Brussels, Belgium, 11 February 2014 -- Inaccurate diagnosis is a major obstacle for the proper treatment of patients with rare cancers. A Consensus on Improving the Pathologic Diagnosis of Rare Cancers was presented today by RARE CANCERS EUROPE, together with the European Society for Medical Oncology (ESMO) and the European Society of Pathology (ESP) in Brussels. The recommendations aim to help rare cancer patients get a timely and accurate diagnosis.
The statement is the result of a two-day workshop, where the particular challenges for each type of rare cancer(1) were discussed.
"Inaccurate diagnosis means inappropriate treatment," said Paolo G Casali, from the Istituto Nazionale Tumori, Milan, Italy and ESMO Coordinator of the Rare Cancers Europe Initiative. "Pathological diagnosis is everything in oncology. There is an urgent need for solutions in health organization across Europe to facilitate referrals in order to ensure an accurate first diagnosis for rare cancer patients."
Angelo Dei Tos, ESP Co-Chair of the workshop, said, "During this workshop, pathologists and clinicians have worked together to highlight challenges for each type of rare cancer. Diagnosing and treating cancers should always be a multidisciplinary effort."
Rare cancers affect over four million people in the EU (2) and, taken together, represent 20% of all cancer cases and a huge burden on healthcare.
Zofija Mazej Kukovič, Member of the European Parliament (MEP) and former Minister of Health of Slovenia said: "When it comes to rare cancers, there is a clear need for European Reference Networks (ERN). These diseases affect large numbers of people, even though their prevalence is low. Patients have to tackle many difficulties, most of the time without the right s
|Contact: Rare Cancers Europe Press Office|
European Society for Medical Oncology