Navigation Links
Unexplained childhood disorders
Date:10/13/2010

New Rochelle, NY, October 13, 2010Parents of children with undiagnosed learning disorders, developmental deficits, and congenital abnormalities face a host of psychological and social challenges, which are explored in detail in a reflective article in Genetic Testing and Molecular Biomarkers, a peer-reviewed journal published by Mary Ann Liebert, Inc. (www.liebertpub.com). The article is available free online ahead of print at www.liebertpub.com/gtmb

An interview-based study of parents of children with undiagnosed disorders describes the parental experience as a "journey" comprised of an inner, emotional journey and an outer-world, sociological experience. Celine Lewis, from Genetic Alliance UK (London) and Heather Skirton and Ray Jones, from the University of Plymouth (UK), identify the primary components of this multifaceted journey in the article entitled "Living Without a Diagnosis: The Parental Experience." A commonly expressed theme among the study participants was the sense of frustration that is present throughout their experiences.

Many of the experiences described during the interviews are similar to those expressed by parents of children with known disabilities. These include the initial recognition and acceptance of the disorder and the process of pursuing a diagnosis, which are components of the inner journey. Additionally, shared social or outer-world experiences might include the interaction with members of the child's healthcare team and dealing with issues such as education and housing. The questioning and uncertainty associated with undiagnosed disorders in children adds another layer of complexity to the challenges these parents face, conclude the authors of the study.

"The article is a vivid illustration of the impact of a genetic disease, the benefit of a diagnosis, and the ongoing challenge of care to the patient and
'/>"/>

Contact: Vicki Cohn
vcohn@liebertpub.com
914-740-2156
Mary Ann Liebert, Inc./Genetic Engineering News
Source:Eurekalert

Page: 1 2

Related biology news :

