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CSL Behring Awards Advocacy Grants to Patient Groups in Maryland, New England, the Midwest and Washington
Date:1/20/2011

e bleeding disorders community in our six-state area presents many challenges.  We look forward to working with CSL Behring to serve our community," said Kevin R. Sorge, Executive Director, NEHA.

The Midwest Hemophilia Association (MHA), Kansas City, MOMHA will use its LEAD grant to bolster legislative efforts in support of passage of Standards of Care for People with Bleeding Disorders in Missouri.  In addition, MHA will start grassroots advocacy in Kansas and also help educate the public about women's bleeding disorders.

"MHA is delighted to receive this generous LEAD grant from CSL Behring. This grant will help our ultimate goal to make all our members better self-advocates," Kristin Marema, MHA Board Member, said.

The Hereditary Angioedema Association (HAEA), Honolulu, HIThe HAEA will use its LEAD grant funds to support the establishment of a public policy program. Already, the HAEA held its first federal advocacy day where select volunteers traveled to Washington to inform their legislators about hereditary angioedema and the need for increased research into this potentially life-threatening condition.

"The Association is passionate about making a better life for all HAE patients and is grateful for the opportunity to advocate for HAE research on a federal level," said Janet F. Long, Executive Vice President of the US HAEA.

LEAD Grant Application DeadlineLEAD grants are awarded semi-annually. CSL Behring considers grant proposals which relate to bleeding and platelet disorders, immune deficiencies, pulmonary disease and critical care. The submission deadline for the next round of grants is April 30, 2011. Applications, specific criteria for applying and more information about the LEAD program are available at www.cslbehring.com/leadgrants.

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