BOSTON, Dec. 19, 2013 /PRNewswire/ -- A team led by the Accelerated Cure Project for Multiple Sclerosis (ACP) has been approved for a funding award by the Patient-Centered Outcomes Research Institute (PCORI) to create the Multiple Sclerosis Patient-Powered Research Network (MS-PPRN). The MS-PPRN is one of 29 health data networks that were approved for a total of $93.5 million from PCORI to form the PCORnet: the National Patient-Centered Clinical Research Network, a new national resource that aims to boost the efficiency of health research.
ACP will build on its existing network of more than 3,200 participants, 60 research teams, and MS specialty clinics around the country to create a national patient-powered research network for MS in partnership with the Complex Adaptive Systems Initiative at Arizona State University and Feinstein Kean Healthcare. The MS-PPRN will feature patient-centric governance and will be supported by an integrated IT and communications platform featuring an ADA-compliant, patient-driven and controlled portal (iConquerMS™) that can be accessed regardless of geographical location and healthcare provider.
"The MS Patient-Powered Research Network is a ground-breaking initiative that will help to drive research to end MS forever," said Timothy Coetzee, Ph.D., Chief Advocacy, Services, and Research Officer for the National Multiple Sclerosis Society.
"We are extremely pleased that PCORI is funding the Accelerated Cure Project's program to create the MS Patient-Powered Research Network," said Edward Abrahams, Ph.D., President of the Personalized Medicine Coalition. "We believe such programs comprise a major cornerstone for a new era in which broad-based patient engagement that recognizes individual variation and
|SOURCE Accelerated Cure Project for MS (ACP)|
Copyright©2012 PR Newswire.
All rights reserved