CAMBRIDGE, Mass., March 1, 2011 /PRNewswire-USNewswire/ -- The Muscular Dystrophy Association (MDA) announced today that it has extended its research partnership with the ALS Therapy Development Institute (ALS TDI) through its flagship ALS fundraising initiative, Augie's Quest. The one-year renewal calls for an additional $2 million grant to ALS TDI via Augie's Quest, which is lead by Chief Inspiration Officer Augie Nieto, a well known fitness pioneer diagnosed in 2005 with amyotrophic lateral sclerosis (ALS, Lou Gehrig's disease). Since receiving his diagnosis, Nieto has partnered with the MDA, the world's largest non-governmental funder of ALS research, to launch Augie's Quest which has raised more than $22 million for MDA-sponsored ALS research since 2007.
"Raising money for ALS research has been one of the greatest challenges I've ever taken on. It is great not only in the difficulty of getting people to give to a disease that is often overlooked by the general public but also in the sense that taking on this difficult task has been incredibly rewarding for me and my family. We hope that Augie's Quest and the work that we make possible at ALS TDI inspires people living with ALS today and their families to join us in our quest to eradicate this horrible disease," said Augie Nieto, who in addition to his busy schedule as chief inspiration officer at Augie's Quest serves as the chairman of the board at ALS TDI. Augie and his wife, Lynne, also serve as national co-chairs of MDA's ALS Division.
During the past four years, MDA's Augie's Quest and ALS TDI have raised more than $40 million to fund a uniquely comprehensive drug discovery and development program. The effort led to the first ever statistical characterization of survival and noise variable of a leading model of neurodegeneration, the SOD1 mouse. The outcome from that project has
|SOURCE ALS Therapy Development Foundation|
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