1. Unexplained chest pain can be due to stress
2. Comprehensive cardiogenetic testing for families of sudden unexplained death victims can save lives
3. Researchers identify Achilles heel of common childhood tumor
4. Childhood environmental health
5. Study sheds light on genetic differences that cause a childhood eye disease
6. Childrens National convenes first childhood obesity symposium
7. Early childhood diet may influence future health
8. Childhood chicken pox could affect oral health years later
9. Study to evaluate success of parental involvement in early childhood education
10. Researchers discover gene mutations that cause childhood brain cancer
11. Rutgers research tackles childhood epilepsy
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/16/2014)... land managers have a new synthesis of recent research ... (MMC) forests in the two states. , The ... Oregon and Washington: A Synthesis of the Relevant Biophysical ... technical report published by the U.S. Forest Service,s Pacific ... request from managers for a synthesis of the large ...
(Date:10/16/2014)... – Post-menopausal women experienced improvements in vaginal atrophy, ... genital bleeding, after 12 weeks of daily 10 ... germ-based nutritional supplement previously shown to help relieve ... pilot study reported in a poster at the ... , "These data documented improved vaginal epithelium, ...
(Date:10/15/2014)... Life, is a non-traditional biophysics textbook and it describes ... a journey of discovery into biological systems and provides ... regulation. It is about how our genes make proteins ... billions of cells in an organism. It quantifies the ... which can be found on both large and small ...
Breaking Biology News(10 mins):New report synthesizes best available science on management of moist mixed-conifer forests 2S-equol supplements associated with improved measures of reproductive health in postmenopausal women 2New book about life as seen from physics 2
... measured in a simple blood test may be a new ... asthma, Yale School of Medicine researchers report today in the ... YKL-40, brings investigators one step closer to a treatment for ... the disease that is difficult to treat, the researchers say. ...
... MAA new Brandeis University study of twins shows that ... hearing loss that often appears in late middle age. ... examined genetic and environmental factors affecting hearing loss in ... research confirms the importance of genetic factors in age-associated ...
... as well as snow fields and glaciers are the ... human livelihoods. Continuous observations are crucial to manage ... the environment and also to provide crucial forecasting services ... These tasks are routinely undertaken by the National Hydrological ...
Cached Biology News:Yale discovery suggests protein may play a role in severe asthma 2Space technology put into service for global water resources observations 2
(Date:10/18/2014)... October 18, 2014 The report ... Trends and Forecasts to 2019", analyzes the global ... order to understand the industry details such as ... across various geographic regions. , Browse 81 Market ... Slides and in-depth TOC on “1,6-Hexanediol Market by ...
(Date:10/18/2014)... The Asian Electronic Medical Record (EMR) market ... analysis and forecast of revenue. The electronic medical record market ... million by 2018, at a CAGR of 9.4% from 2013 ... Electronic Medical Record (EMR) market, to get an idea of ... the segmentation of the market in the same region, and ...
(Date:10/18/2014)... The “Global Diagnostic Electrocardiograph (ECG) Market by ... Home/Ambulatory, Research Center, Physician Office, Nursing Homes), by ... 2020” provides a detailed overview of the major ... strategies impacting the global diagnostic ECG market along ... and share analysis. , The global diagnostic ECG ...
(Date:10/17/2014)... (PRWEB) October 17, 2014 For ... top employers, as published in today’s print issue ... Careers’ annual Top Employers Survey polled employees in ... the 20 best employers. Rankings were determined ... asked to rate their companies on 23 characteristics, ...
Breaking Biology Technology:1,6-Hexanediol Market Projected to Reach $916.1 Million at a CAGR of 8.3% by 2019 – Report by MarketsandMarkets 21,6-Hexanediol Market Projected to Reach $916.1 Million at a CAGR of 8.3% by 2019 – Report by MarketsandMarkets 31,6-Hexanediol Market Projected to Reach $916.1 Million at a CAGR of 8.3% by 2019 – Report by MarketsandMarkets 41,6-Hexanediol Market Projected to Reach $916.1 Million at a CAGR of 8.3% by 2019 – Report by MarketsandMarkets 5The Asian Electronic Medical Record (EMR) market is estimated to grow to $2,328.0 million by 2018 - New Report by MicroMarket Monitor 2The Asian Electronic Medical Record (EMR) market is estimated to grow to $2,328.0 million by 2018 - New Report by MicroMarket Monitor 3The Asian Electronic Medical Record (EMR) market is estimated to grow to $2,328.0 million by 2018 - New Report by MicroMarket Monitor 4The Asian Electronic Medical Record (EMR) market is estimated to grow to $2,328.0 million by 2018 - New Report by MicroMarket Monitor 5The Electrocardiograph (ECG) Market Is Expected to Reach $5,435 Million By 2020 - New Research Report by MarketsandMarkets 2The Electrocardiograph (ECG) Market Is Expected to Reach $5,435 Million By 2020 - New Research Report by MarketsandMarkets 3The Electrocardiograph (ECG) Market Is Expected to Reach $5,435 Million By 2020 - New Research Report by MarketsandMarkets 4The Electrocardiograph (ECG) Market Is Expected to Reach $5,435 Million By 2020 - New Research Report by MarketsandMarkets 5DuPont Named Top Employer by Science Magazine 2DuPont Named Top Employer by Science Magazine 3
... Vical Incorporated (Nasdaq:,VICL) and AnGes MG, Inc., have ... interest to license the development and marketing,rights for ... AnGes. AnGes,plans to conduct due diligence on the ... negotiate terms and conditions potentially leading,to a license, ...
... Includes Isilon Customer the Broad Institute of MIT and ... ... SEATTLE, Oct. 7 Isilon(R) Systems (Nasdaq:,ISLN), the leader in ... will address the growing data storage,challenges facing life science research ...
... chemistry to the ... of chemists among the goals, BUDAPEST, Hungary, LONDON ... that it has signed agreements with a,number of academic ... San Francisco, Boston University, Temple,University and the University of ...
Cached Biology Technology:Vical and AnGes MG Sign Letter of Intent for Pandemic Influenza Program 2Isilon CTO Addresses Life Science Data Storage Challenges at Harvard Medical School's BioMedical HPC Leadership Summit 2Isilon CTO Addresses Life Science Data Storage Challenges at Harvard Medical School's BioMedical HPC Leadership Summit 3ThalesNano, Inc. Forms Collaborations with Leading US Universities based on the Award Winning H-Cube(R) and H-Cube Midi(TM) 2
Rat monoclonal to UGGT ( Abpromise for all tested applications)....
... anti-phospho-FAK (Ser843) Immunogen: ... region encompassing the human, mouse, and ... Accession Number: NM_153831 ... evaluated by immunoblot. ...
Molecular Biology grade. Ideally suited for DNA and RNA separation and recovery. High gel strength. Gelling temp. 36C. Melting temp. 88C. EEO: 0.05-0.13 Resolution 0.2-40 kb; Rnase/Dnase: none detec...
Rabbit polyclonal to Quinolinic acid ( Abpromise for all tested applications). Antigen: Synthetic quinolinic acid conjugated to bovine serum albumin....
Biology Products: