Navigation Links
International Rare Disease Day
Date:2/24/2010

For this annual event hundreds of patient groups and their partners organise activities to raise awareness on rare diseases and the 30 million people affected by them in Europe.

Rare Disease Day was launched and is coordinated by the European Organisation for Rare Diseases - EURORDIS (http://www.eurordis.org), a federation representing more than 400 patient organisations in 42 countries. The campaign involves rare disease national alliances and patient groups in 40 countries, in the EU as well as in the USA, Canada, Argentina, Australia, New Zealand, Japan, China and Taiwan, amongst others.

The European Union considers a disease as rare when it affects less than 1 in 2,000 citizens. 80% have a genetic origin and the majority affects children. Most rare diseases are serious, chronic and life-threatening. Due to their low prevalence, medical experts are also rare, knowledge is scarce, off
'/>"/>

SOURCE EURORDIS European Organisation for Rare Diseases
Copyright©2010 PR Newswire.
All rights reserved

Page: 1 2 3 4 5 6 7

Related biology technology :

1. YM BioSciences presents CYT387 and CYT997 data at international cancer conference
2. Orameds Chief Scientific Officer, Miriam Kidron, Ph.D., Chosen to Lecture at the Third International Conference on Advanced Technologies and Treatments for Diabetes in Basel, Switzerland
3. EUCODIS Bioscience Receives EUR 2 Million Cash Injection to Enlarge Product Portfolio and Develop International Markets
4. BioSpec Global Solutions Inc, takes delivery of new TOGs 3000 Home edition for the U.S. and international markets
5. BioProcess International Launches Monthly Asia-Pacific eNewsletter
6. China YCT International Group, Inc. Announces That the State Intellectual Property Office of the Peoples Republic of China has Approved a Patent to its Operating Subsidiary, Shandong Spring Pharmaceutical Co. Ltd.
7. Wound Management Technologies, Inc. Rapidly Expands Its International Presence
8. The International Food Protection Training Institute (IFPTI) Announces 2010 Course Schedule
9. The International Society for Medical Publication Professionals Announces Call for Abstracts for Its 6th Annual Meeting
10. Announcing ISMPP EU 2010 - the First European Meeting of the International Society for Medical Publication Professionals, Royal College of Physicians, London, UK, January 20, 2010
11. Dyadic International Extends Collaboration With The Scripps Research Institute
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/15/2014)... AudioNotch is the internet's leading provider ... treatment of tinnitus. Patients listen to sound therapy that ... period of weeks to months, their tinnitus volume decreases. , ... Notched Music and Notched White Noise. Now, AudioNotch is pleased ...
(Date:1/14/2014)... 2014 Carahsoft and CDS Federal Services ... 2014 at 2pm EST (11am PST), “Natural Language Processing: ... on how technology can turn raw, heterogeneous data into ... agencies. The online webinar will last approximately one hour. ...
(Date:1/14/2014)... 14, 2014 As pet owners drew up their lists of ... wrote: "Take better care of my furry companion." Nowadays there are ... top-brand carrying cases to take the little canine or feline darlings ... compelled to buy some pricey toys at the pet store. But ...
(Date:1/14/2014)... SAN DIEGO and BETHESDA, Md. ... they are joining together with two institutes from the ... more reliable tools for bringing safer, more effective treatments ... with the National Center for Advancing Translational Sciences (NCATS) ...
Breaking Biology Technology:Webcast - Natural Language Processing: Converting Raw Data into Actionable Knowledge – Hosted by Carahsoft and CDS Federal Services 2New Year's Resolution: Give Pets the Gift of Top-Notch Health Care 2Organovo Announces Collaboration with National Institutes of Health 2Organovo Announces Collaboration with National Institutes of Health 3
... effective when ... and vaccines, ANN ARBOR, Mich., Oct. 21 ... data in nine presentations that,detail key milestones in its ... fibrosis and an intra-nasal,influenza vaccine during the joint meeting ...
... Mich., Oct. 21 Terumo Heart, Inc. announced,today ... Ventricular,Assist System (LVAS), marking an important early milestone ... Dr. Francis Pagani performed the five implants,at the ... with three,of the surgeries performed off-pump., "We ...
... progress being made as distribution channel reorders,continue, ... Corp. (BIEL),the maker of ActiPatch(R) Therapy, the ... operated microchip delivering continuous pulse,therapy that revolutionizes ... has,achieved additional distribution penetration into the Canadian ...
Cached Biology Technology:NanoBio to Announce Key Clinical and Preclinical Data in Nine Presentations at ICAAC/IDSA 2008 2Fifth DuraHeart(TM) U.S. Implant Marks Important Milestone in U.S. Pivotal Trial 2BioElectronics Announces Significant Progress in Canadian and International Distribution 2
(Date:4/23/2014)... analysis of NASA satellite data shows Africa,s Congo rainforest, ... a large-scale decline in greenness over the past decade. ... at Albany, State University of New York, shows between ... of forest area and intensified. The research, published Wednesday ... comprehensive observational studies to explore the effects of long-term ...
(Date:4/23/2014)... Burning coal for domestic heating may contribute to early ... from The Saban Research Institute of Children,s Hospital Los ... in the world. , In a paper published today ... researchers report ,"alarmingly strong statistical correlations" between seasonal ambient ... , UB has one of the highest levels ...
(Date:4/23/2014)... -- Like a hungry diner ripping open a dinner ... electricity must tear open a hydrogen molecule. Now researchers ... onto the two halves of its hydrogen feast. The ... to make the catalyst work better for alternative energy ... have shown precisely where the hydrogen halves end up ...
Breaking Biology News(10 mins):NASA satellites show drought may take toll on Congo rainforest 2NASA satellites show drought may take toll on Congo rainforest 3Pollutants from coal-burning stoves strongly associated with miscarriages in Mongolia 2Halving hydrogen 2Halving hydrogen 3Halving hydrogen 4
... disappearance of seed-dispersing animals like elephants and rhinoceroses puts ... of South-East Asia at risk. With the help of ... that not even herbivores like tapirs can replace them. ... tropical forests: They are vital to forest regeneration and ...
... -- WanderID announces the launch of its biometric face ... individuals who cannot reliably communicate in case of emergency, ... children, the company,s product is now in use among ... KXAN video link  here ] , Bee Cave Police ...
... the Department of Energy,s Oak Ridge National Laboratory to analyze ... efforts to understand more complex microbial communities such as those ... the Proceedings of the National Academy of Sciences , ... marine worm known as Olavius algarvensis. The worm lacks a ...
Cached Biology News:The absence of elephants and rhinoceroses reduces biodiversity in tropical forests 2The absence of elephants and rhinoceroses reduces biodiversity in tropical forests 3WanderID Launches Breakthrough ID Product for Children, Seniors 2ORNL protein analysis investigates marine worm community 2
... a complete, flexible system designed specifically ... as is frequently required in biological ... Instechs miniature Clark-style polarographic electrode. Measuring ... diameter (3.2 mm), it is ideal ...
... ALDEFLUOR Stem Cell Identification ... comprises a substrate for ... (ALDH) that is highly ... stem cells, making ALDH ...
... Monoclonal Antibody is a mouse monoclonal ... the 26 kDa glutathione-S-transferase (GST) domain ... antibody is suitable for detecting fusion ... in E. coli , yeast, mammalian, ...
... System is the cost-effective solution for entry ... to common research imaging tasks, MetaVue enables ... simple image analysis. Compatibility with MetaMorphs ... that MetaVue has the power to drive ...
Biology Products: