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Recommendations issued to counter patent, proprietary barriers to sharing stem cell data
Date:1/24/2011

sh two central, publicly available databases that would ease the sharing of information vital to scientific progress. One database would include information on all stem cell lines being used in research worldwide. The other would be a central hub for accessing information about stem cell intellectual property rights. Both resources would link to and build on similar registries already in existence.

  • Encourage, support and coordinate an international network of stem cell banks and human tissue and cell repositories. The network would catalyze standardization, coordination and expansion of what is now a patchwork of inconsistent bio-banking and sharing practices.

  • Develop and institute incentives for data and materials sharing through publication, participation in information hubs and other mechanisms. Under this guideline, funders, research institutions and scientific journals would insist researchers submit their data to these "hubs," and that enough informationand materials, where appropriatewould be shared to allow other researchers to evaluate and replicate published work.

    Funders and journals would also request that researchers share useful negative data generated in the course of a project, with scientists and clinicians advising journals and funders on appropriate standards for data completeness.

  • Explore options for formal collaborative networks and mechanisms such as patent pools and patent brokering. When collective management of intellectual property can move the field forward, such arrangements could ease growing fears of patent infringement and crippling lawsuits.

  • Adopt licensing practices and patent policies that promote fair, reasonable and non-discriminatory (equitable) access to knowledge and health-care applications. Licensing should follow recommendations endorsed by other professional societies, such as the recommendation to reserve research rights for non-profit institutions and promote ac
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  • Contact: Michael Pena
    mpena@jhsph.edu
    Johns Hopkins Medical Institutions
    Source:Eurekalert

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