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Head to the Hill Advocacy Day Draws Hundreds to Capitol Hill to Speak-up for the Vital Needs of the Brain Tumor Community
Date:5/7/2013

ain tumor community, which has only seen four (4) FDA-approved treatments in the past three decades.

Recent government-funded projects like The Cancer Genome Atlas (TCGA) have produced significant scientific discoveries in brain tumor research. However, additional investment - on the scale that only the government can provide - in basic science is still needed to develop potential new therapeutics for the patient community.

However, the deep cuts to NIH triggered through sequestration, are expected to result in funding reductions for critical brain tumor research. National Brain Tumor Society and its advocates told their representatives today that it is critical for the federal government to increase NIH funding, so that it may keep pace with the needs of biomedical research.

Temodar (temozolomide) is the standard of care for all brain tumor patients whose treatment includes chemotherapy. Temodar is almost exclusively administered orally, and for this reason health insurance companies often treat it differently. Oral chemotherapy agents are often covered as prescription drugs, rather than a medical benefit, such as traditional intravenous chemotherapy. The result is that patients are often subjected to onerous monthly co-pays in order to access the only chemotherapy available to treat their brain tumor.

Thus, the National Brain Tumor Society supported the reintroduction of [HR 1801] the Cancer Drug Coverage Parity Act. The bill will prohibit health insurance plans from charging patients more to access oral chemotherapy drugs, including Temodar, than they would for traditional IV chemotherapy. National Brain Tumor Society played a crucial role in crafting the newest version of the bill, and is now mobilizing brain tumor patients and families across the country to urge Congress to support the legislation.

More than 688,000 Americans are currently living with a primary brain tumor, and an estimated 14,000 people with die becaus
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