Navigation Links
Anonymous survey launched for Parkinson’s patients to collect data for research to help determine the cause of Parkinson's disease.
Date:2/20/2013

Yelm, Wa (PRWEB) February 20, 2013

An anonymous survey has been launched by the Parkinson’s Database Coalition for those afflicted with Parkinson’s disease.

The survey is for Parkinson’s patients or caregivers to complete. It covers several detailed aspects not normally acquired in a clinical setting such as certain demographics, diet, types of treatments, work and chemical exposure. The survey has 115 questions. It will be supplemented by additional surveys which will generate more specific questions based on the data received.

Once sufficient data is accumulated from the survey it will become available to researchers and physicians in a searchable database to aid in faster diagnosis, prevention, better treatment options and hopefully a cure.

The focus of this survey is to isolate specific causes of Parkinson’s disease based on accumulation of a large amount of data received directly from the patients themselves. Because the survey is anonymous it will allow Patients to retain privacy while providing valuable data for research.

There are forums available with an anonymous Parkinson’s Database Coalition I.D. to allow communications between the patients, physicians and researchers, as well as a forum for physicians and patients to communicate with each other about Parkinson’s disease.

After nearly two years of study and research on Parkinson’s disease the survey is available worldwide and will run continually. The initial survey is in English, further updates in as many as 30 different languages will be released.

The cause of Parkinson’s disease is largely unknown and making clinical diagnosis is often difficult. There are no requirements for reporting this disease, but it is estimated that as many as 10 million people are affected worldwide. Currently there are no clinical tests to detect Parkinson’s and conclusive diagnosis can only be made after death.

About Parkinson's Database Coalition

The Parkinson's Database Coalition was founded in Yelm, Wa. in June of 2012 by Steven Keller, a 43 year old patient diagnosed with idiopathic young onset Parkinson’s disease. Mr. Keller created this survey after more than a year of inconclusive testing and many different clinical opinions that provided no clear answers to the cause of his illness. He determined that there was a desperate need for a broader understanding of what causes Parkinson’s disease. This led to the creation of a detailed survey which includes many questions and aspects that are not included in making a clinical diagnosis. The primary mission is to help determine the cause of this crippling disease. For more information visit http://www.parkinsonsdatabase.net

Read the full story at http://www.prweb.com/releases/2013/2/prweb10442332.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related biology technology :

1. 2012 Battalia Winston Survey Finds Corporate Holiday Parties are Making a Comeback
2. Surveying Earths interior with atomic clocks
3. Survey Shows Physicians Divided as Presidential Election Nears
4. Safety Foundation Sends "First of Its Kind" Safety Survey to Resorts
5. International Survey of T2* Cardiovascular Magnetic Resonance in Thalassemia
6. Pharma IQs Compound Management Survey Report
7. Morning Sickness or NVP: National Survey of Nurse Practitioners Points to Underreporting of Common Condition in Pregnancy
8. Survey: Small Medical Practice Confidence Index Rises in 2012
9. Live Press Briefing on Findings of Biomedical Industry CEO Survey
10. Survey Reveals Paternity Questions Loom for More Than One in 10 Americans
11. New Haydale HDPlas™ inks launched at Printed Electronics 2012
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/11/2017)... ... October 11, 2017 , ... ... implantation and pregnancy rates in frozen and fresh in vitro fertilization (IVF) ... and maternal age to IVF success. , After comparing the results from the ...
(Date:10/10/2017)... ... October 10, 2017 , ... ... company advancing targeted antibody-drug conjugate (ADC) therapeutics, today confirmed licensing rights that ... Polymerized Liposomal Nanoparticle), a technology developed in collaboration with Children’s Hospital Los ...
(Date:10/10/2017)... International research firm Parks Associates announced today that Tom ... 2017 Annual Meeting , October 11 in Scottsdale, Arizona ... and how smart safety and security products impact the competitive landscape. ... Parks Associates: Smart Home Devices: Main Purchase Driver ... "The residential security market has experienced continued growth, and ...
(Date:10/10/2017)... ... October 10, 2017 , ... The ... prestigious awards honoring scientists who have made outstanding contributions to analytical ... during Pittcon 2018, the world’s leading conference and exposition for laboratory science, which ...
Breaking Biology Technology:
(Date:4/11/2017)... Fla. , April 11, 2017 ... and secure authentication solutions, today announced that it ... Intelligence Advanced Research Projects Activity (IARPA) to develop ... Thor program. "Innovation has been a ... IARPA,s Thor program will allow us to innovate ...
(Date:4/11/2017)... No two people are believed to ... York University Tandon School of Engineering and Michigan ... partial similarities between prints are common enough that ... and other electronic devices can be more vulnerable ... in the fact that fingerprint-based authentication systems feature ...
(Date:4/6/2017)... -- Forecasts by Product Type (EAC), Biometrics, ... (Transportation & Logistics, Government & Public Sector, Utilities / ... Facility, Nuclear Power), Industrial, Retail, Business Organisation (BFSI), Hospitality ... looking for a definitive report on the $27.9bn Access ... ...
Breaking Biology News(10 mins):