"For many patients and their families, the journey to a diagnosis and subsequent treatment can be a long, complicated process," said Sylvie Gregoire, President of Shire Human Genetic Therapies (HGT). "Shire is committed to enabling people with life-altering conditions to lead better lives - and for us, this includes improving access to information as well as providing much-needed treatment for rare diseases."
Shire's Global Rare Disease Day Initiatives include: - Extending BraveCommunity.com (http://www.bravecommunity.com), its online resource center that aims to connect patients with each other and to provide important information about rare diseases. - Supporting the Global Genes Project (http://www.globalgenesproject.org) , a grassroots effort to use denim jeans to raise global awareness of rare genetic disorders. - Supporting its non-profit partners as they visit Capitol Hill to advocate for patients with rare diseases in Washington, D.C., - Co-sponsoring with FEDER (Spanish Federation for Rare Diseases) the Annual Running Race for Rare Disease Day in Madrid, Spain. - Organizing a special walk on February 28th in Brazil to raise awareness of rare diseases in the country. It is expected that more than 20 patient organizations and their members will participate. For the full press release please visit '/>"/>
|SOURCE Shire Pharmaceutical|
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