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Rare cancers: the challenge of accurate diagnosis -- press release
Date:2/11/2014

upport.There is a strong need for more collaboration among experts, especially in small member states, as Slovenia. We, the decision-makers, need to work for our patients. The cross border healthcare directive gives us the opportunity to be more efficient when it comes to rare diseases. Cancer is a distant topic for many of us, but when it comes to our home, things change. At the end of the day, we are all patients. "

Kathy Oliver from the International Brain Tumour Alliance (IBTA) declared: "Every rare cancer patient in Europe should have equal access to the best healthcare. This includes the right to a second (reimbursed) opinion. If the best treatment is not available close to the patient's home, they should be able to contact the closest centre of excellence very quickly. ERNs are being established under the Cross Border Healthcare Directive but there is still a lot of red tape. In cancer, timely treatment is everything."

Industry representatives also attended the workshop. The Rare Cancers Europe initiative has called on them to prioritise the development of medicines for these diseases and will hold another workshop in October to address the methodological barriers to rare cancer care.

Casali concluded: "We have worked hard on the items for this vital consensus, but the important part comes now. The implementation of the recommendations we will release is crucial to improve the lives of rare cancer sufferers."


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Contact: Rare Cancers Europe Press Office
rarecancereuropenews@esmo.org
33-062-314-5784
European Society for Medical Oncology
Source:Eurekalert

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