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ACAAI and AGA Partner to Raise Awareness of Hereditary Angioedema Through 'HAE: Learn About It, Talk About It'
Date:5/3/2010

astrointestinal tract, urogenital tract and – most dangerously – the tongue or larynx.  Patients with HAE can experience frequent recurrences that can each last for a few days, with up to 100 days of incapacitation per year, making it challenging to excel in school and at work, and even participate in daily activities.  Due to the rarity and lack of awareness of HAE, and symptoms that can mimic other conditions, such as an allergic reaction, HAE is commonly misdiagnosed.  For some patients, it has taken up to 20 years and visits to a variety of physicians to reach the right diagnosis.  

"One-third of undiagnosed HAE patients have undergone exploratory surgery during an abdominal attack, and 70-80 percent of HAE patients experience recurrent abdominal symptoms.  These statistics underscore the importance of educational programs to raise awareness of the disease," said William J. Tremaine, M.D., AGA program advisor and Professor of Medicine at the Mayo Clinic. "Our hope is that, by collaborating on this innovative program, we can help educate gastroenterologists to work with allergists and immunologists to improve the rate of accurate and timely diagnosis of HAE and, therefore, patient care."

"This is an exciting partnership, bringing together two specialties to work towards relieving patient suffering," said Sami Bahna'/>"/>

SOURCE The American College of Allergy, Asthma and Immunology; American Gastroenterological Association
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