A true grassroots effort, Team 2CureHD started their quest as something of a maverick in RAAM, a sporting event typically characterized by high-dollar sponsorships and raced only for the benefit of personal satisfaction. Sponsored primarily out-of-pocket while striving to compete on behalf of HDSA, Team 2CureHD not only surmounted the immense challenges faced by a rookie team -- much less one made of "average Joes" -- but also succeeded in finishing the race and raising over $120,000 to support HD research. This year, they hope to double that amount while they continue to raise national awareness of this dreadful disease.
"Last year's efforts and success were personally inspirational," said Shaffer. "We exceeded our expectations by an order of magnitude, and the generosity of our fellow citizens was eye-watering. Still, this battle is far from over, and as long as my daughters live with the risk of developing HD, I will continue fighting. The time, effort, discomfort and sweat-equity are more than worthwhile."
The Huntington's Disease Society of America's (HDSA) mission is to promote and support research to find a cure for HD and to help families and communities of the more than 200,000 people at risk for this little known disease, and their families. For more information, go to http://www.hdsa.org
|SOURCE Huntington's Disease Society of America|
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