Navigation Links
DIA and NORD to Hold 2013 U.S. Conference on Rare Diseases and Orphan Products
Date:7/23/2013

Bethesda, MD (PRWEB) July 23, 2013

Patient advocates, industry leaders, researchers, regulatory officials, investors and thought leaders dedicated to advancing the development of and access to therapies for rare diseases will come together for the third annual U.S. Conference on Rare Diseases and Orphan Products, held in Bethesda, Oct. 7–9. The conference is hosted by DIA and the National Organization for Rare Disorders (NORD).

The Affordable Care Act and the U.S. Food and Drug Administration (FDA) Safety and Innovation Act give new urgency to the topics, and discussions will address questions such as: What is the impact of new regulatory statutes on the rare disease community? What is the investment outlook for orphan product development? What will our health care system look like in the coming months and years?

“These are crucial times for the rare disease community, as regulation is shaping the future of drug development and access,” said Peter L. Saltonstall, NORD president and CEO. “This conference provides an unparalleled opportunity to share expert insight and collaborate in ways that are vital for the nearly 30 million Americans living with rare diseases, and many others worldwide.”

The conference, hosted in collaboration with FDA and EURORDIS (Rare Diseases Europe), will include keynote, plenary, and group sessions organized by four central themes: research and regulation; access and reimbursement; the role of the patient in research and regulatory processes; and implementation of the Affordable Care Act.

This year marks the 30th anniversary of NORD and the Orphan Drug Act, which provided federal financial incentives that have made it possible for companies to develop treatments for people with rare diseases.

“With DIA’s established reputation for bringing together thought leaders to promote progress, and NOR
'/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2 3

Related biology technology :

