Navigation Links
MDA Launches Clinical Network to Speed Myotonic Dystrophy Research
Date:1/23/2013

TUCSON, Ariz. (PRWEB) January 23, 2013

The Muscular Dystrophy Association (MDA) has launched a clinical research network that will provide an infrastructure for trials of new treatments for myotonic muscular dystrophy (MMD, also known as DM). The rapid pace of research in this disease was the impetus behind the development of the network.

Each center in the new network has a particular interest and expertise in MMD, and the centers are distributed across the United States to maximize opportunities for participation in studies. Neurologist Charles Thornton at the University of Rochester Medical Center is the overall principal investigator for the network.

There are five university-based centers with expertise in this disorder that make up the network. Their first task will be to determine the usual progression of myotonic dystrophy and the best ways to measure the response of the disease to experimental treatments now in the developmental pipeline.

The five centers are:

Stanford University School of Medicine, Stanford, Calif. | Director: John Day, M.D., Ph.D.

University of Florida College of Medicine, Gainesville, Fla. | Director: Tetsuo Ashizawa, M.D.

University of Kansas Medical Center Research Institute, Kansas City, Kan. | Director: Richard Barohn, M.D.

University of Rochester Medical Center, Rochester, N.Y. | Director: Charles Thornton, M.D.

Ohio State University Medical Center, Columbus, Ohio | Director: John Kissel, M.D.

Network a response to scientific progress

"Recent years have seen rapid progress in the development of molecularly targeted therapy for myotonic dystrophy," said Jane Larkindale, MDA's director of translational research. "Basic research has shown that this disorder involves a disease mechanism known as 'RNA toxicity,' and translational research has shown that this mechanism is unusually responsive to therapeutic intervention. Based on the current pace of therapeutic development, it is reasonable to expect that new therapies will be advanced into clinical trials in the near future, and the new network will ensure that we're prepared for that."

About myotonic muscular dystrophy

Myotonic muscular dystrophy (MMD) is a common form of muscular dystrophy that weakens skeletal muscles and also can affect many other organs in the body, including the heart, eyes, brain and gastrointestinal tract. Caused by an abnormal expansion of DNA on either chromosome 19 or chromosome 3, the disease also is known as "dystrophia myotonica," or "DM."

For more on MMD and current research, see:

About MDA
MDA is the nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

In addition to funding some 300 research projects worldwide, MDA maintains a national network of 200 medical clinics; facilitates hundreds of support groups for families affected by neuromuscular diseases; and provides local summer camp opportunities for thousands of youngsters living with progressive muscle diseases.

For more information, visit mda.org and follow MDA on Facebook (facebook.com/MDAnational) and Twitter (@MDAnews).

  • MDA-

Read the full story at http://www.prweb.com/releases/2013/1/prweb10351245.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related biology technology :

1. DuPont Pioneer Launches Next Generation T Series Soybeans
2. MedZilla.com Launches New Site Design for 2013, Slick New Interface Impresses
3. New EMR Comparison Website Launches Crowdsourcing Electronic Medical Record Software Reviews and Comparisons
4. ActiGraph Launches ActiLife Mobile App
5. Rockingham County Economic Development Launches New Website to Market Research and Tech Park
6. Scout Girl, LLC Launches Website Featuring Vermicomposting Supplies
7. Wysebridge Launches Patent Bar Exam Study Review
8. Junior Varsity Naturals launches sweepstakes with Sweepstakes Ninja
9. UroToday Launches New Prostate Cancer Focused Content Including Immunotherapy for Metastatic Castration-resistant Patients
10. Graphic Design Company, Project6 Design, Launches New Brand And Responsive Website For Innovative Biotech Company PaxVax
11. Bayer CropScience Launches Third Annual Young Farmer Sustainability Award Program
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:11/30/2016)... CLEVELAND , Nov. 30, 2016  GenomOncology today announced ... Vice President of Medical Affairs.  Dr. Coleman ... enhancing the company,s proprietary knowledge-enabled platform. The GenomOncology software suite ... of genetic sequencing data and clinical decision support, from quality ... , ...
(Date:11/30/2016)... 2016  The Allen Institute for Cell Science ... publicly available collection of gene edited, fluorescently tagged ... cellular structures with unprecedented clarity. Distributed through the ... are a crucial first step toward visualizing the ... makes human cells healthy and what goes wrong ...
(Date:11/30/2016)... 2016   Merck , ein führendes ... einer Reihe von Vereinbarungen mit Evotec AG ... Screeningleistungen für Mercks Palette genetischer Reagenzien wie ... diese Bibliotheken in Kombination mit Evotecs Expertise ... zur Ermittlung und Erforschung neuer Arzneimitteltargets.    ...
(Date:11/30/2016)... ... November 30, 2016 , ... Energetiq Technology, a world leader ... generation, ultra-bright, Laser-Driven Light Source, the EQ-77, at the MRS Fall Exhibit 2016. ... offers higher radiance and irradiance from a truly broadband white light source. The ...
Breaking Biology Technology:
(Date:6/22/2016)... , June 22, 2016  The American College of ... Trade Show Executive Magazine as one of the fastest-growing ... May 25-27 at the Bellagio in Las Vegas ... the highest percentage of growth in each of the following ... exhibiting companies and number of attendees. The 2015 ACMG Annual ...
(Date:6/22/2016)... On Monday, the Department of Homeland Security ... solutions for the Biometric Exit Program. The Request for ... (CBP), explains that CBP intends to add biometrics to ... United States , in order to deter visa ... Logo - http://photos.prnewswire.com/prnh/20160622/382209LOGO ...
(Date:6/20/2016)... -- Securus Technologies, a leading provider of civil ... investigation, corrections and monitoring announced that after exhaustive ... the final acceptance by all three (3) Department ... (MAS) installed. Furthermore, Securus will have contracts for ... October, 2016. MAS distinguishes between legitimate wireless device ...
Breaking Biology News(10 mins):