Navigation Links
National Multiple System Atrophy Letter Writing Day
Date:3/28/2013

Advocates (RDLA) website. The RDLA has established an Action Alert portal specifically for the multiple system atrophy community. The portal makes it easy for constituents to identify their members of Congress and to compose an effective letter. Really, all we need is for as many people from the MSA community as possible to log on and tell their story. The rest is already done.”

The Multiple System Atrophy Letter campaign is important for three key reasons:

  •     It is devastating for those with MSA to have the NIH lose its rare disease research funding. Because MSA is so rare, government money for research is critical. No big celebrities are known to have MSA, so it remains an obscure disease dependent on grass roots funding from it own patient base. Unfortunately, MSA can have a devastating financial impact on families making it difficult to donate large sums of money.
  •     Approval of orphan drugs by the FDA remains a slow and uncertain process, which is a true disincentive for pharmaceutical/biotech investors and companies to back orphan drug research. As MSA is one of more than 6,500 rare diseases without a cure, seeing a clear and faster path for orphan drug approvals by the FDA is critical to millions of Americans. As such, it is important for Congress to ensure that the FDA efficiently implement orphan drug legislation passed last year as part of FDA Safety and Innovation act.
  •     Members of Congress should join the rare disease caucus to demonstrate support of so many of their constituents with rare diseases and recognize via resolutions important dates for the MSA community, March as Multipl
    '/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2 3 4

Related biology technology :

1. US Radiopharmaceuticals (USR) Awards Contract to Von Gahlen International for New Technetium-99m Generator Production Line Using Low Enriched Uranium Molybdenum-99
2. National Brain Tumor Society Announces Launch of Defeat GBM Research Collaborative
3. Atlantica Group LLC to Support International "Soft-Landing" Efforts of Incubators and Accelerators
4. TaxOps Announces Partner Appointment to Prominent International Position with Fortune 100 Company
5. SRI International Licenses Bed Bug Detection Technology to Redcoat, a Virginia-Based Start-Up Company
6. Alliance to Feed the Future Congratulates Our Farmers, Supports Education for Future Generations on National Agriculture Day
7. SOTIO a.s. Appoints Chiltern International
8. American Farmer Recognizes and Celebrates National Agriculture Day
9. Regeneron Pharmaceuticals’ Industrial Operations & Product Supply Site Receives International Recognition for Operational Excellence
10. Pi Day is coming March 14! National Pi Day Celebrates Education and its Importance in All Our Lives
11. La Société Internationale dUrologie lanza la SIU Academy, un nuevo recurso para urólogos
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/15/2014)... (PRWEB) January 15, 2014 This webinar ... nonclinical and clinical safety assessment in biosimilars. , Regulatory ... for biosimilar drug development, however the complex nature of ... quality, safety and efficacy extremely challenging. Based on the ...
(Date:1/15/2014)... More than 5 million Americans are currently living ... will die with Alzheimer’s or another dementia, according to ... many Americans into looking for ways to improve their ... cognitive disorders. Jonathan Weisman, president of Biohack Pure, is ...
(Date:1/15/2014)... Rochester, NY (PRWEB) January 15, 2014 The ... cause a major disease. One of these latent viruses is ... is rheumatoid arthritis (RA). Rheumatoid arthritis (RA) is a chronic ... the theory, a study found that RA patients have high ...
(Date:1/15/2014)... Scottsdale, Arizona (PRWEB) January 15, 2014 ... growth for Scottsdale’s Brain State Technologies®. They saw continued ... University Medical Center who were awarded a $1 million ... papers published in “Brain and Behavior” a peer reviewed ...
Breaking Biology Technology:Xtalks Life Sciences Webinar Examines Safety Assessment of Biosimilars 2Biohack Pure Offers 5 Tips for Increasing Memory in 2014 2Study: Rheumatoid Arthritis (RA) Patients Have EBV; The CBCD Says this is Consistent with Microcompetition 2Study: Rheumatoid Arthritis (RA) Patients Have EBV; The CBCD Says this is Consistent with Microcompetition 3Dynamic Innovative Technology Showcased at Scottsdale Company’s Open House 2Dynamic Innovative Technology Showcased at Scottsdale Company’s Open House 3
... Madison, Wis. - Stratatech Corp. has received ... Institute on Aging , a division of the National ... gene therapy products for the use in the treatment of ... stasis and pressure ulcers. , ,It is estimated that in ...
... Brookfield, Wis.-based Fiserv, Inc. and CUNA ... delivery and presentation of CUNA Mutual's payment ... with the technology solutions offered by Fiserv ... CUNA Mutual's payment protection products, which include credit life, ...
... Wis. -- We take it for granted the lights ... and ice storms can temporarily bring down power lines and ... of us believe affordable power will always be there - ... ,If only it was as easy as flipping a switch. ...
Cached Biology Technology:Keeping Wisconsin supplied with energy won't get any easier 2Keeping Wisconsin supplied with energy won't get any easier 3
(Date:4/17/2014)... NY, April 17, 2014The development of stem cell therapies ... ability to characterize stem cell populations based on cell ... discovered a new marker that is highly expressed in ... cord blood, which they describe in an article in ... Mary Ann Liebert, Inc., publishers. The article is available ...
(Date:4/17/2014)... births, Down syndrome - or trisomy 21 - is ... results from a chromosomal abnormality where cells of affected ... of the human genome). A study conducted by Stylianos ... Medicine and Development at the University of Geneva (UNIGE) ... light on how the extra chromosome 21 upsets the ...
(Date:4/17/2014)... White House honored Clemson professor Rajendra Singh Thursday ... to promote and expand solar deployment in the ... D. Houser Banks Professor of Electrical and Computer ... Nanoelectronics, is considered a local hero leading the ... economic opportunity in solar power and driving policy ...
Breaking Biology News(10 mins):Trisomy 21: How an extra little chromosome throws the entire genome off balance 2Trisomy 21: How an extra little chromosome throws the entire genome off balance 3White House honors Clemson professor as 'Champion of Change' for solar deployment 2
... orchids are found in habitats where light may be ... surprising that many achlorophyllous (lacking chlorophyll), as well as ... supply them with carbohydrates in order to grow. However, ... and range in their photosynthetic capabilities. For those ...
... 07/07/11, Clearwater Beach, FL. Research to be presented ... Study of Ingestive Behavior (SSIB), the foremost society for research ... ghrelin, a naturally occurring gut hormone, increases our willingness to ... for non-food items. Have you ever wondered about why ...
... developing limbs and digits were present in primitive fish ... to land, researchers have discovered. Genetic switches control ... particular switch taken from fish DNA is placed into ... developing limb region of embryos, University of Chicago researchers ...
Cached Biology News:Orchids and fungi: An unexpected case of symbiosis 2Orchids and fungi: An unexpected case of symbiosis 3Orchids and fungi: An unexpected case of symbiosis 4Genetic switch for limbs and digits found in ancient fish 2Genetic switch for limbs and digits found in ancient fish 3
Rabbit polyclonal to Oct2, prediluted ( Abpromise for all tested applications). entrezGeneID: 5452 SwissProtID: P09086...
Oct 2 Immunogen: Full length human protein. Storage: -20 C, Avoid Freeze/Thaw Cycles...
...
Phosphotyrosine IgG mouse monoclonal antibody: Alkaline Phosphatase conjugate...
Biology Products: