSHD which are not captured by traditional strength testing, such as facial muscles.

“This new study is an important step in the ongoing research around treatments and cures for FSHD,” said Daniel Paul Perez, President & CEO of the FSH Society “The grant will enable Dr. Statland and University of Rochester researchers to further develop their FSHD clinical trial tool-kit and expand current research efforts, bringing us closer to finding cost-effective treatments for FSHD.”

Dr. Statland and his team plan to recruit 20 participants with FSHD for four visits over 12 months of follow-up to test the reliability, validity and initial responsiveness to change of EIM in FSHD. They are seeking patients with genetic confirmation that are clinically affected by the disease and can walk. Patients with these qualifications that are interested in participating can contact Colleen Donlin-Smith at 585-275-7680 or Colleen_Donlin-Smith(at)urmc(dot)rochester(dot)edu.

The EIM pilot study will serve as a structural correlate for a FSHD observational study already underway at the University of Rochester Medical Center. Dr. Statland, in collaboration with Rabi Tawil, M.D. and experts at the Fields Center for FSHD and Neuromuscular Research University of Rochester Medical Center, received a prior grant of $55,597 for this study from the FSH Society in January 2013 to evaluate the reliability and concurrent validity of disease-specific patient reported outcome and evaluator administered functional rating scale.

# # #

About the FSH Society
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in
'/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2 3

Related biology technology :

