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International Rare Disease Day
Date:2/24/2010

er for care is inadequate, research is limited and very few cures exist.

This year's theme focuses on the importance of rare disease research. Research represents hope for the millions of rare disease patients without cure today. In the last decade, scientific and medical progress has opened up new opportunities in the field of rare disease research; rare diseases have in turn made major contributions to research and treatment discoveries for more frequent diseases.

Rare Disease Day 2010 highlights the importance of collaboration between patients and researchers. A survey recently conducted by EURORDIS amongst 300 patient organisations representing over a million individual patients in 29 countries - shows that patients are important catalysers of research.

The results of the survey will be presented at a European Workshop organised by EURORDIS, on March 1ST, 2010, in Brussels. The event, co-organised with E-RARE (http://www.e-rare.eu) in partnership with the European Commission, Orphanet (

SOURCE EURORDIS European Organisation for Rare Diseases
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