Navigation Links
Head to the Hill Advocacy Day Draws Hundreds to Capitol Hill to Speak-up for the Vital Needs of the Brain Tumor Community

Boston, MA (PRWEB) May 07, 2013

National Brain Tumor Society, the largest nonprofit dedicated to the brain tumor community in the United States, today held their annual “Head to the Hill” advocacy day in Washington, D.C. The event drew hundreds of brain tumor advocates from across the country to the nation’s capital to educate their respective congressional delegations on the critical issues currently facing the brain tumor community.

“Head to the Hill provides the National Brain Tumor Society and our supporters a tremendous platform to engage policy makers in a conversation about the impact decisions in Washington have on this very vulnerable population,” said N. Paul TonThat, Executive Director, National Brain Tumor Society. “As an organization that seeks to accelerate the discovery of new treatments, and ultimately a cure, for brain tumors, public policy advocacy plays a crucial role in our integrated program agenda.”

Brain tumors are a serious, life-threating illness that can strike anyone at any time. Yet treatment options remain limited, advancements toward new therapies are underfunded, and the recent sequestration cuts to government-funded research threatens to further undermine the fight against this life-threatening tumor. To make matters worse, the standard chemotherapy for brain tumor patients is often not covered equitably by insurance plans because it comes in a pill form.

Thus, the message delivered to Congress from the brain tumor advocates on the Hill this afternoon was two-fold: Invest in the National Institutes of Health (NIH) and support the Cancer Drug Coverage Parity Act (HR 1801) recently introduced in the House of Representatives by Congressman Brian Higgins and a bipartisan group of co-sponsors.

Cuts to NIH – the largest funder of brain tumor research in the United States, through the National Cancer Institute – due to sequestration couldn’t come at a worse time for the brain tumor community, which has only seen four (4) FDA-approved treatments in the past three decades.

Recent government-funded projects like The Cancer Genome Atlas (TCGA) have produced significant scientific discoveries in brain tumor research. However, additional investment - on the scale that only the government can provide - in basic science is still needed to develop potential new therapeutics for the patient community.

However, the deep cuts to NIH triggered through sequestration, are expected to result in funding reductions for critical brain tumor research. National Brain Tumor Society and its advocates told their representatives today that it is critical for the federal government to increase NIH funding, so that it may keep pace with the needs of biomedical research.

Temodar (temozolomide) is the standard of care for all brain tumor patients whose treatment includes chemotherapy. Temodar is almost exclusively administered orally, and for this reason health insurance companies often treat it differently. Oral chemotherapy agents are often covered as prescription drugs, rather than a medical benefit, such as traditional intravenous chemotherapy. The result is that patients are often subjected to onerous monthly co-pays in order to access the only chemotherapy available to treat their brain tumor.

Thus, the National Brain Tumor Society supported the reintroduction of [HR 1801] the Cancer Drug Coverage Parity Act. The bill will prohibit health insurance plans from charging patients more to access oral chemotherapy drugs, including Temodar, than they would for traditional IV chemotherapy. National Brain Tumor Society played a crucial role in crafting the newest version of the bill, and is now mobilizing brain tumor patients and families across the country to urge Congress to support the legislation.

More than 688,000 Americans are currently living with a primary brain tumor, and an estimated 14,000 people with die because of a primary malignant brain tumor this year. Brain tumors are the second leading cause of cancer-related death in children under age 20, and third leading among young adults age 20-39. Only one out of three adults diagnosed with a malignant brain tumor today will be alive in five years. More so than any other cancer, a brain tumor can have life-altering psychological, cognitive, behavioral, and physical effects. There are no known prevention methods and there is no cure.

About National Brain Tumor Society
National Brain Tumor Society is the largest nonprofit organization dedicated to the brain tumor community in the United States. We are fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and those who will be diagnosed tomorrow. This means aggressively driving strategic research and advocating for public policies, which meet the critical needs of this community. To learn more visit

Read the full story at

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related biology technology :

1. Save The Cord Foundation, a Global Leader in Cord Blood Advocacy, Announces its Expansion of Educational Information Surrounding Other Non-Controversial Stem Cell Sources
2. UCSB summit draws key leaders to discuss innovations in energy efficiency science and technology
3. 3M Withdraws Blackmail Claims Against Harvey Boulter From New York Court
4. Assemblyman Levine Presents Resolution Recognizing Rare Disease Day at Capitol
5. NDIA, NTSA Will Be On Hand At Seventh Annual Capitol Hill Modeling and Simulation Expo, Set To Focus On Homeland Security, First Response
6. SPIE Defense, Security, and Sensing 2013 Highlights Vital Role of Photonics for Defense and Commercial Applications
7. New NIST microscope measures nanomagnet property vital to spintronics
8. Palomar Medical Center in San Diego County Introduces New Wrist-Worn Wireless Patient Vital Signs Device
9. Can You Be Too Old for Acne? Probiotic Action comments on news from The Vitals Blog
10. Eckert & Ziegler Vitalea Science and Korea-based BioCore Bring Human Microdosing to Korea to Address the Needs of the Emergent Pharmaceutical Industry
11. Medical vital-sign monitoring reduced to the size of a postage stamp
Post Your Comments:
(Date:11/30/2015)... Jose, CA (PRWEB) , ... ... ... Content Intelligence Company, today announced tighter software integration with MarkLogic, the Enterprise ... where organizations maximize information to drive change. , Smartlogic’s Content Intelligence capabilities ...
(Date:11/27/2015)... ... November 27, 2015 , ... Pittcon is pleased to announce ... offered in symposia, oral sessions, workshops, awards, and posters. The core of ... applications such as, but not limited to, biotechnology, biomedical, drug discovery, environmental, food ...
(Date:11/25/2015)... 26, 2015 --> ... 2016 - 2020 report analyzes that automating biobanking ... quality in long-term samples, minimizing manual errors, improving ... minimizes manual errors such as mislabeling or inaccurate ... it plays a vital role in blood fractionation, ...
(Date:11/25/2015)... Mass. , Nov. 25, 2015 Harvard ... biotechnology company developing bioengineered organ implants for life-threatening conditions, ... present at the LD Micro "Main Event" investor conference ... The presentation will be webcast live and posted for ... be available at the conference for one-on-one meetings on ...
Breaking Biology Technology:
(Date:10/29/2015)...   MedNet Solutions , an innovative SaaS-based eClinical ... research, is pleased to announce that it has been ... one of only three finalists for a 2015 ... Growing" category. The Tekne Awards honor Minnesota ... innovation and leadership. iMedNet™ eClinical ...
(Date:10/29/2015)... , Oct. 29, 2015 Daon, a ... that it has released a new version of its ... in North America have already ... v4.0 also includes a FIDO UAF certified server ... already preparing to activate FIDO features. These customers include ...
(Date:10/29/2015)... , Oct. 29, 2015  Connected health pioneer, ... the explosion of technology-enabled health and wellness, and the ... book, The Internet of Healthy Things ... or smartphones even existed, Dr. Kvedar, vice president, Connected ... health care delivery, moving care from the hospital or ...
Breaking Biology News(10 mins):