BOSTON, April 28, 2011 /PRNewswire/ -- The Center for Business Intelligence (CBI), a division of Advanstar Communications, is pleased to announce a partnership with the Children's Rare Disease Network and The Global Genes Project for the 6th Annual Rare Disease Leadership Summit coming up July 12 - 13, 2011 at the Doubletree Hotel in Washington, D.C.
There is nothing rare about rare diseases. They affect few people individually, but there are more than 25 million children and their families in the US alone that are affected and approximately 250 million people diagnosed with a rare disease worldwide. Throughout two days of government, advocacy and industry presentations, you will learn how to ensure access to orphan drug therapies through collaborative efforts with government, researchers and patient groups.
The two-day event features presentations from Amicus Therapeutics, NIH, Viropharma Incorporated, BioGenerator, Pfizer Inc, FDA, Kakkis EveryLife Foundation, Genetic Alliance UK, Health Canada, Keck Graduate Institute, Mobius Therapeutics LCC, CORD, Shire, The Children's Rare Disease Network and more.
To further their efforts to support the advancement of research in the rare disease arena, the Global Genes Project continues their "Wear That You Care™" Denim Campaign during the Rare Disease Leadership Summit. The campaign is simple - all attendees can participate in supporting the rare disease movement by wearing a Denim Jeans Ribbon™ on the first day of the conference, and their favorite pair of jeans on the second day.
Join us this July for what promises to be a thought-provoking and educational opportunity.
For more information on this event, please visit http://www.cbinet.com/RareDisease or call 800-817-8601. If you would like to apply for a press pass, please contact Lauren Donoghue at firstname.lastname@example.org
|SOURCE CBI Research, Inc.|
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