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Research and legislation should go hand in hand, as much as possible
Date:11/23/2009

health and other personal data. "As people we are very vulnerable regarding our personal information, more so with information which our genes provide about our health - data that is predictive, looking to the future", explained Mr Romeo.

"This is why, research and legislation should go hand in hand", underlined Mr Romeo. According to this researcher, the challenge for legal rights is for it to go hand in hand with advances in research, as much as possible; it has to be dynamic in the sense that it should change according to needs as they arise, given that research matters are ever-changing, especially in this case. "If research is carried out responsibly, the limits that legislation places on biomedical research should not go beyond what is necessary at each period of time" explained Mr Romeo.

"For example, the legislation on the removal and transplant of organs passed in 1979 I drew up the text of the Bill, states Mr Romeo , will be 30 years old at the end of this month of October." According to Mr Romeo, there has been no need to modify this law. "The essential was there and nothing has changed, given that it would appear to be evident that permission has to be sought of a living donor to extract an organ, or the heart cannot be removed if this were to cause death, and so on". There has been no need to make changes to this. In other cases, however, it is indeed necessary to modify existing legislation.


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