1. Keryx Biopharmaceuticals, Inc. Announces Upcoming Poster Presentations of Zerenex™ (Ferric Citrate) at the Upcoming American Society of Nephrology Kidney Week 2011 Annual Meeting
2. ChemoCentryx Presents Positive Results for Novel CCR2 Inhibitor in Preclinical Models of Diabetic Nephropathy at the 44th Annual Meeting of the American Society of Nephrology
3. A New Mechanism for Tau Protein Pathology in Alzheimers Disease was Presented by Oligomerix, Inc. at the Society for Neuroscience Annual Meeting
4. Elsevier Collaborates with the American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.)
5. Monsanto Declared Worst Company of 2011 by NaturalSociety
6. Stemline Therapeutics, Inc. Announces Two Poster Presentations of SL-401 Efficacy Data Against Lymphoid Cancers at the 53rd Annual Meeting of the American Society of Hematology (ASH)
7. Coronado Biosciences Announces Phase 1 Results of CNDO-109 in AML to be Presented at the American Society of Hematology
8. Experts Launch the Alliance for Fertility Preservation at the International Society for Fertility Preservations 2nd World Congress
9. Sangamo BioSciences Announces Presentation of New Data from ZFP Therapeutic® Program in Hemophilia B at American Society for Hematology Meeting
10. Ambit and Astellas Announce Results From Multiple Quizartinib Presentations at the 53rd Annual Meeting of the American Hematology Society
11. Society of Interventional Radiology Names Marshall Hicks, M.D., FSIR, as 2012-13 President
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/22/2014)... October 22, 2014 Physicians Choice ... cardiovascular pharmacogenetics menu, which enables healthcare providers to ... With PCLS’s evidence-based results, healthcare providers are better ... their therapy, while minimizing risks for adverse drug ... according to the FDA [1] more than 2.2 ...
(Date:10/22/2014)... VANCOUVER , Oct. 22, 2014 /PRNewswire/ - iCo ... ICOTF), today announced next steps for its Oral ... findings from its in vitro work ... therapy.  iCo now plans to complete pre clinical ... an initial Phase 1A clinical trial, utilizing approximately ...
(Date:10/22/2014)... and HONG KONG , Oct. ... disease therapeutics enterprise, announced today that rare disease expert ... as vice president, research. Dr. McKew brings more than ... leadership positions at the National Institutes of Health, Wyeth ... by Wyeth). Dr. McKew will lead aTyr,s efforts to expand ...
(Date:10/20/2014)... 2014 Convey Computer , the ... from Iowa State University won first place in the ... Convey HC-2ex, the team’s solution achieved the highest overall ... the second place finisher. , Experts from all segments ... month long challenge, using a variety of design tools, ...
Breaking Biology Technology:PCLS Announces Expansion of Cardiovascular Pharmacogenetic Testing Menu 2PCLS Announces Expansion of Cardiovascular Pharmacogenetic Testing Menu 3iCo Therapeutics Announces Advancement of Oral Amphotericin B Program 2iCo Therapeutics Announces Advancement of Oral Amphotericin B Program 3aTyr Pharma Appoints John C. McKew, Ph.D., as Vice President, Research 2aTyr Pharma Appoints John C. McKew, Ph.D., as Vice President, Research 3Team from Iowa State Wins 2014 MemoCODE Design Contest Using Convey HC-2ex 2Team from Iowa State Wins 2014 MemoCODE Design Contest Using Convey HC-2ex 3
... 18 /Xinhua-PRNewswire/ -- Today, NovaSecta,Sundia Meditech and ... drug discovery solutions for European pharmaceutical and ... quality scientific,capabilities of Sundia and HD BioSciences ... of European mid-sized pharmaceutical and,biotech companies., ...
... Much of the work in MIT Institute Professor Robert ... of science fiction, but its products are already saving lives ... of Langers specialties is growing the vital tissues of the ... such as the liver and intestinesin a laboratory dish instead ...
... Conn., Feb. 15 VION,PHARMACEUTICALS, INC. (Nasdaq: VION ... February 15, 2008 on its 7.75% Convertible Senior Notes,due ... Notes is $60,million., The Company paid $2,376,666.67 through ... $2,376,345.60 was paid in 5,500,800,shares of Common Stock, based ...
Cached Biology Technology:European Company NovaSecta Joins First Chinese CRO Service Alliance for Drug Discovery Solutions 2European Company NovaSecta Joins First Chinese CRO Service Alliance for Drug Discovery Solutions 3MIT researcher addresses biomedical engineering challenges 2MIT researcher addresses biomedical engineering challenges 3Vion Pharmaceuticals Pays Interest on 7.75% Convertible Senior Notes 2
(Date:10/16/2014)... William and Mary,s Virginia Institute of Marine Science ... Environmental Protection Agency to identify the streams and ... develop tools to help local governments and citizens ... critically on a dataset of tidal-marsh observations first ... with this historical baseline can today,s researchers accurately ...
(Date:10/16/2014)... – Post-menopausal women experienced improvements in vaginal atrophy, ... genital bleeding, after 12 weeks of daily 10 ... germ-based nutritional supplement previously shown to help relieve ... pilot study reported in a poster at the ... , "These data documented improved vaginal epithelium, ...
(Date:10/15/2014)... The German Gauß-Allianz has admitted Johannes Gutenberg University ... the Rhineland-Palatinate science hub continues to maintain a ... computing. , "The acceptance of Johannes Gutenberg ... Gauß-Allianz is a milestone in the national and ... support. The state of Rhineland-Palatinate can be proud ...
Breaking Biology News(10 mins):EPA grant will help localities conserve headwater wetlands 2EPA grant will help localities conserve headwater wetlands 3S-equol supplements associated with improved measures of reproductive health in postmenopausal women 2Johannes Gutenberg University Mainz joins Germany's Gauss-Allianz as a full member 2Johannes Gutenberg University Mainz joins Germany's Gauss-Allianz as a full member 3
... the United States is in danger of coming to ... the requirement whether existing or anticipated to ... gas. But an MIT analysis suggests an intermediate step ... to fend off growing electricity shortages using our most-abundant, ...
... "chip" or array that can quickly detect disorders such as ... an effective tool in prenatal diagnosis in a series of ... a report that appears in the current issue of the ... team led by Dr. Arthur Beaudet and Dr. Sau Wai ...
... a relationship between two proteins in the brain that has ... led to speculation that existing drugs used to curb nicotine ... alleviate the symptoms of autism. The discovery identified a ... which is located in brain cells and assists in connecting ...
Cached Biology News:MIT: A quicker, easier way to make coal cleaner 2MIT: A quicker, easier way to make coal cleaner 3Microarray analysis improves prenatal diagnosis 2Microarray analysis improves prenatal diagnosis 3Researchers find link between nicotine addiction and autism 2Researchers find link between nicotine addiction and autism 3
... The Infinite 200 series of microplate ... or absorbance detection in an affordable, easy-to-use ... science applications. The unique modular design and ... researchers with a choice of a monochromator ...
... ,High Quality, Functionally-Validated, Ion Channel Cell Lines ... having a critical role in nerve and ... function in pain, CNS and the heart. ... investigated in therapeutic areas, such as neuropathic ...
Mouse monoclonal antibody raised against a partial recombinant ARHGEF11. NCBI Entrez Gene ID = ARHGEF11...
... Channel Cell Lines ,High Quality, Functionally-Validated, Ion ... well known for having a critical role ... have a key function in pain, CNS ... channels have been investigated in therapeutic areas, ...
Biology Products: