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Accelerated Cure Project for Multiple Sclerosis Approved for Major Funding Award from Patient-Centered Outcomes Research Institute to Create MS Patient-Powered Research Network
Date:12/19/2013

productive usage of data will lead to faster discoveries and improved care for patients."

The iConquerMS™ portal will give patients the opportunity to provide health-related, demographic, and electronic health record (EHR) information that can be shared in a de-identified fashion with researchers who are investigating topics that are important to patients, such as comparative effectiveness of therapeutic agents. The MS-PPRN will be fully integrated with the Clinical Data Research Networks and the Coordinating Center of PCORnet.

Patients will also have the option of contributing biological samples through home-based collection or local laboratories to support biomarker research in MS. Additionally, educational content about the nature and practice of research, information about the participant cohort and studies supported by the MS-PPRN, and direct communications with researchers via the portal will provide more knowledge about MS research and allow patients to contribute their own ideas.

ACP's 18-month goal for enrollment in the MS-PPRN is 20,000 people with MS (5% of the estimated MS population in the United States), starting with the 3,200 participants in the current repository network. Outreach will be made through ACP's existing participant and supporter base, its network of top-tier MS clinics, other MS clinics and community neurologists, highly cooperative MS advocacy organizations who have agreed to invite their members, and social media and other communications channels.

"We congratulate ACP and the MS-PPRN team on receiving this award and look forward to working with them on this effort to help improve the quality of life for those affected by MS," said Doug Franklin, President & CEO of the Multiple Sclerosis Association of America and President of the MS Coalition, a collaborative network of independent MS organizations.

"The response to developing the MS
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SOURCE Accelerated Cure Project for MS (ACP)
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