Navigation Links
Accelerated Cure Project for Multiple Sclerosis Approved for Major Funding Award from Patient-Centered Outcomes Research Institute to Create MS Patient-Powered Research Network
Date:12/19/2013

productive usage of data will lead to faster discoveries and improved care for patients."

The iConquerMS™ portal will give patients the opportunity to provide health-related, demographic, and electronic health record (EHR) information that can be shared in a de-identified fashion with researchers who are investigating topics that are important to patients, such as comparative effectiveness of therapeutic agents. The MS-PPRN will be fully integrated with the Clinical Data Research Networks and the Coordinating Center of PCORnet.

Patients will also have the option of contributing biological samples through home-based collection or local laboratories to support biomarker research in MS. Additionally, educational content about the nature and practice of research, information about the participant cohort and studies supported by the MS-PPRN, and direct communications with researchers via the portal will provide more knowledge about MS research and allow patients to contribute their own ideas.

ACP's 18-month goal for enrollment in the MS-PPRN is 20,000 people with MS (5% of the estimated MS population in the United States), starting with the 3,200 participants in the current repository network. Outreach will be made through ACP's existing participant and supporter base, its network of top-tier MS clinics, other MS clinics and community neurologists, highly cooperative MS advocacy organizations who have agreed to invite their members, and social media and other communications channels.

"We congratulate ACP and the MS-PPRN team on receiving this award and look forward to working with them on this effort to help improve the quality of life for those affected by MS," said Doug Franklin, President & CEO of the Multiple Sclerosis Association of America and President of the MS Coalition, a collaborative network of independent MS organizations.

"The response to developing the MS
'/>"/>

SOURCE Accelerated Cure Project for MS (ACP)
Copyright©2012 PR Newswire.
All rights reserved

Page: 1 2 3 4 5

Related biology technology :

