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First Annual Michael SanInocencio Lennox-Gastaut Syndrome Research Award Presented at Annual Meeting of the Child Neurology Society
Date:11/1/2013

s award annually will encourage other researchers to study the syndrome and its treatment."

Madou was formally presented with the award on November 1 during the morning session of the 2013 Child Neurology Society (CNS) annual meeting in Austin, TX. She also was recognized at the CNF's donor luncheon on October 31, where Christina SanInocencio, President of the LGS Foundation and sister of Michael SanInocencio, acknowledged Madou's contributions to the field and spoke about the importance of scientific research in furthering the understanding of LGS.

"I am thankful to Eisai and the Child Neurology Foundation for this award, and for recognizing the dire need for expanded research into this condition," stated Dr. Madou. "By deepening our understanding of the genetic causes of LGS, we hope to improve medical therapies for seizure control."

About the Research

The Michael SanInocencio LGS Award will fund an expansion of ongoing research from the Epilepsy Phenome Genome Project (EPGP), an international epilepsy study funded by the National Institutes of Neurological Disorders and Stroke. As part of a broader study of epilepsy patients, EPGP researchers collected DNA samples from more than 150 LGS patients and their families and conducted whole exome gene sequencing to better understand the unique genetic characteristics associated with this form of epilepsy. The award funds will focus on expanding the LGS patient population and continuing to study in genetic detail the DNA samples provided in an effort to identify new candidate genes for LGS-specific therapeutic targets. The expanded research will also include a review of all LGS patients currently enrolled in the EPGP as well as new recruits to compare the newly identified genetic targets with real-life clinical patient outcomes.

Child Neurology Foundation

Founded in October 2000, the Child Neuro
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