Navigation Links
Shire Launches Report that Quantifies the Health, Psycho-social and Economic Impact of Rare Diseases
Date:4/9/2013

LEXINGTON, Mass., April 9, 2013 /PRNewswire/ -- Shire plc (LSE: SHP, NASDAQ: SHPG) today launched a Rare Disease Impact Report, which uncovers the health, psycho-social, and economic impact of rare diseases on patient and medical communities in the United States (US) and United Kingdom (UK). The report, developed in collaboration with an external advisory board of thought leaders in the medical, advocacy, health policy and health economics fields, will be distributed at the World Orphan Drug Congress in Washington, DC (April 9-11) and is available for immediate download at www.rarediseaseimpact.com.

According to more than 1,000 survey responses from a multi-stakeholder audience sample, the Rare Disease Impact Report reveals1:

  • It takes, on average, more than seven years in the US and five years in the UK for a patient with a rare disease to receive a proper diagnosis
  • On the journey to diagnosis, a patient typically visits up to eight physicians (four primary care and four specialists) and receives two to three misdiagnoses
  • Physicians (both primary care and specialists) often don't have the time, resources and information to properly diagnose/manage patients with rare diseases, compared to more common diseases
  • Due to the uncertainty, the lack of available information, resources, and economic strains, rare diseases take a major emotional toll on patients and their caregivers

"This Impact Report brings to light the specific barriers to quality care that exist for patients with rare diseases; particularly the challenges in getting an accurate diagnosis, adequate information and ongoing care," says

SOURCE Shire plc
Copyright©2012 PR Newswire.
All rights reserved

Page: 1 2 3 4 5 6 7

Related biology technology :

