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CSL Behring Awards Advocacy Grants to Patient Groups in Maryland, New England, the Midwest and Washington
Date:1/20/2011

ding Disorder Foundation of Washington (BDFW), Edmonds, WALEAD grant funds to BDFW will be used to support its state advocacy day in Olympia, WA and to increase participation from the eastern part of the state.

"The Foundation is thrilled to be awarded a CSL Behring LEAD Grant.  It is this kind of dedication that CSL Behring provides back to the bleeding disorder community that allows chapters like ours to provide excellent care and service to our community," Kristian Prill, Executive Director said. "The funding being provided will allow us to increase education and advocacy for bleeding disorders and healthcare reform at a critical time in the process."

The Immune Deficiency Foundation (IDF), Towson, MDIDF will use its LEAD grant to support Capitol Hill Day where individuals with primary immune deficiencies and their families travel to Washington, DC to meet with their legislators and discuss issues impacting this community. In addition to Capitol Hill Day, the IDF will also jointly conduct a Raise Your Voice! program with CSL Behring. Raise Your Voice! helps teenagers become active advocates and is part of the CSL Behring LEAD program.

"The IDF thanks CSL Behring for the LEAD grant and for letting the voices of those with primary immunodeficiencies be heard," Lawrence A. LaMotte, Director Public Policy, IDF, said.

The New England Hemophilia Association (NEHA), Dedham, MANEHA will use the grant from CSL Behring to expand its consumer network and to train volunteers.  In addition, the LEAD grant will provide staffing resources to help drive NEHA's advocacy priorities through legislation and coalition building.

"NEHA is grateful to receive a LEAD grant from CSL Behring in support of our Advocacy program.  Promoting the needs of th
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