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Spain is leading the fight against rare anemias in Europe
Date:11/19/2010

small number of cases, one of the most important aspects in the fight against rare diseases is the cooperation between countries. Establishing a national plan to fight these diseases in the European Union framework is essential for knowledge management of each disease and improving public health in general. The Spanish strategy in the case of anemia is exemplary with initiatives such as the ENERCA European network, a project that brings together all the actors involved in the study and treatment of rare blood diseases: national and international institutions, medical professionals, researchers, associations and affected patients, etc ... have gathered today in Madrid to claim that there is still a long way ahead.

The primary objective of ENERCA (www.enerca.org) is to establish a network of close contacts for disseminating the latest developments in all kinds of rare anemias, both inherited (congenital) and not inherited (acquired). It aims to help those patients who suffer, their families and their caregivers, trying to offer clear, reliable and useful information for a correct diagnostic approach. The project has been funded with 1.2 million Euros by the European Commission in its third phase of development (2009-1012). Congress held between 19 and 20 November in the Cosmocaixa de Madrid (Alcobendas) is another example of how networking is promoted from ENERCA.


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Contact: lex Argem
aargemi@clinic.ub.es
0034-932-275-700
IDIBAPS - Institut d'Investigacions Biomdiques August Pi i Sunyer
Source:Eurekalert

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