( al years of careful planning and it now...)Multi-million pound UK Biobank underway

al years of careful planning and it now needs two to three thousand people to help us with this initial start-up phase. Because of UK Biobank's importance for improving health, we are optimistic that many local men and women will be keen to get it off to a flying start."

GPs in the area have already been notified, and the first letters to potential participants have been sent out. These were accompanied by a detailed information booklet. Further information is available on request (and via a web site www.ukbiobank.ac.uk), with a freephone number that volunteers and GPs can ring to raise any queries with a study team member. No one is pressured into taking part, and participants can withdraw at any time if they change their minds. The first assessment centre is located in the centre of Altrincham, with appointments continuing into the evenings and at weekends, so that it is easy for lots of different people to attend.

"UK Biobank is a long-term project," said Professor Collins, "so taking part will be a bit like being a blood donor ?you probably won't benefit, but others will. In this case it will be your children and grandchildren's generation. We understand also that there may be questions or concerns about the security of the information and DNA samples. So, information booklets are being sent to everyone we invite and we have a freephone number that people can call to chat things through with a member of the study team. Participants and the public have been at the heart of UK Biobank all along the line. Every possible detail has been gone through with a fine-tooth comb ?rigorous scientific assessment, review by an independent ethics and governance council, Data Protection Act compliance, stringent security measures to prevent unauthorised access to participant's data -- and this scrutiny will be ongoing."

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Source:UK Biobank


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