1. Generex Confirms Conference Call with Members of the Antigen Express Scientific Advisory Board
2. Neurocrine Biosciences Announces Conference Call And Webcast To Present Second Quarter 2013 Financial Results
3. Vet-Stem, Inc. Founder and CEO, Robert Harman, DVM, Presents at Prestigious Stem Cell Conference at Case Western Reserve University
4. Elsevier Announces 2013 Library Connect Charleston Conference Award
5. Proposals Now Being Accepted for the 2014 Pittsburgh Conference Memorial National College Grants (PCMNCG)
6. Generex Announces Particulars of Conference Call with Members of the Antigen Express Scientific Advisory Board
7. Dr. Douglas Harrington Speaks At The American Society For Preventive Cardiology Southeastern Conference 2013
8. Dr. Douglas Harrington Speaks At The American Society for Preventive Cardiology Southeastern Conference 2013
9. SPIE Leaders Commend OMB Support for Travel to Scientific Conferences, Say Funding is Also Needed
10. Formedix CEO Invited to Speak at OpenClinica Global Conference in Boston
11. Pursuit's Elissa Guerra and Eunjoo Pluenneke to Present on Mobile Strategy at Digital Pharma West Conference
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:9/19/2014)... Charlotte, NC (PRWEB) September 19, 2014 ... Certified Biobased Product Label for its Organic Cotton ... the product’s amount of renewable biobased ingredients meets or ... or intermediate materials composed in whole or in significant ... “This logo/label will allow our Organic cotton to be ...
(Date:9/19/2014)... , The first grants awarded ... Endocrinology (ESPE) Meeting  Investment supports innovative projects ... the field of growth  , EMD Serono, ... , today announced the first recipients of the ... were announced during a Satellite Symposium organized by EMD ...
(Date:9/18/2014)... HealthTronics, Inc ., a ... products and services, announced that a poster related ... versus external beam radiotherapy (EBRT) is being presented ... Association (MAAUA) Annual Meeting in Baltimore, Maryland September ... Cryosurgery and External Beam Radiation as Treatments for ...
(Date:9/18/2014)... A novel robotic system that can operate ... being tested as part of a biomedical research partnership ... the aim of determining if the robot, in conjunction ... faster, more accurate, less costly, and less discomforting for ... to deliver prostate cancer therapies with greater precision. , ...
Breaking Biology Technology:Barnhardt Manufacturing Company Earns USDA Certified Biobased Product Certification and Label for Organic Cotton 2EMD Serono Awards Grant for Growth Innovation (GGI) for the First Time 2EMD Serono Awards Grant for Growth Innovation (GGI) for the First Time 3HealthTronics Announces Data Comparing Cryotherapy Versus Radiation for Treating Prostate Cancer Poster Presented at the American Urological Association Regional Meeting 2Worcester Polytechnic Institute Participates in Clinical Trial for MRI-Compatible Robot Designed to Improve Accuracy of Prostate Cancer Biopsies 2Worcester Polytechnic Institute Participates in Clinical Trial for MRI-Compatible Robot Designed to Improve Accuracy of Prostate Cancer Biopsies 3Worcester Polytechnic Institute Participates in Clinical Trial for MRI-Compatible Robot Designed to Improve Accuracy of Prostate Cancer Biopsies 4Worcester Polytechnic Institute Participates in Clinical Trial for MRI-Compatible Robot Designed to Improve Accuracy of Prostate Cancer Biopsies 5Worcester Polytechnic Institute Participates in Clinical Trial for MRI-Compatible Robot Designed to Improve Accuracy of Prostate Cancer Biopsies 6
... 13 Nile Therapeutics, Inc.,(Nasdaq: NLTX ), today ... present at the Rodman & Renshaw 5th Annual Global ... at Le Meridian Beach,Plaza Hotel in Monte Carlo, Monaco. ... the status of Nile,s current clinical development,programs., The ...
... Foamix Offers New Intravaginal Foam Technology with Improved Usability & ... ... Israel, May 13 Despite the high incidence,of women,s health conditions ... and ovules, a recent survey,found that an alarming majority of women ...
... with CelVida Yields First Milestone, NEW YORK, May ... pioneering the pre-disease collection, processing and long-term,storage of adult ... a,site has been secured for a new stem cell ... Robin Smith, MD MBA, NeoStem,s Chairman and Chief ...
Cached Biology Technology:Nile Therapeutics to Present at the Rodman & Renshaw 5th Annual Global Healthcare Conference 272% of Women Are Dissatisfied With Their Current Treatment of Vaginal Infection, Survey Finds 2NeoStem to Expand Stem Cell Collection Center Network to Florida 2NeoStem to Expand Stem Cell Collection Center Network to Florida 3
(Date:9/22/2014)... of sea ice melt in the summer and when sea ... and more reduced. As the Arctic summers are getting warmer ... sea ice in the Arctic will remove less CO2 from ... representative, then sea ice plays a greater role than expected, ... CO2 budgets", says Dorte Haubjerg Sgaard, PhD Fellow, Nordic Center ...
(Date:9/22/2014)... , Sept. 22, 2014 NXT-ID, Inc. ... focused on the growing mobile commerce market, issues the ... and the recent funding. Letter ... an essential round of funding and joined the NASDAQ ... as expand its other biometric and authentication products and ...
(Date:9/22/2014)... More than 7,000 geoscientists will gather in Vancouver, British ... Society of America,s 126th Annual Meeting & Exposition on ... as the transportation of crude oil, earthquake prediction problems, ... guide, Trials and Tribulations of Life on an Active ... Vancouver area. , A broad range of topics will ...
Breaking Biology News(10 mins):Arctic sea ice helps remove CO2 from the atmosphere 2NXT-ID Issues Shareholder Corporate Update 2NXT-ID Issues Shareholder Corporate Update 3NXT-ID Issues Shareholder Corporate Update 4Geoscience topics in the spotlight -- Vancouver, BC 2Geoscience topics in the spotlight -- Vancouver, BC 3Geoscience topics in the spotlight -- Vancouver, BC 4Geoscience topics in the spotlight -- Vancouver, BC 5
... bulges: people will gladly remove excess body fat to improve ... the potential to repair defects and heal injuries in the ... of Oslo in Norway has identified certain chemical marks that ... of stem cells in liposuctioned fat, are best at regenerating ...
... Specialist II, and Linheng Li, Ph.D., Associate Investigator, are the ... clarifies how normal stem cells become cancer stem cells and ... , The paper, "PTEN-deficient intestinal stem cells initiate intestinal ... January 21. , The theory that cancer stem cells ...
... out of three sexually active older adults infected with HIV ... researchers. A survey of 260 HIV-positive older adults found that ... were in a relationship. , AIDs cases among the over-50 ... Disease Control and Prevention, they will account for half of ...
Cached Biology News:Liposuctioned fat stem cells to repair bodies 2Linheng Li Lab documents the development of cancer stem cells 21/3 of sexually active older adults with HIV/AIDs has unprotected sex 2