1. Rancho BioSciences Will Present the Accelerated Cure Project Multiple Sclerosis Data Curation White Paper at the tranSMART Fall Developers Meeting, Paris, November 5-7
2. Nimbix and Convey Partner for “The Accelerated Genomics Cloud” (TAGC) Promotion
3. Tata Partners with Tel Aviv University to Fund Leading Edge Innovations for Accelerated Commercialization
4. Model Aviation Clubs Raise $76,000 for the Wounded Warrior Project
5. Foundation for the NIH Launches Bone Quality Project
6. National Brain Tumor Society Announces the Defeat GBM Research Collaborative’s Project Plans and Investigator Teams
7. Faithful+Gould Joint Venture Awarded IO&T Project At Fort Detrick, MD
8. Genelux, a Leader in the Emerging Oncolytic Virotherapy Field, Receives Significant Industry Honor from Elsevier Business Intelligence, Identifying GL-ONC1 as One of 2013s Top Oncology Projects to Watch
9. Synthetic Biologics SYN-004 for the Prevention of C. difficile Infections Named a "Top Project to Watch" by Elsevier Business Intelligence
10. iLab Solutions Announces Jessica Evans as the Project Manager for their European Business Expansion
11. TransCelerate BioPharma Inc. Launches Second Year Initiatives, Expands Membership and Achieves Milestones for Original Projects
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:11/27/2014)... (PRWEB) November 27, 2014 Spartan Bioscience ... of Food and Drug Safety (MFDS) regulatory approval for ... provides genetic results in less than 60 minutes from ... indicated as an aid for doctors to determine therapeutic ... pathway. These include some of the world’s most commonly ...
(Date:11/26/2014)... The report on the Global Smart Sensor ... market for revenue forecasts and market trends. It expects ... from 2013 to 2018. At the projected rate, the ... million by 2018. , Browse through the Global Smart ... about the market segmentation and in-depth analysis supported by ...
(Date:11/26/2014)... PHILADELPHIA , Nov. 26, 2014 /PRNewswire-USNewswire/ ... unforgiving environments. Human exploration of space requires astronauts to ... mission safety and success, and prevent potential errors and ... success, little is known about how cognition is affected ... primarily affected. Now, Penn Medicine researchers are ...
(Date:11/26/2014)... NJ (PRWEB) November 25, 2014 ... has officially joined the Morris County (New Jersey) ... which is a leading business organization in the ... opportunity to further engage some key clients in ... operations in the geographic area. Membership enables Whitehouse ...
Breaking Biology Technology:Spartan Bioscience Receives Korean Regulatory Approval for First Rapid DNA Test of Mutations Affecting Metabolism of Common Drugs 2Spartan Bioscience Receives Korean Regulatory Approval for First Rapid DNA Test of Mutations Affecting Metabolism of Common Drugs 3Global Smart Sensor Market in Building Automation is expected to reach a value of $1,415.6 million by 2018 - Report by MicroMarket Monitor 2Global Smart Sensor Market in Building Automation is expected to reach a value of $1,415.6 million by 2018 - Report by MicroMarket Monitor 3Global Smart Sensor Market in Building Automation is expected to reach a value of $1,415.6 million by 2018 - Report by MicroMarket Monitor 4Penn Medicine Team Develops Cognitive Test Battery to Assess the Impact of Long Duration Spaceflights on Astronauts' Brain Function 2Penn Medicine Team Develops Cognitive Test Battery to Assess the Impact of Long Duration Spaceflights on Astronauts' Brain Function 3Penn Medicine Team Develops Cognitive Test Battery to Assess the Impact of Long Duration Spaceflights on Astronauts' Brain Function 4Whitehouse Laboratories Joins Morris County Chamber of Commerce 2Whitehouse Laboratories Joins Morris County Chamber of Commerce 3
... ... Manufacture and Testing of Drug Products Imported to the European Union. , ... Toronto, Ontario (PRWEB) February ... leading pharmaceutical companies, today announced successful completion of its recent Health Canada audit. The ...
... , FORT LAUDERDALE, Fla. , ... published in EuroIntervention (EuroIntervention, 2010; 5:698-702) demonstrated ... and no late stent thrombosis at one year in ... percutaneous coronary intervention (PCI) and implantation of the company,s ...
... , EMERYVILLE, Calif. , Feb. 1 ... has appointed Ted W. Love , M.D., Executive Vice President ... , M.D., Ph.D., who has served as Interim Chief Medical Officer ... reporting to Dr. Love.   , In his new role, Dr. ...
Cached Biology Technology:Dalton Pharma Services Announces Successful Completion of Health Canada Inspection 2Dalton Pharma Services Announces Successful Completion of Health Canada Inspection 3OrbusNeich's Genous(TM) Bio-engineered R stent(TM) Demonstrates Good Safety and Clinical Outcomes in Patients with Primary PCI for STEMI 2OrbusNeich's Genous(TM) Bio-engineered R stent(TM) Demonstrates Good Safety and Clinical Outcomes in Patients with Primary PCI for STEMI 3Onyx Pharmaceuticals Appoints Ted W. Love, M.D., as Head of Research & Development 2Onyx Pharmaceuticals Appoints Ted W. Love, M.D., as Head of Research & Development 3Onyx Pharmaceuticals Appoints Ted W. Love, M.D., as Head of Research & Development 4Onyx Pharmaceuticals Appoints Ted W. Love, M.D., as Head of Research & Development 5
(Date:11/6/2014)... cancer deaths occur because of metastasis, yet progress ... been slow. , "It,s been particularly challenging to ... Gujral, research fellow in systems biology at Harvard ... detected until after they,ve already metastasized." , Gujral ... that should help researchers better understand how metastasis ...
(Date:11/5/2014)... great diversity in their ability to identify scents and ... in their perceptual evaluation of odors, with women outperforming ... , Sex differences in olfactory detection may play a ... to one,s perception of smell, which is naturally linked ... has been suggested to be cognitive or emotional, rather ...
(Date:11/4/2014)... examining only marketing directed at children on the ... found that the majority of black, middle-income and ... tactics. , Authored by Arizona State University researcher ... the first to examine the use of child-directed ... food restaurants and its relationship to demographics. It ...
Breaking Biology News(10 mins):Migration negation 2Migration negation 3The female nose always knows: Do women have more olfactory neurons? 2Fast food marketing for children disproportionately affects certain communities 2Fast food marketing for children disproportionately affects certain communities 3
... Manhattan, but no group takes credit. The pressure on ... sketchy information, the president orders an attack, but it ... wrong country. Things go downhill from there. , To ... 12 scientists with extensive nuclear expertise, headed by Stanford ...
... French. , Hunted to near extinction, ... Pacific coast. Their reintroduction, however, is expected to reduce ... shellfish dramatically, such as sea urchins and geoducks. ... an NSERC-funded researcher at the University of British Columbia, ...
... is available in French . , For more ... of Toronto to rev up the production of stem cells and ... embryonic stem cells. The end products are blood and heart cells ... beating tissue. To do this, he has been applying ...
Cached Biology News:Group led by Stanford physicist says there's an urgent need for nuclear detectives 2Group led by Stanford physicist says there's an urgent need for nuclear detectives 3From stem cells to organs: The bioengineering challenge 2
Mouse monoclonal [7B9] to beta II Tubulin ( Abpromise for all tested applications). Antigen: Synthetic peptide, CEEEEGEDEA found at the c-terminus of beta II tubulin. Entrez GeneID: 10383 ...
Gridded Cell Culture Petri Dish (20 mm molded in base), tissue-culture treated...
...
...
Biology Products: