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Shire Launches Report that Quantifies the Health, Psycho-social and Economic Impact of Rare Diseases
Date:4/9/2013

the Genetic Alliance UK. 

The Rare Disease Impact Report Advisory Board

An external advisory board anchored by thought leaders in the medical, advocacy, health policy and health economics fields lent their expertise to the development of the Impact Report. Advisory board members include Nicole Boice , Founder and CEO, Global Genes | RARE Project; Dr. Priya S. Kishnani , Division Chief, Medical Genetics, Duke University Medical Center; Tomas Philipson , Daniel Levin Professor of Public Policy Studies, The University of Chicago; Alastair Kent , Director, Genetic Alliance UK; Dr. Christian J. Hendriksz , Clinical Lead, Adult Inherited Metabolic Disorders, Salford Royal NHS Foundation Trust; and Mike Drummond , Professor of Health Economics, University of York.

Please visit www.rarediseaseimpact.com to get more information and view the full Impact Report.

For further information please contact:

Media

Jessica Cotrone (Human Genetic Therapies)

jcotrone@shire.com

+1 781 482 9538

NOTES TO EDITORS

Shire enables people with life-altering conditions to lead better lives.

Through our deep understanding of patients' needs, we develop and provide healthcare in the areas of:

  • Behavioral Health and Gastro Intestinal conditions
  • Rare Diseases
  • Regenerative Medicine

as well as other symptomatic conditions treated by specialist physicians.

We aspire to imagine and lead the future of healthcare, creating value for patients, physicians, pol
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SOURCE Shire plc
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