1. Shire to Acquire SARcode Bioscience, Expands Presence in Ophthalmology
2. Shire Regenerative Medicine Initiates Phase 3 Study of ABH001 for Patients with Epidermolysis Bullosa
3. Shire Reaches Agreement in Principle With U.S. Government
4. Shire and Boston Childrens Hospital Enter Into Broad Research Collaboration
5. Dr. Jeff Jonas Appointed President of Shire Regenerative Medicine Business and Joins Shire Leadership Team
6. Shire Changes its NASDAQ Ticker Symbol to SHPG
7. Berkshire Corporation Offers Live Chat For Americas Website and Shopping Cart
8. Shire Facebook Page Increases Awareness of Hereditary Angioedema (HAE) in Support of First HAE Awareness Day May 16th
9. Shire plc: First Quarter 2012 Results Date Notification - April 26, 2012
10. Heptares Grants Shire an Exclusive Worldwide Licence to Develop and Commercialise Novel Drug Candidate for CNS Disorders
11. Shire to Acquire FerroKin BioSciences, Inc., and its Phase 2 Iron Chelator Treatment
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/1/2014)... (PRWEB) October 01, 2014 What: ... software solutions driven by Semantic Web technology, today announced ... in Washington, D.C. , Smart Data solutions provide ... users to rapidly discover, understand, analyze and manage diverse ... Cambridge Semantics, will present on building a “life sciences ...
(Date:10/1/2014)... , Oct. 1, 2014  Spherix Incorporated ... the fostering and monetization of intellectual property, announced ... against VTech and Uniden in the U.S. District ... Texas has been rescheduled for November ... October 2, 2014.  The Court Order setting the ...
(Date:10/1/2014)... CA (PRWEB) September 30, 2014 ... user-friendly, cost-effective tools to address sales, training and ... has developed innovative mobile applications to turn ... outlining the agency’s latest customized mobile app creations, ... http://www.studiopmg.com/work . , In partnership with Toyota, StudioPMG ...
(Date:10/1/2014)... The U.S. Department of Labor has awarded a ... part of the Trade Adjustment Assistance Community College and ... the Department of Labor and Department of Education. , ... Perez and Secretary of Education Arne Duncan announced the ... nearly 270 colleges across the country. , The ...
Breaking Biology Technology:Cambridge Semantics to Present ‘A Useful Approach to Big Data’ at 2014 Big Data Leaders Forum 2Markman Hearing Date for VTech and Uniden Litigation Now Set for November 10, 2014 2Digital Agency Studio PMG Launches New Case Studies on Website 2U.S. Dept. of Labor Awards SIUE Nearly $10-Million Grant 2U.S. Dept. of Labor Awards SIUE Nearly $10-Million Grant 3U.S. Dept. of Labor Awards SIUE Nearly $10-Million Grant 4
... 1, 2011 Elsevier, a world-leading provider ... today announced the availability of Elsevier Urban & ... the life and health sciences, on SciVerse ScienceDirect ... under the renowned German imprint Urban & Fischer, contain ...
... researchers at the University of Toronto have developed the ... This result enables a flexible form factor, not to ... which currently relies on rigid glass. The ... Nature Photonics . OLEDs provide high-contrast and ...
... Moore,s Law, hardly a law but undeniably a persistent trend, ... transistors that fit on a chip roughly doubles. It,s why ... players to movie cameras, from tablets to supercomputers grow ... expensive. Whether the trend can continue until it runs up ...
Cached Biology Technology:Elsevier Announces Availability of Urban & Fischer Journal Archives on SciVerse ScienceDirect 2University of Toronto researchers create world's most efficient flexible OLED on plastic 2A SHARP new microscope for the next generation of biochips 2A SHARP new microscope for the next generation of biochips 3A SHARP new microscope for the next generation of biochips 4
(Date:9/30/2014)... have in common? Unlike most eukaryotic multicellular organisms ... these organisms are all polyploid, meaning they have three ... 3 and 4 sets of chromosomes, respectively, and strawberries ... fact most plant species are polyploid. Polyploidy, or genome ... only recently, with the development of molecular tools, has ...
(Date:9/30/2014)... Ecker, a Salk professor and Howard Hughes Medical ... have been named recipients in the 2014 round ... (NIH) through the BRAIN (Brain Research through Advancing ... The grant, announced September 30, provides more than ... over three years. , The BRAIN Initiative, launched ...
(Date:9/30/2014)... of Medicine reports positive results of a phase ... subset of lung cancer marked by rearrangement of the ... with advanced non-small cell lung cancer testing positive for ... with 3 complete responses and 33 partial responses. Median ... disease to resume its growth after being slowed by ...
Breaking Biology News(10 mins):Gene doubling shapes the world: Instant speciation, biodiversity, and the root of our existence 2Gene doubling shapes the world: Instant speciation, biodiversity, and the root of our existence 3Gene doubling shapes the world: Instant speciation, biodiversity, and the root of our existence 4Salk scientists receive $3 million for BRAIN Initiative grant 2NEJM: Crizotinib effective in Phase 1 trial against ROS1 lung cancer 2
... pollution is costing each person in Europe around 130 - ... Nitrogen Assessment (ENA) is launched at a conference today in ... from 21 countries and 89 organizations, estimates that the annual ... - 280 billion (70 -320 billion), more than double the ...
... COLUMBUS, Ohio Stress not only sends the human immune ... the trillions of bacteria that work and thrive inside our ... important because those bacteria play a significant role in triggering ... prepared to quickly spring into action in the face of ...
... DETROIT For nearly two decades following the 1991 Gulf War, ... conflict: an unexplainable cluster of symptoms including but not limited ... 2008 that a scientific panel from the U.S. Department of ... served in the Gulf War were suffering from combinations of ...
Cached Biology News:Excessive nitrogen harms the economy and environment -- first Europe-wide assessment published 2Stress wrecks intestinal bacteria, could keep immune system on idle 2WSU receives DOD grant to determine common genetic link among Gulf War Illness patients 2
Goat polyclonal to JIK ( Abpromise for all tested applications). Antigen: Synthetic peptide: HKKDHVFIRDEAGHGD, corresponding to amino acids 396-411 of Human JIK. Entrez Gene ID: 51347 Swi...
Mouse monoclonal [SPM325] to Xanthine Oxidase, prediluted ( Abpromise for all tested applications). Antigen: C terminal 358 amino acid fragment of human xanthine oxidase. Entrez Gene ID: 749...
Rab1A...
Drugs and NO-drug Rat Anti-conjugated Acetyl Salicylic Acid Polyclonal Antibody...
Biology Products: