Navigation Links
Anonymous survey launched for Parkinson’s patients to collect data for research to help determine the cause of Parkinson's disease.
Date:2/20/2013

Yelm, Wa (PRWEB) February 20, 2013

An anonymous survey has been launched by the Parkinson’s Database Coalition for those afflicted with Parkinson’s disease.

The survey is for Parkinson’s patients or caregivers to complete. It covers several detailed aspects not normally acquired in a clinical setting such as certain demographics, diet, types of treatments, work and chemical exposure. The survey has 115 questions. It will be supplemented by additional surveys which will generate more specific questions based on the data received.

Once sufficient data is accumulated from the survey it will become available to researchers and physicians in a searchable database to aid in faster diagnosis, prevention, better treatment options and hopefully a cure.

The focus of this survey is to isolate specific causes of Parkinson’s disease based on accumulation of a large amount of data received directly from the patients themselves. Because the survey is anonymous it will allow Patients to retain privacy while providing valuable data for research.

There are forums available with an anonymous Parkinson’s Database Coalition I.D. to allow communications between the patients, physicians and researchers, as well as a forum for physicians and patients to communicate with each other about Parkinson’s disease.

After nearly two years of study and research on Parkinson’s disease the survey is available worldwide and will run continually. The initial survey is in English, further updates in as many as 30 different languages will be released.

The cause of Parkinson’s disease is largely unknown and making clinical diagnosis is often difficult. There are no requirements for reporting this disease, but it is estimated that as many as 10 million people are affected worldwide. Currently there are no clinical tests to detect Parkinson’s and conclusive diagnosis can only be made after death.

About Parkinson's Database Coalition

The Parkinson's Database Coalition was founded in Yelm, Wa. in June of 2012 by Steven Keller, a 43 year old patient diagnosed with idiopathic young onset Parkinson’s disease. Mr. Keller created this survey after more than a year of inconclusive testing and many different clinical opinions that provided no clear answers to the cause of his illness. He determined that there was a desperate need for a broader understanding of what causes Parkinson’s disease. This led to the creation of a detailed survey which includes many questions and aspects that are not included in making a clinical diagnosis. The primary mission is to help determine the cause of this crippling disease. For more information visit http://www.parkinsonsdatabase.net

Read the full story at http://www.prweb.com/releases/2013/2/prweb10442332.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related biology technology :

1. 2012 Battalia Winston Survey Finds Corporate Holiday Parties are Making a Comeback
2. Surveying Earths interior with atomic clocks
3. Survey Shows Physicians Divided as Presidential Election Nears
4. Safety Foundation Sends "First of Its Kind" Safety Survey to Resorts
5. International Survey of T2* Cardiovascular Magnetic Resonance in Thalassemia
6. Pharma IQs Compound Management Survey Report
7. Morning Sickness or NVP: National Survey of Nurse Practitioners Points to Underreporting of Common Condition in Pregnancy
8. Survey: Small Medical Practice Confidence Index Rises in 2012
9. Live Press Briefing on Findings of Biomedical Industry CEO Survey
10. Survey Reveals Paternity Questions Loom for More Than One in 10 Americans
11. New Haydale HDPlas™ inks launched at Printed Electronics 2012
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/10/2017)... ... October 10, 2017 , ... ... FirstHand program has won a US2020 STEM Mentoring Award. Representatives of the FirstHand ... Excellence in Volunteer Experience from US2020. , US2020’s mission is to change the ...
(Date:10/10/2017)... ... October 10, 2017 , ... ... 13 prestigious awards honoring scientists who have made outstanding contributions to ... symposium during Pittcon 2018, the world’s leading conference and exposition for laboratory science, ...
(Date:10/9/2017)... ... October 09, 2017 , ... ... journal, Epilepsia, Brain Sentinel’s SPEAC® System which uses the surface electromyography (sEMG) ... tonic-clonic seizures (GTCS) using surface electromyography (sEMG). The prospective multicenter phase III ...
(Date:10/6/2017)... ... 06, 2017 , ... On Tuesday, October 24th, ABC² (Accelerate ... first-ever adaptive clinical trial for glioblastoma (GBM). The featured speaker will be Dr. ... open to the public, but registration is required. , WHAT: ABC² Brain ...
Breaking Biology Technology:
(Date:4/11/2017)... Florida , April 11, 2017 ... a security technology company, announces the appointment of independent Directors ... Bendheim to its Board of Directors, furthering the company,s ... ... of NXT-ID, we look forward to their guidance and benefiting ...
(Date:4/4/2017)...   EyeLock LLC , a leader of iris-based ... Patent and Trademark Office (USPTO) has issued U.S. Patent ... an iris image with a face image acquired in ... 45 th issued patent. "The ... the multi-modal biometric capabilities that have recently come to ...
(Date:3/29/2017)... CHICAGO , March 29, 2017  higi, the ... ecosystem in North America , today ... Partners and the acquisition of EveryMove. The new investment ... extensive set of tools to transform population health activities ... and lifestyle data. higi collects and secures ...
Breaking Biology News(10 mins):