Of the students surveyed, 73 percent self-identified as white, while 27 percent self-identified as an ethnic minority. Before being given a description of a genetic biobank, 36 percent said they'd heard of the term. After being informed, 64 percent said they were willing to participate.
"Overall I found that the students who were more educated, the seniors, were more familiar with the concept of a biobank, and they were also more comfortable with it," Adolphson said. "So we think education plays a role in acceptance."
The research indicates that the medical community should do more to inform people about biobanks, Adolphson said.
Biobanks should educate people to familiarize them with concept
"The biobank community needs to educate people. And they need to use simple language that isn't intimidating, because lack of knowledge is a big barrier," she said. "From this research we saw that younger people are going to be willing to participate, because they are open-minded about the concept of research."
Adolphson's research followed a larger study by Frierson, which surveyed 135 adult Dallas-area residents who also attended one of Frierson's 28 focus groups on the subject of biobanks. That study found that 81 percent of the participants had never heard of biobanking. Before the educational focus groups, 64 percent said they would participate in a biobank. After focus groups, that number significantly jumped to 90 percent, Frierson said.
|Contact: Margaret Allen|
Southern Methodist University