Navigation Links
CBI Announces Partnership With Children's Rare Disease Network and The Global Genes Project
Date:4/28/2011

BOSTON, April 28, 2011 /PRNewswire/ -- The Center for Business Intelligence (CBI), a division of Advanstar Communications, is pleased to announce a partnership with the Children's Rare Disease Network and The Global Genes Project for the 6th Annual Rare Disease Leadership Summit coming up July 12 - 13, 2011 at the Doubletree Hotel in Washington, D.C.

There is nothing rare about rare diseases. They affect few people individually, but there are more than 25 million children and their families in the US alone that are affected and approximately 250 million people diagnosed with a rare disease worldwide. Throughout two days of government, advocacy and industry presentations, you will learn how to ensure access to orphan drug therapies through collaborative efforts with government, researchers and patient groups.  

The two-day event features presentations from Amicus Therapeutics, NIH, Viropharma Incorporated, BioGenerator, Pfizer Inc, FDA, Kakkis EveryLife Foundation, Genetic Alliance UK, Health Canada, Keck Graduate Institute, Mobius Therapeutics LCC, CORD, Shire, The Children's Rare Disease Network and more.

To further their efforts to support the advancement of research in the rare disease arena, the Global Genes Project continues their "Wear That You Care™" Denim Campaign during the Rare Disease Leadership Summit. The campaign is simple - all attendees can participate in supporting the rare disease movement by wearing a Denim Jeans Ribbon™ on the first day of the conference, and their favorite pair of jeans on the second day.

Join us this July for what promises to be a thought-provoking and educational opportunity.

For more information on this event, please visit http://www.cbinet.com/RareDisease or call 800-817-8601. If you would like to apply for a press pass, please contact Lauren Donoghue at lauren.donoghue@cbinet.com or 339-298-2262.  

Sponsors and Exhibitors include Centric Health Resources, Siren Interactive, CRN, Cryer Health, MME, Almac and Plexius. For more information on sponsorship opportunities, please email Alexa Moore: alexa.moore@cbinet.com.

About CBI:

A subsidiary of Advanstar Communications, CBI Research, Inc. offers Pharmaceutical and Healthcare conferences that serve senior executives and government officials by providing a unique platform for highly focused content and ideal networking opportunities with senior policy- and decision-makers. CBI events provide you with concrete, real-life examples that you can begin to apply at your organization immediately for significant impact on costs and revenue. For more information, please visit http://www.cbinet.com.

About the Children's Rare Disease Network:

The Children's Rare Disease Network works to educate and connect families, caregivers and stakeholders impacted by rare disease worldwide. CRDN is an online community and collaborative portal that includes resources, disease information and an active blog, RARE Blog. For more information, please visit http://www.crdnetwork.org.

About The Global Genes Project:

The Global Genes Project was developed as a collaborative grassroots campaign to educate and drive greater public awareness about rare disease, build community and support the development of effective therapies and treatments for children within their lifetime. For more information, please visit http://www.globalgenesproject.org.

This press release was issued through eReleases(R).  For more information, visit eReleases Press Release Distribution at http://www.ereleases.com.


'/>"/>
SOURCE CBI Research, Inc.
Copyright©2010 PR Newswire.
All rights reserved

Related biology technology :

1. Sequenom Announces Publication Acceptance of Manuscript From Age-related Macular Degeneration Validation Study
2. China Green Material Technologies, Inc. Announces Change of Auditor to Marcum Bernstein & Pinchuk LLP
3. Talecris Biotherapeutics Announces First Quarter 2011 Results
4. PDL BioPharma Announces First Quarter 2011 Financial Results
5. GeoVax Labs, Inc. Announces First Quarter Financial Results
6. BSI Group America Inc. Announces Specialized Regulatory Training Courses for the Healthcare Industry
7. ThermoGenesis Announces China Customer Implements Cord Blood Products
8. Life Technologies Announces First Quarter 2011 Results
9. MiMedx Group Announces First Quarter 2011 Results
10. Collins Stewart Announces Formation of Healthcare Investment Banking Alliance
11. Harvest Technologies Announces Initial Enrollment in Its REVIVE-1 Trial (REtrograde Vascular Infusion of BMAC to ImproVe Heart FailurE)
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/27/2016)... PHILADELPHIA , June 27, 2016  Liquid ... today announced the funding of a Sponsored Research ... study circulating tumor cells (CTCs) from cancer patients.  ... changes in CTC levels correlate with clinical outcomes ... therapies. These data will then be employed to ...
(Date:6/24/2016)... SAN DIEGO , June 24, 2016 /PRNewswire/ ... that more sensitively detects cancers susceptible to PARP ... individual circulating tumor cells (CTCs). The new test ... of HRD-targeted therapeutics in multiple cancer types. ... therapies targeting DNA damage response pathways, including PARP, ...
(Date:6/23/2016)... ... June 23, 2016 , ... ... of its second eBook, “Clinical Trials Patient Recruitment and Retention Tips.” Partnering with ... in this eBook by providing practical tips, tools, and strategies for clinical researchers. ...
(Date:6/23/2016)... 23, 2016 /PRNewswire/ - FACIT has announced the ... biotechnology company, Propellon Therapeutics Inc. ("Propellon" or ... of a portfolio of first-in-class WDR5 inhibitors for ... as WDR5 represent an exciting class of therapies, ... medicine for cancer patients. Substantial advances have been ...
Breaking Biology Technology:
(Date:6/7/2016)...  Syngrafii Inc. and San Antonio Credit Union ... integrating Syngrafii,s patented LongPen™ eSignature "Wet" solution into ... result in greater convenience for SACU members and ... existing document workflow and compliance requirements. ... Highlights: ...
(Date:6/2/2016)... , June 2, 2016   The Weather Company , ... Watson Ads, an industry-first capability in which consumers will be ... able to ask questions via voice or text and receive ... Marketers have long sought an advertising ... that can be personal, relevant and valuable; and can scale ...
(Date:5/24/2016)... Ampronix facilitates superior patient care by providing unparalleled technology to leaders of ... the latest premium product recently added to the range of products distributed by Ampronix. ... ... ... Medical Display- Ampronix News ...
Breaking Biology News(10 mins):