Navigation Links
Anonymous survey launched for Parkinson’s patients to collect data for research to help determine the cause of Parkinson's disease.
Date:2/20/2013

Yelm, Wa (PRWEB) February 20, 2013

An anonymous survey has been launched by the Parkinson’s Database Coalition for those afflicted with Parkinson’s disease.

The survey is for Parkinson’s patients or caregivers to complete. It covers several detailed aspects not normally acquired in a clinical setting such as certain demographics, diet, types of treatments, work and chemical exposure. The survey has 115 questions. It will be supplemented by additional surveys which will generate more specific questions based on the data received.

Once sufficient data is accumulated from the survey it will become available to researchers and physicians in a searchable database to aid in faster diagnosis, prevention, better treatment options and hopefully a cure.

The focus of this survey is to isolate specific causes of Parkinson’s disease based on accumulation of a large amount of data received directly from the patients themselves. Because the survey is anonymous it will allow Patients to retain privacy while providing valuable data for research.

There are forums available with an anonymous Parkinson’s Database Coalition I.D. to allow communications between the patients, physicians and researchers, as well as a forum for physicians and patients to communicate with each other about Parkinson’s disease.

After nearly two years of study and research on Parkinson’s disease the survey is available worldwide and will run continually. The initial survey is in English, further updates in as many as 30 different languages will be released.

The cause of Parkinson’s disease is largely unknown and making clinical diagnosis is often difficult. There are no requirements for reporting this disease, but it is estimated that as many as 10 million people are affected worldwide. Currently there are no clinical tests to detect Parkinson’s and conclusive diagnosis can only be made after death.

About Parkinson's Database Coalition

The Parkinson's Database Coalition was founded in Yelm, Wa. in June of 2012 by Steven Keller, a 43 year old patient diagnosed with idiopathic young onset Parkinson’s disease. Mr. Keller created this survey after more than a year of inconclusive testing and many different clinical opinions that provided no clear answers to the cause of his illness. He determined that there was a desperate need for a broader understanding of what causes Parkinson’s disease. This led to the creation of a detailed survey which includes many questions and aspects that are not included in making a clinical diagnosis. The primary mission is to help determine the cause of this crippling disease. For more information visit http://www.parkinsonsdatabase.net

Read the full story at http://www.prweb.com/releases/2013/2/prweb10442332.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related biology technology :

1. 2012 Battalia Winston Survey Finds Corporate Holiday Parties are Making a Comeback
2. Surveying Earths interior with atomic clocks
3. Survey Shows Physicians Divided as Presidential Election Nears
4. Safety Foundation Sends "First of Its Kind" Safety Survey to Resorts
5. International Survey of T2* Cardiovascular Magnetic Resonance in Thalassemia
6. Pharma IQs Compound Management Survey Report
7. Morning Sickness or NVP: National Survey of Nurse Practitioners Points to Underreporting of Common Condition in Pregnancy
8. Survey: Small Medical Practice Confidence Index Rises in 2012
9. Live Press Briefing on Findings of Biomedical Industry CEO Survey
10. Survey Reveals Paternity Questions Loom for More Than One in 10 Americans
11. New Haydale HDPlas™ inks launched at Printed Electronics 2012
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/23/2016)... , June 23, 2016   Boston ... of novel compounds designed to target cancer stemness ... has been granted Orphan Drug Designation from the ... treatment of gastric cancer, including gastroesophageal junction (GEJ) ... inhibitor designed to inhibit cancer stemness pathways by ...
(Date:6/23/2016)... 23, 2016  The Prostate Cancer Foundation (PCF) is pleased to ... faster cures for prostate cancer. Members of the Class of 2016 were selected ... Read More About the Class of 2016 PCF Young Investigators ... ... ...
(Date:6/23/2016)... NC (PRWEB) , ... June 23, 2016 , ... In ... University Hospital in Denmark detail how a patient who developed lymphedema after being treated ... tissue. The results could change the paradigm for dealing with this debilitating, frequent side ...
(Date:6/23/2016)... , ... June 23, 2016 , ... ... exhibiting at the Pennsylvania Convention Center and will showcase its product’s latest features ... will also be presenting a scientific poster on Disrupting Clinical Trials in The ...
Breaking Biology Technology:
(Date:4/28/2016)... GOTHENBURG, Sweden , April 28, 2016 ... 1,491.2 M (139.9), up 966% compared with the first quarter of ... Operating profit totaled SEK 589.1 M (loss: 18.8) and the operating ... SEK 7.12 (loss: 0.32) Cash flow from operations was ... , The 2016 revenue guidance is unchanged, SEK 7,000-8,500 M. ...
(Date:4/15/2016)... , April 15, 2016  A new partnership ... more accurate underwriting decisions in a fraction of ... competitively priced and high-value life insurance policies to ... With Force Diagnostics, rapid testing (A1C, ... data readings (blood pressure, weight, pulse, BMI, and ...
(Date:3/31/2016)... RATON, Florida , March 31, 2016 ... LEGX ) ("LegacyXChange" or the "Company") ... for potential users of its soon to be launched ... video ( https://www.youtube.com/channel/UCyTLBzmZogV1y2D6bDkBX5g ) will also provide ... the use of DNA technology to an industry that ...
Breaking Biology News(10 mins):