For this annual event hundreds of patient groups and their partners organise activities to raise awareness on rare diseases and the 30 million people affected by them in Europe.
Rare Disease Day was launched and is coordinated by the European Organisation for Rare Diseases - EURORDIS (http://www.eurordis.org), a federation representing more than 400 patient organisations in 42 countries. The campaign involves rare disease national alliances and patient groups in 40 countries, in the EU as well as in the USA, Canada, Argentina, Australia, New Zealand, Japan, China and Taiwan, amongst others.
The European Union considers a disease as rare when it affects less than
1 in 2,000 citizens. 80% have a genetic origin and the majority affects
children. Most rare diseases are serious, chronic and life-threatening. Due
to their low prevalence, medical experts are also rare, knowledge is scarce,
|SOURCE EURORDIS European Organisation for Rare Diseases|
Copyright©2010 PR Newswire.
All rights reserved