Rare diseases are conditions that affect a small portion of the population but are often chronic, progressive, degenerative, Iife-threatening and disabling.2 While individual rare diseases are uncommon and disparate, collectively, there are approximately 7,000 different types of rare diseases and disorders affecting an estimated 350 million people worldwide.3 Despite the progress that has been made over the past few decades to help improve the quality of life for patients managing these complex diseases, there are still significant gaps in care and barriers facing the community at large.
"The findings from our Rare Disease Impact Report are sobering," says Flemming Ornskov, MD, Chief Executive Designate, Shire. "As a leader in rare diseases, Shire hopes that this report will help drive forward a collaborative effort with the patient and medical communities to address the unmet needs identified."
Rare Disease Impact Report Findings1
Across the groups surveyed, findings center around three overarching challenges:
There is a lack of resources and information to address these less common illnesses
|SOURCE Shire plc|
Copyright©2012 PR Newswire.
All rights reserved