Navigation Links
Vanderbilt ethicist to study return of results issue involving children in genomics studies
Date:9/28/2011

Answering the questions of if, when and how scientists should inform participants in genomic studies about their risk for diseases or conditions is the aim of new research funded with a $5.7 million grant to Ellen Wright Clayton, Craig-Weaver Professor of Pediatrics and director of the Center for Biomedical Ethics and Society at Vanderbilt University, and seven other experts.

"These new research projects will help us understand how people are reacting to real information about their genomes, which is an increasingly pressing issue as more scientists incorporate genome sequencing into their research," said Eric D. Green, director of the National Human Genome Research Institute which awarded the grants. "We're putting the best minds together to try to develop best practices on this issue by establishing a consortium of all the funded researchers."

The goal of Clayton's project is to identify criteria to guide decisions about returning individual research results to children who participate in genomic research. To do so, she will examine U.S. law and international guidelines about decision-making for and by minors. Then, she will analyze what weight should be given to various benefits potentially associated with returning pediatric research results. These range from immediate benefit to the minor's health or for the minor's reproductive decision-making later in life, to benefits to parents, the minor's siblings or the family as a whole.

Genomic researchers have widely varying opinions on the "return of results" issue. Some believe that they have an ethical or legal obligation to reveal genomic information to study participants -- especially if it is medically significant and treatments are available. Others consider sharing such information unethical -- particularly if the participant was told he or she would not be re-contacted, if the information relates to an untreatable disorder or if the significance of the information is unclear.
'/>"/>

Contact: David Salisbury
david.salisbury@vanderbilt.edu
61-534-336-803
Vanderbilt University
Source:Eurekalert  

Page: 1 2

Related biology news :

1. Vanderbilt researchers, international team, uncover genes linked to multiple sclerosis
2. Vanderbilt-Ingram Cancer Center launches online genetic research tool
3. Scripps Research and Vanderbilt to launch joint institute
4. Vanderbilt engineers play key role in new DOE energy frontier research center
5. Vanderbilt scientists invent worlds smallest periscopes
6. Utah ethicist heads stem cell panel
7. Wildlife Conservation Society study uncovers a predictable sequence toward coral reef collapse
8. US Forest Service study finds hemlock still abundant despite adelgid infestation
9. NIH-funded study connects gene variant to response to asthma drugs
10. Study puts a new spin on ibuprofens actions
11. University of Arizona to study human-fire-climate interactions
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Vanderbilt ethicist to study return of results issue involving children in genomics studies
(Date:7/31/2014)... Alexandre Edmond Becquerel first discovered the photovoltaic effect in ... the power of sunlight for its own purposes. In ... issue of the FASEB Journal , ... the power of sunlight by focusing on a naturally ... throughout evolution. This conservationor persistence over time and across ...
(Date:7/31/2014)... In the same week that the U.S. surgeon general ... cancer, researchers at Montana State University published a paper ... code in every cell responds when exposed to ... of DNA damage by the UV rays found in ... and some degenerative eye diseases. , "Our paper ...
(Date:7/31/2014)... Dr. Oren Tessler, Assistant Professor of Clinical Surgery at ... is part of a team of plastic and reconstructive ... method to screen and select patients for a specific ... patients who underwent this surgery to decompress the nerves ... bonus cosmetic eyelid surgery. The study, which confirms the ...
Breaking Biology News(10 mins):Scientists shine bright new light on how living things capture energy from the sun 2New paper describes how DNA avoids damage from UV light 2New paper describes how DNA avoids damage from UV light 3Surgeons report significant migraine relief from cosmetic eyelid surgery technique 2
... California, Berkeley, virologist and an assistant professor in the Department ... Keck Foundation grant, an award given to innovative young scientists ... totals up to $1 million over five years, will go ... as a tool to study the inner workings of human ...
... to a cause of death but now a study of ... cause of major depression and suicide. The international research ... Institute at The University of Western Ontario and Dr. Hymie ... the first to show that proteins that modify DNA directly ...
... Researchers at the University of California, San Francisco, have identified ... killing parrots and exotic birds for more than 30 years. ... PhD, and Don Ganem, MD, also has developed a diagnostic ... PDD, which will enable veterinarians worldwide to control the spread ...
Cached Biology News:UC Berkeley virologist named Keck Distinguished Young Scholar 2Study identifies changes to DNA in major depression and suicide 2UCSF researchers identify virus behind mysterious parrot disease 2
(Date:7/31/2014)... 31, 2014 Senomyx , Inc. ... using proprietary taste science technologies to discover, develop, ... beverage, and ingredient supply industries, today reported financial ... ended the second quarter with $33.6 million in ... "During the past quarter Senomyx achieved another important ...
(Date:7/31/2014)... CA (PRWEB) July 31, 2014 ... today the integration of Omicsoft’s Array Suite with ... platforms will be able to send data in tranSMART ... works with all versions of tranSMART including the new ... art statistics, visualization and storage for the analysis of ...
(Date:7/31/2014)...   BioLife Solutions , Inc. (NASDAQ: ... proprietary clinical grade hypothermic storage and ... products for cells and tissues, today announced today ... be released on Thursday, August 7, 2014, and that ... webcast at 4:30 p.m. ET that afternoon. Management will ...
(Date:7/31/2014)... Scottsdale, AZ (PRWEB) July 31, 2014 ... the availability of its online sales training course – ... salespeople improve their sales performance. , Drawn from proven ... Fortune 500 companies, Mastering the Complex Sale online sales ... as to anyone who has face-to-face contact with customers, ...
Breaking Biology Technology:SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 2SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 3SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 4SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 5SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 6SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 7SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 8SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 9SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 10SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 11SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 12SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 13SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 14SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 15SENOMYX ANNOUNCES CORPORATE UPDATE AND SECOND QUARTER 2014 FINANCIAL RESULTS 16Rancho BioSciences, in Partnership with Omicsoft, have Integrated Array Suite with tranSMART 2Rancho BioSciences, in Partnership with Omicsoft, have Integrated Array Suite with tranSMART 3BioLife Solutions to Report Financial Results for Second Quarter 2014 and Provide Business Update on August 7, 2014 2Sales Horizons Offers Mastering the Complex Sale - a Comprehensive, Online Sales Skills Training Course 2Sales Horizons Offers Mastering the Complex Sale - a Comprehensive, Online Sales Skills Training Course 3
... MBF Healthcare,Acquisition Corp. (Amex: MBH ), a ... it and Critical Home Solutions,Holdings, Inc., a privately-owned, ... infusion services, are scheduled to present,on Wednesday, February ... in New York, NY. On February 7, 2008, ...
... CITY, Calif., Feb. 12 /PRNewswire-FirstCall/ . Maxygen, Inc.,(Nasdaq: ... the development of,improved protein drugs, today reported financial ... 31, 2007. At December 31, 2007, cash, cash,equivalents ... million at December 31, 2006., "After a ...
... 12 WaferGen Biosystems,Inc. (OTC Bulletin Board: WGBS), ... biology and stem cell research systems,today announced that ... deliver a corporate presentation at the Roth Capital ... will be held,February 18-21, 2008, at the Ritz-Carlton ...
Cached Biology Technology:MBF Healthcare Acquisition Corp. and Critical Homecare Solutions Holdings, Inc. to Present at the 2008 UBS Healthcare Services Conference 2MBF Healthcare Acquisition Corp. and Critical Homecare Solutions Holdings, Inc. to Present at the 2008 UBS Healthcare Services Conference 3Maxygen Reports Fourth Quarter and Year End 2007 Financial Results 2Maxygen Reports Fourth Quarter and Year End 2007 Financial Results 3Maxygen Reports Fourth Quarter and Year End 2007 Financial Results 4Maxygen Reports Fourth Quarter and Year End 2007 Financial Results 5Maxygen Reports Fourth Quarter and Year End 2007 Financial Results 6WaferGen to Present at the Roth Capital Partners 20th Annual OC Growth Stock Conference 2