Navigation Links
Vanderbilt ethicist to study return of results issue involving children in genomics studies
Date:9/28/2011

Answering the questions of if, when and how scientists should inform participants in genomic studies about their risk for diseases or conditions is the aim of new research funded with a $5.7 million grant to Ellen Wright Clayton, Craig-Weaver Professor of Pediatrics and director of the Center for Biomedical Ethics and Society at Vanderbilt University, and seven other experts.

"These new research projects will help us understand how people are reacting to real information about their genomes, which is an increasingly pressing issue as more scientists incorporate genome sequencing into their research," said Eric D. Green, director of the National Human Genome Research Institute which awarded the grants. "We're putting the best minds together to try to develop best practices on this issue by establishing a consortium of all the funded researchers."

The goal of Clayton's project is to identify criteria to guide decisions about returning individual research results to children who participate in genomic research. To do so, she will examine U.S. law and international guidelines about decision-making for and by minors. Then, she will analyze what weight should be given to various benefits potentially associated with returning pediatric research results. These range from immediate benefit to the minor's health or for the minor's reproductive decision-making later in life, to benefits to parents, the minor's siblings or the family as a whole.

Genomic researchers have widely varying opinions on the "return of results" issue. Some believe that they have an ethical or legal obligation to reveal genomic information to study participants -- especially if it is medically significant and treatments are available. Others consider sharing such information unethical -- particularly if the participant was told he or she would not be re-contacted, if the information relates to an untreatable disorder or if the significance of the information is unclear. There are also regulatory and policy issues related to developing clinical applications that the researchers must consider.

According to NHGRI, the studies they have commissioned will shed light on real-life applications of returning genomic results to study participants.


'/>"/>
Contact: David Salisbury
david.salisbury@vanderbilt.edu
61-534-336-803
Vanderbilt University
Source:Eurekalert  

Related biology news :

1. Vanderbilt researchers, international team, uncover genes linked to multiple sclerosis
2. Vanderbilt-Ingram Cancer Center launches online genetic research tool
3. Scripps Research and Vanderbilt to launch joint institute
4. Vanderbilt engineers play key role in new DOE energy frontier research center
5. Vanderbilt scientists invent worlds smallest periscopes
6. Utah ethicist heads stem cell panel
7. Wildlife Conservation Society study uncovers a predictable sequence toward coral reef collapse
8. US Forest Service study finds hemlock still abundant despite adelgid infestation
9. NIH-funded study connects gene variant to response to asthma drugs
10. Study puts a new spin on ibuprofens actions
11. University of Arizona to study human-fire-climate interactions
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Vanderbilt ethicist to study return of results issue involving children in genomics studies
(Date:5/16/2017)... 16, 2017  Veratad Technologies, LLC ( www.veratad.com ), ... and identity verification solutions, announced today they will participate ... May 15 thru May 17, 2017, in ... Trade Center. Identity impacts the lives ... today,s quickly evolving digital world, defining identity is critical ...
(Date:5/6/2017)... SINGAPORE , May 5, 2017 ... has just announced a new breakthrough in biometric ... that exploits quantum mechanical properties to perform ... new smart semiconductor material created by Ram Group ... across finance, entertainment, transportation, supply chains and security. ...
(Date:4/19/2017)... York , April 19, 2017 ... as its vendor landscape is marked by the presence ... market is however held by five major players - ... Together these companies accounted for nearly 61% of the ... the leading companies in the global military biometrics market ...
Breaking Biology News(10 mins):
(Date:10/10/2017)... ... 10, 2017 , ... USDM Life Sciences , the ... sciences and healthcare industries, announces a presentation by Subbu Viswanathan and Jennifer Jaye ... GxP Validation for Agile Cloud Platforms,” will present a revolutionary approach to achieving ...
(Date:10/9/2017)... FL (PRWEB) , ... October 09, 2017 , ... The ... scheduled to broadcast first quarter 2018. American Farmer airs Tuesdays at 8:30aET on RFD-TV. ... industry is faced with the challenge of how to continue to feed a growing ...
(Date:10/9/2017)... ... October 09, 2017 , ... ... 2017, in the medical journal, Epilepsia, Brain Sentinel’s SPEAC® System which uses ... EEG, in detecting generalized tonic-clonic seizures (GTCS) using surface electromyography (sEMG). The ...
(Date:10/7/2017)... , Oct. 6, 2017  The 2017 ... of three scientists, Jacques Dubochet, Joachim Frank ... developments in cryo-electron microscopy (cryo-EM) have ... within the structural biology community. The winners worked ... can now routinely produce highly resolved, three-dimensional images ...
Breaking Biology Technology: