Navigation Links
Vanderbilt ethicist to study return of results issue involving children in genomics studies
Date:9/28/2011

Answering the questions of if, when and how scientists should inform participants in genomic studies about their risk for diseases or conditions is the aim of new research funded with a $5.7 million grant to Ellen Wright Clayton, Craig-Weaver Professor of Pediatrics and director of the Center for Biomedical Ethics and Society at Vanderbilt University, and seven other experts.

"These new research projects will help us understand how people are reacting to real information about their genomes, which is an increasingly pressing issue as more scientists incorporate genome sequencing into their research," said Eric D. Green, director of the National Human Genome Research Institute which awarded the grants. "We're putting the best minds together to try to develop best practices on this issue by establishing a consortium of all the funded researchers."

The goal of Clayton's project is to identify criteria to guide decisions about returning individual research results to children who participate in genomic research. To do so, she will examine U.S. law and international guidelines about decision-making for and by minors. Then, she will analyze what weight should be given to various benefits potentially associated with returning pediatric research results. These range from immediate benefit to the minor's health or for the minor's reproductive decision-making later in life, to benefits to parents, the minor's siblings or the family as a whole.

Genomic researchers have widely varying opinions on the "return of results" issue. Some believe that they have an ethical or legal obligation to reveal genomic information to study participants -- especially if it is medically significant and treatments are available. Others consider sharing such information unethical -- particularly if the participant was told he or she would not be re-contacted, if the information relates to an untreatable disorder or if the significance of the information is unclear. There are also regulatory and policy issues related to developing clinical applications that the researchers must consider.

According to NHGRI, the studies they have commissioned will shed light on real-life applications of returning genomic results to study participants.


'/>"/>
Contact: David Salisbury
david.salisbury@vanderbilt.edu
61-534-336-803
Vanderbilt University
Source:Eurekalert  

Related biology news :

1. Vanderbilt researchers, international team, uncover genes linked to multiple sclerosis
2. Vanderbilt-Ingram Cancer Center launches online genetic research tool
3. Scripps Research and Vanderbilt to launch joint institute
4. Vanderbilt engineers play key role in new DOE energy frontier research center
5. Vanderbilt scientists invent worlds smallest periscopes
6. Utah ethicist heads stem cell panel
7. Wildlife Conservation Society study uncovers a predictable sequence toward coral reef collapse
8. US Forest Service study finds hemlock still abundant despite adelgid infestation
9. NIH-funded study connects gene variant to response to asthma drugs
10. Study puts a new spin on ibuprofens actions
11. University of Arizona to study human-fire-climate interactions
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
Vanderbilt ethicist to study return of results issue involving children in genomics studies
(Date:4/15/2016)... 2016 Research and Markets has ... Market 2016-2020,"  report to their offering.  , ... ,The global gait biometrics market is expected to ... period 2016-2020. Gait analysis generates multiple ... used to compute factors that are not or ...
(Date:3/31/2016)... , March 31, 2016  Genomics firm Nabsys ... founding CEO, Barrett Bready , M.D., who returned ... of the original technical leadership team, including Chief Technology ... of Product Development, Steve Nurnberg and Vice President of ... to the company. Dr. Bready served as ...
(Date:3/22/2016)... PROVO and SANDY, Utah ... Ontario (NSO), which operates the highest sample volume laboratory ... and Tute Genomics and UNIConnect, leaders in clinical sequencing ... announced the launch of a project to establish the ... panel. NSO has been contracted by ...
Breaking Biology News(10 mins):
(Date:5/27/2016)... At present, the Biotech sphere is in a ... volatility is what makes this industry interesting to consider. Here ... (NASDAQ: SNTA ), CTI BioPharma Corp. (NASDAQ: ... and Heat Biologics Inc. (NASDAQ: HTBX ). Sign ... these stocks at: http://www.activewallst.com/register/ ...
(Date:5/26/2016)... Despite the volatility that continues to envelop the ... research on ActiveWallSt.com directs the investor community,s focus on the ... ), Cerus Corp. (NASDAQ: CERS ), Arrowhead Pharmaceuticals ... Inc. (NASDAQ: FPRX ). Register with us today ... On Wednesday, shares in Massachusetts ...
(Date:5/25/2016)... ... May 25, 2016 , ... Lajollacooks4u has become a rising hotspot for specialized ... of its top attractions. Fortune 500 companies, such as Illumina, Hewlett-Packard, Qualcomm and ... intimate team-building experience. , Each event kicks off with an olive oil and salt-tasting ...
(Date:5/25/2016)... ... May 25, 2016 , ... The ... by the Office of the National Coordinator for Health IT (ONC) outlining a ... clinically relevant data were available when and where it was needed. The organization ...
Breaking Biology Technology: