Navigation Links
International Rare Disease Day
Date:2/24/2010

For this annual event hundreds of patient groups and their partners organise activities to raise awareness on rare diseases and the 30 million people affected by them in Europe.

Rare Disease Day was launched and is coordinated by the European Organisation for Rare Diseases - EURORDIS (http://www.eurordis.org), a federation representing more than 400 patient organisations in 42 countries. The campaign involves rare disease national alliances and patient groups in 40 countries, in the EU as well as in the USA, Canada, Argentina, Australia, New Zealand, Japan, China and Taiwan, amongst others.

The European Union considers a disease as rare when it affects less than 1 in 2,000 citizens. 80% have a genetic origin and the majority affects children. Most rare diseases are serious, chronic and life-threatening. Due to their low prevalence, medical experts are also rare, knowledge is scarce, off
'/>"/>

SOURCE EURORDIS European Organisation for Rare Diseases
Copyright©2010 PR Newswire.
All rights reserved

Page: 1 2 3 4 5 6 7

Related biology technology :

1. YM BioSciences presents CYT387 and CYT997 data at international cancer conference
2. Orameds Chief Scientific Officer, Miriam Kidron, Ph.D., Chosen to Lecture at the Third International Conference on Advanced Technologies and Treatments for Diabetes in Basel, Switzerland
3. EUCODIS Bioscience Receives EUR 2 Million Cash Injection to Enlarge Product Portfolio and Develop International Markets
4. BioSpec Global Solutions Inc, takes delivery of new TOGs 3000 Home edition for the U.S. and international markets
5. BioProcess International Launches Monthly Asia-Pacific eNewsletter
6. China YCT International Group, Inc. Announces That the State Intellectual Property Office of the Peoples Republic of China has Approved a Patent to its Operating Subsidiary, Shandong Spring Pharmaceutical Co. Ltd.
7. Wound Management Technologies, Inc. Rapidly Expands Its International Presence
8. The International Food Protection Training Institute (IFPTI) Announces 2010 Course Schedule
9. The International Society for Medical Publication Professionals Announces Call for Abstracts for Its 6th Annual Meeting
10. Announcing ISMPP EU 2010 - the First European Meeting of the International Society for Medical Publication Professionals, Royal College of Physicians, London, UK, January 20, 2010
11. Dyadic International Extends Collaboration With The Scripps Research Institute
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:11/26/2014)... 21, 2014 (PRWEB) November 26, 2014 ... communications network, today announced the organization has won a ... Club Awards. Digitas Health LifeBrands was honored with a ... other PHCG agencies received eight Awards of Excellence. ... aspects of pharmaceutical advertising and promotion. The Awards provide ...
(Date:11/26/2014)... In keeping with the holiday spirit, ... of last-minute Thanksgiving savings. The company is offering up ... product lines this holiday weekend as well as a ... and Cyber Monday are right around the corner, and ... loyal customers and those looking to explore their ancestry, ...
(Date:11/26/2014)... MD (PRWEB) November 26, 2014 On ... invite the Baltimore and Washington D.C. science community to ... , The event, sponsored by the Protein Society, will ... UMBC’s University Center, Room 312. Through discussion, presentations ... and structural importance of proteins, their role in the ...
(Date:11/26/2014)... 2014 SonaCare Medical, a leading ... devices, recently participated in the American Urology Association’s ... .” Key opinion leaders in urology presented on ... small renal masses while attendees had the opportunity ... in hands-on labs. Attendees at the Los Angeles, ...
Breaking Biology Technology:Publicis Healthcare Wins 20 Rx Club Awards 2Publicis Healthcare Wins 20 Rx Club Awards 3DNA Spectrum Offers Last Minute Thanksgiving Coupons 2DNA Spectrum Offers Last Minute Thanksgiving Coupons 3SonaCare Medical Supports American Urology Association’s Small Renal Mass 360° Summit 2SonaCare Medical Supports American Urology Association’s Small Renal Mass 360° Summit 3
... impaction microbial assessment of your air supply may indicate you have unwanted ... RUDY PINA , ... Manufacturers of medical devices who label their product as sterile may use ... belts, and/or aseptic cleaning processes. The manufacturer may use these systems on ...
... from American Biotechnology Laboratory May 2003 , ... BY COSTAS IOANNIDES , ... measurements of cell growth and viability. Cell counts must be ... time consuming, but also prone to error because of operator ...
... Introduction , ... expression data. These statistical algorithms, created in response ... distribution of data found in microarray experiments. The new ... to accommodate advancements in array and probe selection technology. ...
Cached Biology Technology:Testing Compressed Air Lines for Microbiological Contamination 2Testing Compressed Air Lines for Microbiological Contamination 3Testing Compressed Air Lines for Microbiological Contamination 4Testing Compressed Air Lines for Microbiological Contamination 5Testing Compressed Air Lines for Microbiological Contamination 6Improving the accuracy and speed of mammalian cell counting 2Improving the accuracy and speed of mammalian cell counting 3Improving the accuracy and speed of mammalian cell counting 4Improving the accuracy and speed of mammalian cell counting 5New statistical algorithms for Monitoring Gene Expression on GeneChip® Probe Arrays 2New statistical algorithms for Monitoring Gene Expression on GeneChip® Probe Arrays 3New statistical algorithms for Monitoring Gene Expression on GeneChip® Probe Arrays 4New statistical algorithms for Monitoring Gene Expression on GeneChip® Probe Arrays 5New statistical algorithms for Monitoring Gene Expression on GeneChip® Probe Arrays 6
(Date:11/21/2014)... Calif. , Nov. 20, 2014 Strict ... driver efficiency are piloting the North American and European ... of accidents growing, gesture recognition systems that are intuitive ... a mark in the industry. New ... Automotive Gesture Recognition Market in Europe ...
(Date:11/18/2014)...  The Secure Identity & Biometrics Association (SIBA) ... the formation of The Airport Entry and Exit ... and Biometric Entry and Exit Solutions Framework for ... from BORDERPOL, the international non-profit organization that works ... regarding border security, traveler and migration systems. ...
(Date:11/18/2014)...   EyeLock Inc. , a market leader ... USA (Safran), a leading U.S. provider of ... partnership to offer comprehensive biometric identity solutions and ... screening and financial services markets. As ... through a nationwide network of 1,100 IdentoGO® Centers.  ...
Breaking Biology News(10 mins):Gesture Recognition Intensifies with the Rise of In-car Smartphone Integration, Says Frost & Sullivan 2Gesture Recognition Intensifies with the Rise of In-car Smartphone Integration, Says Frost & Sullivan 3Gesture Recognition Intensifies with the Rise of In-car Smartphone Integration, Says Frost & Sullivan 4Identity Management, Document Authentication and Biometric Companies Form "The Airport Entry and Exit Working Group", Releasing the Framework to Help Guide the Department of Homeland Security and Congress Towards Solutions 2Identity Management, Document Authentication and Biometric Companies Form "The Airport Entry and Exit Working Group", Releasing the Framework to Help Guide the Department of Homeland Security and Congress Towards Solutions 3EyeLock, MorphoTrust Form Strategic Partnership to Pursue Commercial Enterprise Deployments 2EyeLock, MorphoTrust Form Strategic Partnership to Pursue Commercial Enterprise Deployments 3
... of single-cell parasites have co-opted "ready-made" genes from their ... according to a new study by University of British ... a group of parasitic microbes called microsporidia, Encephalitozoon ... to fungi and are commonly found in the intestines ...
... Suppliers of the orange, vanilla and other flavor and fragrance ... products are putting their faith in microbes as new sources ... oils used for centuries to delight the taste buds and ... edition of Chemical & Engineering News . C&EN is ...
... of us, summer is a time synonymous with fresh corn, ... States. In 2011, corn was planted on more than ... its trend as the world,s largest exporter of the crop. ... levels, most U.S. farmers apply synthetic nitrogen fertilizer to their ...
Cached Biology News:Scientists develop new carbon accounting method to reduce farmers' use of nitrogen fertilizer 2Scientists develop new carbon accounting method to reduce farmers' use of nitrogen fertilizer 3
Mouse monoclonal [B314.1 (MAC 387)] to Macrophage L1 protein Calprotectin (rating: ****) ( Abpromise for all tested applications)....
Human/Mouse/Rat AMPK beta 1 Affinity Purified Polyclonal Ab...
Immunogen: Tissue / cell preparation. (Murine EHS laminin preparation) Storage: -20 C, Avoid Freeze/Thaw Cycles...
Human Carnosine Dipeptidase 1 Affinity Purified PAb...
Biology Products: